Aromatase Inhibitors: Did you decide to go on them or not?

Posted by nanato6 @nanato6, Oct 12, 2018

Nanaloves: I’m about to start arimidex and just feel that the contraindications , bone issues etc. are overwhelming. I’m 70 years old, dodged a bullet I feel with zero stage DCIS but the follow up is pretty much no different then if it was more aggressive. I’ve just done 33 treatments of radiation and now they advise arimidex as a preventative. I’m not sure with the beginnings of arthritis and lower back. sensitivity already that I should take it. Anyone not take it and not have a recurrence within the 5 years.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Profile picture for katehanni @katehanni

PS: In my research I had to look at body builder forums on Reddit and other forums to acquire the information on different natural AI's. So odd, but true that Body Builders want to lower their estrogen to increase testosterone so they are clamorous of any news of accessible AI's...or are trying to find the prescription AI's...which is probably a black market thing. But that's where I found the most available listings of different natural AI's to then research and see if they truly were AI's and if they had been trialed.

Obviously, something growing naturally, is not going to get big money behind a trial as it's already available to all if they know what they are looking for!

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Exactly !!!!!

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Profile picture for katehanni @katehanni

And there are a long list of other natural AI's that are included in my treatment plan i.e. Grape Seed Extract, Chrysin, DIM, white button mushrooms, Quercitin, Stinging Nettle Tea etc.

Are you taking the DIM and turkey tail on top of a prescribed AI?

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I was but now I’m off tamoxifen until January when she wants to try another horrible drug But I’m not stopping the natural ones and going to look into the other ones you’re taking !

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Profile picture for katehanni @katehanni

Well I just came up with a thorough list, with citations and documents which I uploaded here:

Yes and you will see two key things: A whole host of supplements that are natural AI's and an entirely new diet meant to starve cancer by creating an environment in the body where cancer cannot survive. An alkaline Diet as opposed to an acidic diet, primary whole raw vegetables and alkaline reverse osmosis water. My hope is that by stacking up all of the natural AI's together, as my naturopathic MD has done, that will give a better aromatase inhibition than taking nothing since I cannot tolerate the AI's. The list will have a few citations (sorry I'm slammed at work) and will contain all the natural AI's plus natural immune boosters and dietary changes.
SuperSmart Natural Anti Aromatase Support: The AI's in that supplement which is prescribed in France, and effective according to the French cancer mortality tables are: See the attached photo of the label for this product. It's in French so I'll break down what each thing is:
- Chrysin: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7063143/ , DIM https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5059820/ ,
- GrapeFruit Extract: https://www.nature.com/articles/s41598-021-86599-z Zinc,
- Vitamin D (which in low levels causes increased breast cancer risk) https://themenshealthclinic.co.uk/using-natural-products-to-control-oestrogen/ there are citations within this UK article,
- "liberal Green Tea and Stinging Nettle Tea" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3074486/,
- Flax Seed (cited in above link) and many more see the label attached. Then whole raw flax seeds ground up (aromatase inhibition) for the best quality.
- Melatonin for my type of breast cancer: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2778514/#:~:text=Melatonin%20reduces%20the%20development%20of,inhibits%20aromatase%20activity%20and%20expression.
- Turkey Tail Mushroom, who's active ingredient (PSK) that is prescribed to every cancer patient in Japan and hey have 4% lower mortality from cancer than the US. The clinical trial was small but here it is: https://bastyr.edu/news/general-news/2012/11/fda-approves-bastyr-turkey-tail-trial-cancer-patients
- White button Mushrooms as AI's:https://pubmed.ncbi.nlm.nih.gov/16740737/ I know there is a clinical trial but this article is just affirming what the prior trials showed. Grape Seed Extract: https://pubmed.ncbi.nlm.nih.gov/16740737/

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PS: In my research I had to look at body builder forums on Reddit and other forums to acquire the information on different natural AI's. So odd, but true that Body Builders want to lower their estrogen to increase testosterone so they are clamorous of any news of accessible AI's...or are trying to find the prescription AI's...which is probably a black market thing. But that's where I found the most available listings of different natural AI's to then research and see if they truly were AI's and if they had been trialed.

Obviously, something growing naturally, is not going to get big money behind a trial as it's already available to all if they know what they are looking for!

REPLY
Profile picture for brinacarmen @brinacarmen

Oh ok I see list here ! I also take DIM & turkey tail

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And there are a long list of other natural AI's that are included in my treatment plan i.e. Grape Seed Extract, Chrysin, DIM, white button mushrooms, Quercitin, Stinging Nettle Tea etc.

Are you taking the DIM and turkey tail on top of a prescribed AI?

REPLY
Profile picture for katehanni @katehanni

Well I just came up with a thorough list, with citations and documents which I uploaded here:

Yes and you will see two key things: A whole host of supplements that are natural AI's and an entirely new diet meant to starve cancer by creating an environment in the body where cancer cannot survive. An alkaline Diet as opposed to an acidic diet, primary whole raw vegetables and alkaline reverse osmosis water. My hope is that by stacking up all of the natural AI's together, as my naturopathic MD has done, that will give a better aromatase inhibition than taking nothing since I cannot tolerate the AI's. The list will have a few citations (sorry I'm slammed at work) and will contain all the natural AI's plus natural immune boosters and dietary changes.
SuperSmart Natural Anti Aromatase Support: The AI's in that supplement which is prescribed in France, and effective according to the French cancer mortality tables are: See the attached photo of the label for this product. It's in French so I'll break down what each thing is:
- Chrysin: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7063143/ , DIM https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5059820/ ,
- GrapeFruit Extract: https://www.nature.com/articles/s41598-021-86599-z Zinc,
- Vitamin D (which in low levels causes increased breast cancer risk) https://themenshealthclinic.co.uk/using-natural-products-to-control-oestrogen/ there are citations within this UK article,
- "liberal Green Tea and Stinging Nettle Tea" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3074486/,
- Flax Seed (cited in above link) and many more see the label attached. Then whole raw flax seeds ground up (aromatase inhibition) for the best quality.
- Melatonin for my type of breast cancer: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2778514/#:~:text=Melatonin%20reduces%20the%20development%20of,inhibits%20aromatase%20activity%20and%20expression.
- Turkey Tail Mushroom, who's active ingredient (PSK) that is prescribed to every cancer patient in Japan and hey have 4% lower mortality from cancer than the US. The clinical trial was small but here it is: https://bastyr.edu/news/general-news/2012/11/fda-approves-bastyr-turkey-tail-trial-cancer-patients
- White button Mushrooms as AI's:https://pubmed.ncbi.nlm.nih.gov/16740737/ I know there is a clinical trial but this article is just affirming what the prior trials showed. Grape Seed Extract: https://pubmed.ncbi.nlm.nih.gov/16740737/

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Hi Kate,
Thank you for posting citations as members were querying about. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. I have added your citations, URLs and explanations to your post above.

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Profile picture for katehanni @katehanni

Well I just came up with a thorough list, with citations and documents which I uploaded here:

Yes and you will see two key things: A whole host of supplements that are natural AI's and an entirely new diet meant to starve cancer by creating an environment in the body where cancer cannot survive. An alkaline Diet as opposed to an acidic diet, primary whole raw vegetables and alkaline reverse osmosis water. My hope is that by stacking up all of the natural AI's together, as my naturopathic MD has done, that will give a better aromatase inhibition than taking nothing since I cannot tolerate the AI's. The list will have a few citations (sorry I'm slammed at work) and will contain all the natural AI's plus natural immune boosters and dietary changes.
SuperSmart Natural Anti Aromatase Support: The AI's in that supplement which is prescribed in France, and effective according to the French cancer mortality tables are: See the attached photo of the label for this product. It's in French so I'll break down what each thing is:
- Chrysin: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7063143/ , DIM https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5059820/ ,
- GrapeFruit Extract: https://www.nature.com/articles/s41598-021-86599-z Zinc,
- Vitamin D (which in low levels causes increased breast cancer risk) https://themenshealthclinic.co.uk/using-natural-products-to-control-oestrogen/ there are citations within this UK article,
- "liberal Green Tea and Stinging Nettle Tea" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3074486/,
- Flax Seed (cited in above link) and many more see the label attached. Then whole raw flax seeds ground up (aromatase inhibition) for the best quality.
- Melatonin for my type of breast cancer: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2778514/#:~:text=Melatonin%20reduces%20the%20development%20of,inhibits%20aromatase%20activity%20and%20expression.
- Turkey Tail Mushroom, who's active ingredient (PSK) that is prescribed to every cancer patient in Japan and hey have 4% lower mortality from cancer than the US. The clinical trial was small but here it is: https://bastyr.edu/news/general-news/2012/11/fda-approves-bastyr-turkey-tail-trial-cancer-patients
- White button Mushrooms as AI's:https://pubmed.ncbi.nlm.nih.gov/16740737/ I know there is a clinical trial but this article is just affirming what the prior trials showed. Grape Seed Extract: https://pubmed.ncbi.nlm.nih.gov/16740737/

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Thank you !! Praying it works

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Profile picture for brinacarmen @brinacarmen

If you don’t mind I would love to know what they are as I suffered immensely on tamoxifen

Jump to this post

Well I just came up with a thorough list, with citations and documents which I uploaded here:

Yes and you will see two key things: A whole host of supplements that are natural AI's and an entirely new diet meant to starve cancer by creating an environment in the body where cancer cannot survive. An alkaline Diet as opposed to an acidic diet, primary whole raw vegetables and alkaline reverse osmosis water. My hope is that by stacking up all of the natural AI's together, as my naturopathic MD has done, that will give a better aromatase inhibition than taking nothing since I cannot tolerate the AI's. The list will have a few citations (sorry I'm slammed at work) and will contain all the natural AI's plus natural immune boosters and dietary changes.
SuperSmart Natural Anti Aromatase Support: The AI's in that supplement which is prescribed in France, and effective according to the French cancer mortality tables are: See the attached photo of the label for this product. It's in French so I'll break down what each thing is:
- Chrysin: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7063143/ , DIM https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5059820/ ,
- GrapeFruit Extract: https://www.nature.com/articles/s41598-021-86599-z Zinc,
- Vitamin D (which in low levels causes increased breast cancer risk) https://themenshealthclinic.co.uk/using-natural-products-to-control-oestrogen/ there are citations within this UK article,
- "liberal Green Tea and Stinging Nettle Tea" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3074486/,
- Flax Seed (cited in above link) and many more see the label attached. Then whole raw flax seeds ground up (aromatase inhibition) for the best quality.
- Melatonin for my type of breast cancer: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2778514/#:~:text=Melatonin%20reduces%20the%20development%20of,inhibits%20aromatase%20activity%20and%20expression.
- Turkey Tail Mushroom, who's active ingredient (PSK) that is prescribed to every cancer patient in Japan and hey have 4% lower mortality from cancer than the US. The clinical trial was small but here it is: https://bastyr.edu/news/general-news/2012/11/fda-approves-bastyr-turkey-tail-trial-cancer-patients
- White button Mushrooms as AI's:https://pubmed.ncbi.nlm.nih.gov/16740737/ I know there is a clinical trial but this article is just affirming what the prior trials showed. Grape Seed Extract: https://pubmed.ncbi.nlm.nih.gov/16740737/

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Profile picture for katehanni @katehanni

Also, Turkey Tail mushroom (PSK is the active agent which is prescribed in Japan and the Japanese have a 4% lower mortality rate from cancer than we do in the US...Chrysin, DIM, Zinc, Grape Seed Extract etc. are all natural AI's.

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Oh ok I see list here ! I also take DIM & turkey tail

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Profile picture for brinacarmen @brinacarmen

Can you list them please?

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If you don’t mind I would love to know what they are as I suffered immensely on tamoxifen

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Profile picture for katehanni @katehanni

I am trying to reach Mayo Clinic in Phoenix to get a second opinion as I'm just flabbergasted that the AI's, for those with bad side effects, didn't continue finding new molecules that could have less side effects! The bone and joint pain alone is frighteningly bad (for me)...

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I’m
With you !!! I couldn’t believe that would be my life for 5 years

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