Aromatase Inhibitors: Did you decide to go on them or not?

Posted by nanato6 @nanato6, Oct 12, 2018

Nanaloves: I’m about to start arimidex and just feel that the contraindications , bone issues etc. are overwhelming. I’m 70 years old, dodged a bullet I feel with zero stage DCIS but the follow up is pretty much no different then if it was more aggressive. I’ve just done 33 treatments of radiation and now they advise arimidex as a preventative. I’m not sure with the beginnings of arthritis and lower back. sensitivity already that I should take it. Anyone not take it and not have a recurrence within the 5 years.

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Profile picture for Chris, Volunteer Mentor @auntieoakley

Tamoxifen is a hormonal therapy. It is the oldest and most-prescribed selective estrogen receptor modulator (SERM). It sounds as if you have done your decision making already. It truly is an individual decision, everyone here makes the best decision they can and plans for the best. I hope your decision works exactly as you plan it. 😁

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Thanks 15 years beaten

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Profile picture for rbaltzley @rbaltzley

I have and he suggested tamoxifen which I know is not as beneficial as an ai. Im 52 and choose to go through menopause naturally, I do believe then, my estrogen levels along with diet will be helpful

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Tamoxifen is a hormonal therapy. It is the oldest and most-prescribed selective estrogen receptor modulator (SERM). It sounds as if you have done your decision making already. It truly is an individual decision, everyone here makes the best decision they can and plans for the best. I hope your decision works exactly as you plan it. 😁

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Profile picture for Chris, Volunteer Mentor @auntieoakley

It is quite individual, there is research studies on specific populations.
This would be driven by an onco dx score, and cancer type, grade, age, etc. A cancer that is fed by estrogen will thrive in an estrogen rich environment. Endocrine treatment is definitely an individual decision. I hope you are willing to have a conversation with your doctor about this before you decide.

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I have and he suggested tamoxifen which I know is not as beneficial as an ai. Im 52 and choose to go through menopause naturally, I do believe then, my estrogen levels along with diet will be helpful

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Profile picture for rbaltzley @rbaltzley

I find it odd that theirs no research for those stage 1 or less who opted not to take these meds. I just had mastectomy as well, stage 1 no lymph involvement and stopped with that. So i ask, "Where are the survival rates for those who chose this path?"

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It is quite individual, there is research studies on specific populations.
This would be driven by an onco dx score, and cancer type, grade, age, etc. A cancer that is fed by estrogen will thrive in an estrogen rich environment. Endocrine treatment is definitely an individual decision. I hope you are willing to have a conversation with your doctor about this before you decide.

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Profile picture for nanato6 @nanato6

Thank you for your advice and kind words. It’s great to connect with people who are traveling the same path. There just seems to be so little research for early stage non- invasive cancer, but you are right best to try it.

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I find it odd that theirs no research for those stage 1 or less who opted not to take these meds. I just had mastectomy as well, stage 1 no lymph involvement and stopped with that. So i ask, "Where are the survival rates for those who chose this path?"

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I dont trust these medications or the Mammograms.

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Thank you so much. I needed that❤️❤️❤️

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Profile picture for bluebird70 @bluebird70

Good morning All! I needed you this morning. I have struggled through the 3 AI’d and now Tamoxifen. I have been on Tamoxifen for a full 3 months and last week had such bad rib pain I discussed with onco and I am off for 2 weeks. 1 week later it is better but not totally gone. I am 71 had stage 1 BC grade 3, right mastectomy 18 months ago and no lymph nodes, onco type score of 51, so have a high percentage of recurrence so had chemo. But I am so close to stopping these pills altogether. I struggle every day and go down rabbit holes I don’t need to go down but it is hard. Is the rib pain bone cancer??? Those types of holes. I read your comments and feel such a kindred spirit. Thank you all❤️❤️❤️

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I’m so very sorry that you are in such pain. It is impossible not to worry that the pain you feel is cancer. I have been on 2 of the AI in the past 2 years. My pain comes and goes. I take ibuprofen during the daytime if it’s too much and to sleep I take melatonin and two Celebrex. Right now it is working🤗. When I was feeling overly concerned as soon as I got out of bed I would place my hand on my heart and say some positive affirmations to myself. After a week or two I truly started feeling happier. Good luck to you and everyone here!

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Profile picture for bluebird70 @bluebird70

Thank you all! I actually went to a chiropractor today and we discussed a plan. Had my first manipulation and am booked for Monday. They have massage, phsiotherapy and acupuncture so we will decide what will benefit me. I have a GP appt for Tuesday and want to discuss the rib pain in more detail. By the time I speak to the onco on Friday (2 weeks from stopping the Tamoxifen) he will know that I am taking this seriously. I don’t want to stop the Tamoxifen altogether but I need a plan to manage it. So we will see. One day at a time. Yes and I need to start walking again😁😁

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Yes, I agree that walking is good, and generally will help with the hip pain. I’ve been walking 2 miles/day, 5 to 6 days/week, for over 20 years. However, on some days it takes a lot of toughing it out, because sometimes it takes more than 1/2 mile for the hip pain to get even slightly less. So I’m still walking, but at times panting just to deal with the stabbing pain. But - on the bright side - about 1 or 2 days per week I’m pretty much ok. OTC pain relievers have never done much for me, and with a time line of 5 years of AI I don’t consider them a viable long term solution.

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Thank you all! I actually went to a chiropractor today and we discussed a plan. Had my first manipulation and am booked for Monday. They have massage, phsiotherapy and acupuncture so we will decide what will benefit me. I have a GP appt for Tuesday and want to discuss the rib pain in more detail. By the time I speak to the onco on Friday (2 weeks from stopping the Tamoxifen) he will know that I am taking this seriously. I don’t want to stop the Tamoxifen altogether but I need a plan to manage it. So we will see. One day at a time. Yes and I need to start walking again😁😁

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