Ashamed: I think about (and plan for) dying. Do you?

Posted by olgamarie @olgamarie, Feb 7, 2021

Hi, did anyone, after there cancer and COPD diagnosis start to think about dying? After almost four years, I still do, all the time. Planning my funeral, how to leave my children, how it will be to be in a coffin. Bizarre, I know.

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Not Bizarre at all. Most of us eventually get around to thinking about what it's all about.
Watch the movie "Alfie".
Harry

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Yes I do think about dying it seems to cross my mind at least once a day. I have my affairs in order. My spouse know all the detail which helps me cope.

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Profile picture for Tom Anderson @ta52

I don't spend time planning my funeral; I spend time planning how my wife and I are going to do a walking marathon together this Fall. This is a game of life and death and I choose life. I will do everything in my power and utilize every resource available to me to make sure cancer loses. There are millions of cancer survivors out there and I have every intention of being one myself.

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@ta52 What a great outlook.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@andermoss, the "cancer funnel" - that paints a clear picture. Good phrase. I agree with everything you said. Are you also living with cancer? What type?

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@colleenyoung
Yes I have been dealing w stage V adenocarcinoma NSCLC w mets to the brain. Tagrisso since Jan 2024 but no longer working. Elected no chemo so dr says I have about 6 months. My cancer funnel changed to death funnel. I have my faith and I am good w whats happening.

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Profile picture for andermoss @andermoss

I think this is normal. Especially if you are a “planner” in life. My counselor called it Cancer Funnel as every thought goes through it. I think it shows you care about the people you are leaving behind, which is good. Get your ducks in a row but remember to enjoy your every day!

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@andermoss, the "cancer funnel" - that paints a clear picture. Good phrase. I agree with everything you said. Are you also living with cancer? What type?

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Profile picture for key54 @key54

I came back today to share that at times out of the blue I get gut wrenching fear and anxiety. Does this happen to you?

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@key54, I think it is normal to be blind-sided by unexpected emotions when dealing with a serious diagnsosis. Are you living with cancer? How do you manage the gut-wrenching fear and anxiety when it comes up?

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Yes, I definitely have spent time on my death and burial rites. Survived 5 different cancers over the past 21 years (lung cancer and lymphoma in opposite chest,............and give youre body most recent 2 years ago) I figured, one is going to get me. I have had spectacular very loving help by my wife. Also, I had always enjoyed exercise, and even when feeling my worst possible......I went to the gym and mopped around.
Nothing wrong with burial plans.......many do it when in perfect health. Just make sure you do many more things to "busy" your mind and body. >Activity is a must.....when in the hospital bed I used light hand weights and when I could......walked the halls. .
Please, please make your time a positive for you and for those around you. Be physically active when possible as it helps your blood move around and it likes that very much!! .........Many blessings!! Bill

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I was dx with breast cancer in my mid 40’s. I started reading obituaries to see how many died from cancer. I still do almost 30 years later.
A friend in my neighborhood has started a folder for her family. She has picked out music, poems, scripture etc to be read. Ahhh, even the pictures she approves of. She’s perfectly healthy. She just jokes that she wants to be in control. I think it’s a great idea.

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Profile picture for jmclemmo @jmclemmo

This may sound weird, but what I've found helps is to schedule time to dwell on these things. As thoughts/topics/worries come up, I jot them down in a notebook. Then, at the time I've set aside for "end of life thinking," I pull out the notebook and address the things that have been worrying me. That way, I'm not ignoring those thoughts, but I'm not letting them dominate each day, either

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@jmclemmo
You have a good plan! It is important to get plans for death out in the open and then, forget about them. My husband died in 2024. Prior to that we had a will drawn up and paid plans with a local funeral home. All the initial planning came in very handy when it was needed. Try and get your plan with a local funeral director instead of a big corporation. The large companies who deal in this business have been known to increase prices often. The smaller ones don't seem to do that. They stay with what they initially had you pay. My husband and I paid only $4000 for cremation for both of us. Also since my husband had served in the military both of us will be interred in the cemetary at no charge. That may be something to look into. We only found out about it though the funeral company.
Death comes to all of us. God stated in the Bible, "I give life and I take it away." Get all your plans in order. Say a prayer and ask God to please make your death quick and painless. Then go and enjoy the rest of your life!
PML

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I think this is normal. Especially if you are a “planner” in life. My counselor called it Cancer Funnel as every thought goes through it. I think it shows you care about the people you are leaving behind, which is good. Get your ducks in a row but remember to enjoy your every day!

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