Aromatase Inhibitors: Did you decide to go on them or not?

I am doing good. Still have discomfort and nerve pain but hoping that will ease in time. I didn’t need radiation. Lymph nodes were clear and we caught it early. Total blessing!
Thank you and hugs to you!

I had an 95% estrogen positive /5% progesterone positive breast cancer. I chose a bilateral mastectomy and had that done 9/13/22. My Oncotype DX score came back at 10. No chemo
Oncologist wanted me to start AI. The Oncotype report stated even on AI there was only a 3% chance of reoccurrence. So I chose not to do AI as I have a 6% chance of reoccurrence.
I will take my chances, exercise, limit alcohol, eat well and avoid the damage AI cause.

Sounds like you are doing well. Did you opt for radiation? Sending a hug! Ellij

I had an 95% estrogen positive /5% progesterone positive breast cancer. I chose a bilateral mastectomy and had that done 9/13/22. My Oncotype DX score came back at 10. No chemo
Oncologist wanted me to start AI. The Oncotype report stated even on AI there was only a 3% chance of reoccurrence. So I chose not to do AI as I have a 6% chance of reoccurrence.
I will take my chances, exercise, limit alcohol, eat well and avoid the damage AI cause.

Yes, my score was a 28. I have a 6% chance of reoccurrence or IBC with radiation & an 8% chance with just a lumpectomy. Nowhere on the report did it say 39 was the score as my doctor told me on the phone before I received the actual report. I’ve decided I’m going to “roll the dice” for a 2% difference & pass on radiation.

I have atrial fibrillation with tachycardia (episodes) and had pretty severe osteoporosis when I started an aromatase inhibitor. My Oncotype was low at 8, but grade 3 with lymphovascular invasion. Nodes were clear, high ER/PR+.
I took Femara (letrozole) for 5 years and kind of miss it because it made me feel safe.

Logically any natural supplement that does the same thing (eliminate estrogen) will have the same side effects, right? If that is what people want, then the regulated and tested medications might be preferable.

@rene1636 there are two numbers on the Oncotype report- score and risk of recurrence %. Do you have a copy of your report?

I received my Oncotype DX DCIS score. My Radiology Oncologist just called me & said my score was a 39. I asked for a copy of the results & when I received them it said my score was a 28??? My question is, was the doctor wrong in telling me it was a 39 OR do they add in something she didn’t mention, not on the report that would change the actual result giving you a different number? This isn’t the first conflict of info I’ve received from her so my trust is low but giving the benefit of doubt I thought I’d check to see if I’m missing something that would change the numbers. Does anyone have any helpful information?
I’ve requested an appointment with a different facility, for nothing less than a 2nd opinion & at most to change doctors entirely. I’m really not comfortable with conflicting information on something so serious that impacts decisions on treatments.