Arachnoiditis: Looking to talk with others
I just got diagnosed with arachnoiditis. The radiologist found it on my MRI. I have had 7 steroid injections and I fear that they have caused this chronic situation. My back is worse than it ever was.
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have an appointment with a new pain specialist, for evaluation for the pain pump. Since i have hardware from C3 thru my sacrum, & a DRG stimulator as well. I need pain control for my arms, thoracic spine, down thru sacrum & severe neuropathic pain down both legs. Hope i don't get a strange look, from new doc, when i tell him the scope of my pain! May need oral drugs, as well. Since i have severe shoulder pain (need a new shoulder for 13 years) But i am not willing to have any more surgeries
Do U have a twin?? I haven't been able to even find a date. When a guy see's my walker, it's an automatic no. U must be that one in a million who really cares & be genuine & deeply understanding. Tried dating for 2 years with no results. But then, i can hardly get out of bed, most days,,, The lack of just some one to talk to, or maybe get a lunch, dinner. Even though live in a retirement community, i feel so alone & lonely. My participation in activities, has gone from a lot, to nothing. I keep signing up for stuff, but can't get up, due to severe pain, numbness etc.
large support groups for arachnoiditis, on Facebook. I've been locked out of my account for suspicious activity (sure it was me) But have not been able to upload a new ID, with numerous attempts. But go to Facebook. Sure u will get more support...hundreds with this condition