Aromatase Inhibitors: Did you decide to go on them or not?

@huey I also had high risk of return but no benefit from continued meds. Did your Breast Cancer Index report indicate benefit? It is a yes or no answer on that test.

It's tough to rely on any one test but my bones demanded at least a break after 5 years.

I had an oncotype score of 10. Took the breast index number after 5 yrs and have a high risk for return. Will take anastrozole for 5 more years

I cured my trigger finger myself with the use of Oval 8 device. My oncologist said ‘It’s not the Anastrozole’ when I told him of my trigger thumb. This may not work for everyone but it allowed me to rest my thumb and keep the mobility of my hand.

I fully understood the possibility of side effects with aromatase inhibitors, but was willing to endure quite a lot in order to cut my cancer risk. I think discussion of side effects needs to include the cancer risk that prompts us to try the meds in the first place.

I was fairly lucky in day to day side effects (hot flashes at first, joint pains later which were relieved by walking at least 45 minutes, dry thin skin) and had bone loss that aggravated my already advanced osteoporosis. But I have not had a recurrence of my cancer and it's been 7 years knock on wood.

It 'sounds' amazing. Maybe it's a kind of micro-micro surgery, a very junior version of the one that cuts the tendon to make a wider opening. Another golfer friend had that after putting it off for years. It was a success too. His only regret being that he put it off.

Trigger Finger and heightened risk for Carpal Tunnel Syndrome are both a submenu, in a sense, of the arthralgia side effects of aromatase inhibitors. One study noted their frequency and that they might be being overlooked by patients as arthritis or general 'aging.'
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Increased Risk of Carpal Tunnel Syndrome and Trigger Finger in Women Using Aromatase Inhibitor Medications

CONCLUSION: Our study demonstrates that females who used AI medication were at increased risk of developing CTS or TF within 1 year of use. 
https://meeting.handsurgery.org/abstracts/2020/HS25.cgi
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Incidence and Treatment Efficacy of Trigger Finger in the Breast Cancer Population on Aromatase Inhibitors

Conclusions: This study demonstrates for the first time the incidence, treatment outcomes, and surgical risk factors of trigger finger in patients on AI therapy for breast cancer
https://pubmed.ncbi.nlm.nih.gov/34078170/

difficult to say re hair. I thought I was losing hair from old age - then I think I read about it on this Mayo --
3 trigger fingers. (1 had surgery). Lots of Hand PT. My Doc really pushed me to take anastrozole - he did not Warn me about trigger fingers and HAIR LOSS.!
I'm still doing PT for 1 finger - it hurts. Could not do touch type.
Good that I am retired.

This is getting off topic but I hope that it helps the AI people who suffer from trigger finger as a side effect of the medication. But I will respond to help the golfer friend and anyone else who wants to understand better.

The doctor inserted a needle into the palm right below the finger. (This part is not a medical explanation—just an “in the ballpark” of my understanding.) Then he moved it up and down. Apparently, there is something around or near the sheath that the tendon passes through that makes it get hung up. So I don’t know if he was scraping inside the sheath or around. He did that until he felt a release. He did all the fingers that were making a clicking noise and had the potential to lock up. (He has a limit to how many he will do at the same time.) If this method hadn’t worked on the one that was completely frozen closed, then he would have scheduled surgery. To unlock that finger because it had been stuck many days over a holiday weekend (and urgent care would not touch it—normally my husband would be able to work it back open on his own, but not this time) he gave it a cortisone shot, numbed it, and then frighteningly pulled it open. This was done days prior to the doing the scraping. It seems to be a condition for my husband but so far, he hasn’t had any new triggers in 4 years. He left with a little soreness but no real pain. It was amazing.

@lisajoann I had the same pathology but low Oncotype score, so no chemo. What was your Oncotype score?

I wanted to do 7-10 years of letrazole but I did the Breast Cancer Index test which said no benefit after 5 years. I am now 7 2/3 years out.

Almost immediately. After washing my hair, if I ran my fingers through, enough would release that I had to use the trash can, not the shower drain. But I have thick hair. It really surprised me though. On the other hand, it stopped almost immediately once I finished treatment. In and out of fatigue, trouble sleeping, aching joints. BUT, I have friends who couldn’t even put their shoes on so they were allowed to switch to tamoxifen.
I have a friend with prostate cancer on hormone blockers and he recently talked to me about not having hair on his arms and legs anymore. I don’t think he notices hair loss because it’s cut short. Mine is shoulder length. Just yesterday, I started to feel little hairs on my arms, so it must be coming back.
I really tried hard because I was so grateful not to need chemo and felt I had to give it my best. And this all happened a year before my son’s wedding. I think it felt harder each year mostly because I was getting older too. My doctors were also great cheerleaders.