SBRT, 5 Treatments total. See http://www.redjournal.org “Early-Stage Primary Lung Neuroendocrine Tumors Treated With Stereotactic Body Radiation Therapy: A Multi-Institution Experience.” This report hypothesizes that SBRT could lead to …effective tumor control and long -term outcomes.” The data is small and particularly small for Atypical LNETs.
I too had 5 treatments of sbrt for 2 lung nets. I did not have any side effects and tolerated the treatment well. Had a ct scan after 3 months and all looked good. Will have another scan in 4 more months.
I have a Lung Net that is well defined, grade one. It is in my middle lobe of my right lung. I have been to a local surgeon and to a NET Specialist at Cedar Sinaí in Los Angeles. Dr Sankar at Ceder agreed with my what local surgeon proposed. I was also given the option to do nothing and watch it. My NET was a incidental finding while I was hospitalized with diverticulitis. I have loss 25 odd since January.
I have decided that I would have surgery to have the NET removed, I waiting for a surgery date. I’m a 23 year survivor of breast cancer, so I’ve down this road before, it is nice to have a support group NET patients😊
SBRT, 5 Treatments total. See http://www.redjournal.org “Early-Stage Primary Lung Neuroendocrine Tumors Treated With Stereotactic Body Radiation Therapy: A Multi-Institution Experience.” This report hypothesizes that SBRT could lead to …effective tumor control and long -term outcomes.” The data is small and particularly small for Atypical LNETs.
I too am Atypical lung net. It has spread to liver and several vertebrae in my back.
I have started Luthathera treatments at Moffitt Cancer center in Tampa. I still feel good. My second treatment is about 3 weeks away. I am also taking Sandostatin 30 mg every 4 weeks.
May God bless you on your journey.
I too have a Lung NETs that has metastasized to my lymph nodes. My understanding is that the way my cancer was differentiated was between small cell and large cell L-NETs. One being more aggressive than the other. I will pray you have the lazy version of this disease. And that it responds favorably to treatments.
Blessings to all you hold dear
CEB
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Yes, that was what was recommended. I consulted a surgeon and he also recommended radiation as the 2 lung nets were in different places in my lung.
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1 ReactionWas radiation an option to removal of the NET?
I too had 5 treatments of sbrt for 2 lung nets. I did not have any side effects and tolerated the treatment well. Had a ct scan after 3 months and all looked good. Will have another scan in 4 more months.
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3 ReactionsI have a Lung Net that is well defined, grade one. It is in my middle lobe of my right lung. I have been to a local surgeon and to a NET Specialist at Cedar Sinaí in Los Angeles. Dr Sankar at Ceder agreed with my what local surgeon proposed. I was also given the option to do nothing and watch it. My NET was a incidental finding while I was hospitalized with diverticulitis. I have loss 25 odd since January.
I have decided that I would have surgery to have the NET removed, I waiting for a surgery date. I’m a 23 year survivor of breast cancer, so I’ve down this road before, it is nice to have a support group NET patients😊
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2 ReactionsMy prayer is that you have found a good specialist and treatment goes well.
SBRT, 5 Treatments total. See http://www.redjournal.org “Early-Stage Primary Lung Neuroendocrine Tumors Treated With Stereotactic Body Radiation Therapy: A Multi-Institution Experience.” This report hypothesizes that SBRT could lead to …effective tumor control and long -term outcomes.” The data is small and particularly small for Atypical LNETs.
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1 ReactionBest to you and Mahalo from Maui where I am being treated.
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1 ReactionI'm glad to hear that you've had no side-effects, @gesmone1! That is good news.
Will you continue to post as you have questions or concerns?
Only had one. Next treatment in 3 weeks. I have not experienced any side effects.
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1 ReactionI too have a Lung NETs that has metastasized to my lymph nodes. My understanding is that the way my cancer was differentiated was between small cell and large cell L-NETs. One being more aggressive than the other. I will pray you have the lazy version of this disease. And that it responds favorably to treatments.
Blessings to all you hold dear
CEB
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