Connect
Anyone with colon cancer metastasis to ureter and/or bladder?
I have colon cancer that metastasized to the outside of my left ureter, and later through the wall to the inside, and was stable for a long time. Then the tumor began to grow, so I had my left ureter and kidney removed in January, 2021 to try to keep the cancer from reaching my bladder. Four months after the surgery, I had a metastatic tumor inside my bladder. When I've tried to research this, I've found little information, which makes me think this is very rare.
Like
Helpful
HugInterested in more discussions like this? Go to the Colorectal Cancer Support Group.
Connect
Suzyq, I so glad that you're feeling better off chemo. As you consider bladder removal, you might appreciate hearing these experiences from @sue225 and @sepdvm
- My husband's radical cystectomy experience https://connect.mayoclinic.org/discussion/my-husbands-radical-cystectomy-experience/
- My husband's experience with neobladder surgery for bladder cancer https://connect.mayoclinic.org/discussion/bladder-cancer-and-neobladder-surgery/
I love that you're busy. I look forward to your updates.
-
Like -
Helpful -
Hug
2 ReactionsHello! I am so sorry. I have been exceptionally busy since I entered my question.
I did not have to have my bladder removed yet. We thought there was also a tumor outside the bladder, so I was treated with IV chemo for an entire year, from May, 2021 to May, 2022. It seemed the chemo had taken care of the tumor inside my bladder, but after the year of chemo, I had a PET scan that showed the tumor had grown. That is why my oncologist stopped the IV chemo and put me back on Lonsurf oral chemo, which I had been on in 2019 and 2020.
My oncologist ordered a biopsy of the tumor outside my bladder, and it turned out to be an abscess! I never had a tumor there. So then she wanted to have the inside of my bladder checked again, to verify that I was cancer free. Unfortunately, I did have a polyp which turned out to be malignant. So now, I'm back to Square 1.
We agreed that I would stay on the Lonsurf for 4 months, then do another PET scan. If the tumor has grown or shows no improvement, she recommends that I have my bladder removed. I am a 13-year survivor, now age 66, and have endured a lot of chemo and radiation, as well as had multiple surgeries. Right now, since I came off the IV chemo, I feel the best I've felt in about 3 years.
Thank you for your recommendation to join the discussion with other Stage 4 members. I will do that, now that I have some time to do so.
-
Like -
Helpful -
Hug
3 ReactionsWelcome @suzyq2009. I'd like to bring @jim8086 who has experience with cancer in the ureter. His is primary cancer of the ureter, not metastasis however.
You might also appreciate connecting with other stage 4 colorectal cancer members in this discussion:
- Hi, stage 4 colorectal cancer here https://connect.mayoclinic.org/discussion/hi-stage-4-here/
Suzyq, did you also have to have the bladder removed? How are you doing?