Connect
Ascites, Liver, Peritoneal Carcinoma, Stage 4B
Diagnosed stage 3 peritoneal carcinoma of ovarian type in March 2024. Did 3 rounds chemo the pipec surgery and 3 more rounds of chemo. My CA 125 went from 555 to 54 when I finished chemo in October 24. Started having pain in lower abdomen in late March 2025 and thought it was appendicitis. Pet scan showed stage 4B Peritoneal Carcinoma metastasized to liver, colon, enlarge lymph nodes front and rear of kidneys and neck lymph nodes. I was tested for Elhare adjunct therapy but my percentage was 40%and you have to be 75% plus and I didn't want to damage my eyesight.
They said since the cancer came back before 6 months I was chemo resistant to first chemo protocol. I am in a palliative state will be starting Doxo and Avastin in June to treat symptoms. I am taking Miralax daily to avoid a blockage. I read the book Beat Cancer Now and have been following supplement protocol listed in the book for a month. I wanted to share that I am managing my liver and ascites pain with red light therapy and it's helping me. I'm also planning to start Ivermectin in a few days, waiting for my port surgery to heal. I am 62 and really don't know how long I have. I am a Christian and I am reading books with scriptures on healing too. I looked into two more things that I may try the new aerosol pipec at UNC and Therabionic p1 at Wake Baptist Hospital in Winston Salem, NC
Like
Helpful
HugInterested in more discussions like this? Go to the Gynecologic Cancers Support Group.
Connect
@ogie, there's a lot of information as well as misinformation circulating about ivermectin and its use as a treatment for cancer. It does not clear or cure cancer.
Ivermectin is used to treat river blindness (onchocerciasis), intestinal infection from threadworms (strongyloidiasis), and other kinds of worm infections. Ivermectin is an anthelmintic. It works by interfering with the nerve and muscle functions of worms, by paralyzing and killing them. (https://www.mayoclinic.org/drugs-supplements/ivermectin-oral-route/description/drg-20064397)
Researchers are studying Ivermectin to see if it may be used as an anti-cancer drug and early studies show promise. Please note that this research is in the early stages (mice studies) and has not yet been tested in human trials. Ivermectin is not a proven standard treatment for cancer.
Ivermectin and other dewormers (anthelmintics) like fenbendazole can cause irreparable liver damage.
- Liver damage from Fenbendazole https://pubmed.ncbi.nlm.nih.gov/38706451/
Important
It is NOT safe to take ivermectin used in veterinary medicine. Please talk to your doctor before taking any over-the-counter medications or supplements that claim to fight or cure cancer.
Here's a clear and well-written article about repurposed drugs being researched for cancer.
- Separating fact from fiction: repurposed drugs in cancer treatment https://www.anticancerfund.org/en/blog/separating-fact-fiction-repurposed-drugs-cancer-treatment
I'm glad that there is a gold standard option of doxorubicin (Doxil) + bevacizumab (Avastin) available to you before having to turn to unproven therapies. Have you considered consulting with an oncologist who works with integrative medicine?
More and more cancer centers and oncology specialists are open to discussing and integrating complementary medicine in programs called Integrative Medicine or Integrative Oncology. Integrative medicine is offered at many cancer centers of excellence, including Mayo Clinic.
Here's a link to more information about Mayo Clinic's Integrative Medicine programs
– Integrative Medicine and Health https://www.mayoclinic.org/departments-centers/integrative-medicine-health/sections/overview/ovc-20464567
@ogie I'd like to welcome you and thank you for coming to our Gynecological Cancers Support Group with Mayo Clinic Connect. While we are not medical providers I hope you will allow us to provide you with emotional support and suggestions from our members.
I see that you are in North Carolina. You referred to the Wake Baptist Hospital. I'm thinking that is the Wake Forest Baptist Comprehensive Cancer Center. Is that correct? Is this where your cancer care is already located? If yes, then the Wake Forest Baptist is a National Cancer Institute-Designated (NCI) Comprehensive Cancer Center. So is Mayo Clinic. This means that you will have cutting-edge cancer treatments available to you including clinical research trials that take place close to home.
NCI-Designated Cancer Centers in North Carolina
-- https://www.cancer.gov/research/infrastructure/cancer-centers/find#Nebraska
Have you already sought out a second opinion? If not, then you are also near the Duke University NCI-Designated Cancer Center where you might wish to get another opinion.
@colleenyoung referred to Integrative Medicine programs. I am cancer survivor of endometrial (endometroid adenocarcinoma) cancer diagnosed in 2019 with a recurrence in 2021. During radiation treatment for my recurrent cancer I asked my oncologist at Mayo Clinic for a referral for psychological support. I received a referral to the Integrative Medicine program at Mayo Clinic and have been seeing an Integrative Medicine Oncologist since 2022. I've been very pleased with my many appointments that include discussions and counseling for nutrition, exercise, pain control, and emotional support. By the way, Integrative Medicine programs do not replace conventional treatments or clinical trials. They work along side conventional oncology in a complementary way.
May I ask about your family? Do you have a spouse or partner? Children and grandchildren? I'm asking about this because I have found that since my own cancer diagnosis these relationships have been very important to me. I have friends and family who traveled to Mayo Clinic to be along side me when I was undergoing radiation therapy. They were "there" for me then and now and I don't have to go through any of this alone.
I'd like to share something I've learned that has to do with hope. I capitalize the work "Hope" because I learned that it means Optimism with a Plan. You can move ahead with acceptance about your future because you have a plan in place. That plan includes your cancer care team and your faith in God's guidance.
Do you have any medical appointments coming up soon?