Atypical lobular hyperplasia: Did you have surgery?

Posted by delormv @delormv, Aug 29, 2022

August 2021, I was diagnosed with invasive DCIS in my left breast. I underwent a lumpectomy, chemo, and radiation. I am currently on Anastrozole. August 2022, ALH was incidentally found in my right breast after a biopsy was performed due to microcalcifications found on a mammogram. My surgical oncologist stated that ALH does not need to be surgically removed since it is not cancer. Has anyone else been diagnosed with ALH and not had it removed? Have others had theirs removed? Thank you 🙏

Interested in more discussions like this? Go to the Breast Cancer Support Group.

delormv | @delormv | Sep 7, 2022

In reply to @colleenyoung "Welcome, @wendles I moved your message to this existing discussion that @delormv recently started so you..." + (show)

Hi Wendles,
I was not offered radiation as treatment for ALH. Since I’m on anastrozole for previously having invasive DCIS, my surgical oncologist isn’t recommending surgery at this time. I’m wondering if others had surgery to remove the atypical cells. I will probably seek a second opinion.

Colleen Young, Connect Director | @colleenyoung | Sep 7, 2022

In reply to @wendles "Just had a lumpectomy last week and pathology is showing ALH, will the radiation i have..." + (show)

Welcome, @wendles
I moved your message to this existing discussion that @delormv recently started so you can connect with other members with ALH experience. See
- Atypical lobular hyperplasia: Did you have surgery? https://connect.mayoclinic.org/discussion/atypical-lobular-hyperplasia/

Radiation isn't always offered as a follow-up treatment to surgery. Was radiation recommended for you Wendles?

wendles | @wendles | Sep 7, 2022

Just had a lumpectomy last week and pathology is showing ALH, will the radiation i have to have kill the ALH cells?

delormv | @delormv | Sep 6, 2022

In reply to @colleenyoung "Hi @delormv, having already had DCIS in your left breast, I can imagine that you're concerned..." + (show)

Thank you for the above information!

Colleen Young, Connect Director | @colleenyoung | Sep 5, 2022

Hi @delormv, having already had DCIS in your left breast, I can imagine that you're concerned about no treatment for atypical lobular hyperplasia found in your right breast. I'm tagging fellow members @cindylb @casa @tommie57 @sorrel to share their ALH experiences with you. Additionally @kk57 and @pharmmom4 also had ALH at the same time as having breast cancer in the other breast.

You might also wish to see this discussion that @elsie37 started a little while ago.
High risk, NOT from BRCA but from typia, such as ALH, ADH, LCIS https://connect.mayoclinic.org/discussion/high-risk-not-from-brca-but-from-typia-such-as-alh-adh-lcis/

Mayo Clinic suggest surgery as a treatment option.
"Atypical hyperplasia is generally treated with surgery to remove the abnormal cells and to make sure no in situ or invasive cancer also is present in the area. Doctors often recommend more-intensive screening for breast cancer and medications to reduce your breast cancer risk." Read more here
- Atypical hyperplasia of the breast https://www.mayoclinic.org/diseases-conditions/atypical-hyperplasia/diagnosis-treatment/drc-20369778

Delor, have you considered a second opinion?

callalloo | @callalloo | Sep 2, 2022

I'm sure that a Moderator will soon welcome you officially to Mayo Connect but wanted to mention that atypical lobular hyperplasia has been mentioned on a few other threads here as well. And you might find some answers by checking them out as well.

Just search for atypical lobular hyperplasia using the magnifying glass icon in the upper right corner of this web page. Welcome to this cybercommunity.