Asherman syndrome

Posted by eclary84 @eclary84, Feb 9 2:42pm

Has anyone ever experienced severe pain from scar tissue build up in the uterus/tubes? Apparently that is what they have found. Which is so painful, and nothing helps. I have pain medication but it only makes me comfortableenough not to groan/cry in pain all day. Hot & cold are both uncomfortable. I can't bend over or sit up straight. Sex is out of the question because it is horribly painful with bleeding afterwards. Anything that doesn't involve my feet up gets painful. Sometimes I just watch my lower abdomen twitching (right at belly button). I have a scope & hysterectomy scheduled out for 6 months, but don't know how to handle this severe pain in the meantime. I am used to having angina, but this pain is different, it's like a pulsating open wound. Any ideas on how to get through this?

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I have had Endometriosis which would be close, but nothing exactly like yours. It has to be terrible
I will pray for all of us that are enduring these horrible conditions

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This sounds just awful for you! Have you seen your primary care doctor or gone to the ER about this? I wouldn't wait the 6 months. This sounds very serious. I would suggest that you pray also. Just ask God to help you. I'll say a prayer for you also.
PML

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@pml

This sounds just awful for you! Have you seen your primary care doctor or gone to the ER about this? I wouldn't wait the 6 months. This sounds very serious. I would suggest that you pray also. Just ask God to help you. I'll say a prayer for you also.
PML

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Thank you for prayers! The ER will not do anything unless there is necrosis or it the uterus is bursting. I am going to get a second opinion, maybe someone else can get me in sooner.

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@eclary84

Thank you for prayers! The ER will not do anything unless there is necrosis or it the uterus is bursting. I am going to get a second opinion, maybe someone else can get me in sooner.

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Are you on their surgery wait list? People cancel surgeries from time to time.

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@gravity3

Are you on their surgery wait list? People cancel surgeries from time to time.

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Yes, hopefully that happens! I am on the list for cancelations, but there are quite a few others ahead of me. They take it on a first come first serve basis instead of need.

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