Aromatase Inhibitors: Did you decide to go on them or not?

Posted by nanato6 @nanato6, Oct 12, 2018

Nanaloves: I’m about to start arimidex and just feel that the contraindications , bone issues etc. are overwhelming. I’m 70 years old, dodged a bullet I feel with zero stage DCIS but the follow up is pretty much no different then if it was more aggressive. I’ve just done 33 treatments of radiation and now they advise arimidex as a preventative. I’m not sure with the beginnings of arthritis and lower back. sensitivity already that I should take it. Anyone not take it and not have a recurrence within the 5 years.

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Profile picture for trixie1313 @trixie1313

@lisman1408
Thank you! My hubby takes me out daily for walks, especially important since the stroke. Living in California is getting quite precarious with rotating blackouts and all the fires in our area (northern CA). Hoping the firefighters get a handle on these and life resumes calmness!

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I'm in Northern CA, too. Really can't open the windows to cool the house in the morning because of the smoke. Stay safe Trixie.

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Stay safe! Those fires look horrendous!

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Profile picture for lisman1408 @lisman1408

Oh no, Trixie! Sending hugs, and praying for a good outcome for new issue in your lung! Take good care of yourself!

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@lisman1408
Thank you! My hubby takes me out daily for walks, especially important since the stroke. Living in California is getting quite precarious with rotating blackouts and all the fires in our area (northern CA). Hoping the firefighters get a handle on these and life resumes calmness!

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Profile picture for cathyhand @cathyhand

On Exemestane. 8 years out this November. So far no recurrence. Stage 2 b, 2 positive nodes.
I am having a hip replacement in two weeks and just recently diagnosed with osteopetrosis.

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@cathyhand
Oh no, I'm sorry you're having to go through the surgery - all the best to you for a successful and fast recovery! Have the doctors talked with you about Zometa infusion for your osteoporosis? Aromatase inhibitors decrease estrogen in the body which can cause this. I've had 3 infusions so far, 6 months apart, to help.

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Profile picture for jeannie53 @jeannie53

@trixie1313 Were you or the ladies in your support group on any aromatase inhibitors and for how long before they were diagnosed with MBC.

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On Exemestane. 8 years out this November. So far no recurrence. Stage 2 b, 2 positive nodes.
I am having a hip replacement in two weeks and just recently diagnosed with osteopetrosis.

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Profile picture for trixie1313 @trixie1313

@jeannie53
They were both metastatic Stage 4 when diagnosed. I've been on AIs for over 1 year. I started with anastrozole, then letrozole, and the majority of time with exemestane. I'm hopeful that the new lesion in my lung is not cancer, but atelectasis from a bad flu I had in March. Right now the lesion is too small for biopsy.

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Oh no, Trixie! Sending hugs, and praying for a good outcome for new issue in your lung! Take good care of yourself!

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Profile picture for trixie1313 @trixie1313

@jeannie53
They were both metastatic Stage 4 when diagnosed. I've been on AIs for over 1 year. I started with anastrozole, then letrozole, and the majority of time with exemestane. I'm hopeful that the new lesion in my lung is not cancer, but atelectasis from a bad flu I had in March. Right now the lesion is too small for biopsy.

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@trixie1313 I hope the new lesion in your lung is not cancer! Just had an appointment with my Radiation Oncologist today~he talked about the importance of a positive attitude while dealing with any cancer. He shared that there are studies regarding positive thinking & how this can help a cancer patient to live longer & better! I agree 100%! Keep thinking positive! 🙂

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Profile picture for jeannie53 @jeannie53

@trixie1313 Were you or the ladies in your support group on any aromatase inhibitors and for how long before they were diagnosed with MBC.

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@jeannie53
They were both metastatic Stage 4 when diagnosed. I've been on AIs for over 1 year. I started with anastrozole, then letrozole, and the majority of time with exemestane. I'm hopeful that the new lesion in my lung is not cancer, but atelectasis from a bad flu I had in March. Right now the lesion is too small for biopsy.

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Profile picture for trixie1313 @trixie1313

@djwc
I have a couple of people in my support group that now have metastatic breast cancer and I am awaiting my next PET scan to see if the lesion now in my left lung has increased. Don't give up hope. They are doing well on Ibrance, in fact, one has been on it 4 years with no advancement. I am sticking with my exemestane so we'll see what happens in October (PET scan). Praying for the best outcome for you.

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@trixie1313 Were you or the ladies in your support group on any aromatase inhibitors and for how long before they were diagnosed with MBC.

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I am glad my plastic surgeon opted for skin sparing instead of nipple sparing surgery. He said radiation does bad things and after the surgery he said that the right breast had a lot of radiation damage...that was the one I had 35 radiation treatments in. I had no trouble with necrosis. I am also using that same ointment, I read up on it and it seems to be for burns...hmmm.

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