Aromatase Inhibitors: Did you decide to go on them or not?

Posted by nanato6 @nanato6, Oct 12, 2018

Nanaloves: I’m about to start arimidex and just feel that the contraindications , bone issues etc. are overwhelming. I’m 70 years old, dodged a bullet I feel with zero stage DCIS but the follow up is pretty much no different then if it was more aggressive. I’ve just done 33 treatments of radiation and now they advise arimidex as a preventative. I’m not sure with the beginnings of arthritis and lower back. sensitivity already that I should take it. Anyone not take it and not have a recurrence within the 5 years.

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Profile picture for sequoia @sequoia

If able to walk, if having hip pain, walking is good. I try to walk 2+ miles each day. One thing that helps me with hip pain is to put a rolled towel on the opposite hip with pain just on your glute bun and relax like that for about 2 minutes. I think it takes pressure off the hip with pain. Sometimes when we have pain we tighten our muscles cuz we have pain. This exercise allows some relaxation. I’m not a therapist or anything. Just what works for me. A suggestion. It may help. I know bone pain is ‘bone’ but different things help. I try them all. 🙏🏼

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Love this 🙄🙄

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If able to walk, if having hip pain, walking is good. I try to walk 2+ miles each day. One thing that helps me with hip pain is to put a rolled towel on the opposite hip with pain just on your glute bun and relax like that for about 2 minutes. I think it takes pressure off the hip with pain. Sometimes when we have pain we tighten our muscles cuz we have pain. This exercise allows some relaxation. I’m not a therapist or anything. Just what works for me. A suggestion. It may help. I know bone pain is ‘bone’ but different things help. I try them all. 🙏🏼

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Profile picture for bluebird70 @bluebird70

Good morning All! I needed you this morning. I have struggled through the 3 AI’d and now Tamoxifen. I have been on Tamoxifen for a full 3 months and last week had such bad rib pain I discussed with onco and I am off for 2 weeks. 1 week later it is better but not totally gone. I am 71 had stage 1 BC grade 3, right mastectomy 18 months ago and no lymph nodes, onco type score of 51, so have a high percentage of recurrence so had chemo. But I am so close to stopping these pills altogether. I struggle every day and go down rabbit holes I don’t need to go down but it is hard. Is the rib pain bone cancer??? Those types of holes. I read your comments and feel such a kindred spirit. Thank you all❤️❤️❤️

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Please remember you are there for us too! Thank you. If your rib, bone pain is persistent when off the AI, I would advocate for a bone scan but if it gets better……………Because of your recurrence risk, I would hate to think you gave up. But I would understand why. Have you tried walking a bit, is that an option for you?

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Profile picture for lucillem72 @lucillem72

I had HR2 cAncer. This was the 2nd time I had cancer. My issue with my AI, Arimdex, is that my joints hurt and I fell like I am back menopause. I also have Sjogrens which gives you joint pain. Rheumatologist feels the joint pain is worse due to the Arimdex. I think about this and at this point I just don't want cancer again. So I take it every other day.

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@lucillem72. I hope your joint pain gets better. I also take Anastrozole snd have hip/joint pain. I am starting to take pill every other day. The PT exercises do help relieve some pain in hip so I’m thankful to my wonderful therapist. I’ve been on Anastrozole starting my 3rd year. One size fits all of these AIs is not right. Blessings to you.

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Profile picture for whr @whr

I have posted before about this, my side effects from Anastrozole were not severe until I had been on it about 18 months. The joint pain and stiffness was so bad I couldn't walk, I now have osteoporosis, and had so much trouble sleeping that I was only getting three or four hours of sleep a night. I stopped taking it in March and it has taken this long to feel better, I still have days where I am very fatigued but am sleeping so much better. This decision is not for everyone, it will be two years since my surgery in December, I go in every three months for an exam and blood work, for me quality of life and being able to move were the deciding factor. I have no interest in Tamoxifen and feel switching to a different type of drug won't help. It's a journey, I am 76 years old.

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I am 73 and I told my rheumatologist that same thing. He is treating my Sjogrens autoimmune deficiency. I am waiting to see how the plaquenil works with the joint issues.

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Good morning All! I needed you this morning. I have struggled through the 3 AI’d and now Tamoxifen. I have been on Tamoxifen for a full 3 months and last week had such bad rib pain I discussed with onco and I am off for 2 weeks. 1 week later it is better but not totally gone. I am 71 had stage 1 BC grade 3, right mastectomy 18 months ago and no lymph nodes, onco type score of 51, so have a high percentage of recurrence so had chemo. But I am so close to stopping these pills altogether. I struggle every day and go down rabbit holes I don’t need to go down but it is hard. Is the rib pain bone cancer??? Those types of holes. I read your comments and feel such a kindred spirit. Thank you all❤️❤️❤️

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I did not have many problems on Femara. People who didn't have many problems tend not to post, so just adding that to the mix. I am sensitive to so many medications, and foods, but Femara was okay. I took brand name. I found that if I walked more than 25 minutes, any pain got better and by 45 minutes I was good. Hot flashes were minor. (I was surprised that use of an AI qualified a person for a booster as immunocompromised since these drugs don't compromise the immune system.)

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Profile picture for sandyrob @sandyrob

Thank you, I leave on Monday to deal with hurricane Ida damage at our house on the Gulf Coast. So have one more thing to add. Oh, and my husband retired but decided to go back to work. 1st world problems.

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Be safe, I hope there isn’t too much damage on your house.

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Profile picture for ellerbracke @ellerbracke

@sandyrob: Are your sure you did not try to imitate my situation? Same, husband early prostate cancer, me early breast cancer, and COVIDIOTS all around. Mostly, being informed on Mayo websites helps, but being surrounded by science challenged local government (known also as McDisaster/SC), equilibrium is hard to come by with also cancer treatment issues.
We did, however, make it to early retirement age, so our ditto situation was a little later (my breast cancer this spring, prostate 2 years ago). Still similar, and by no means any easier. Best of luck to you and your husband!

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Thank you, I leave on Monday to deal with hurricane Ida damage at our house on the Gulf Coast. So have one more thing to add. Oh, and my husband retired but decided to go back to work. 1st world problems.

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Wow, so my husband was diagnosed a couple months ago with prostrate cancer, we are still working on what all of that means for us. He already had multiple myeloma. You all sound so resilient, that is serious girl power. I am still shooting for retirement age. Although I am MBC now, I still plan on retiring at 65 in 9 years. I was diagnosed originally 17 years ago.

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