Hi all thanks for your well wishes. I am on my second week on lenvima. The first week was bad. But my side effects are getting better. Still a little dizzy, my blood pressure elevated and l had to be put on BP medication. The acid reflux is very bad. I am continuing to pray for positive results. I will keep you all updated. Thanks.
I am starting Lenvatinib soon. I am so very worried about the side effects. Has anyone had bad side effects and what helped? I am really thinking about not taking it. My thyroid cancer spread to my lungs.
Welcome, @tonbra32, as you likely know lenvatinib (Lenvima) is a multiple receptor tyrosine kinase inhibitor that is prescribed for a number of different cancers, including thyroid cancer. @achatterjee's mom is soon to start on the medication as well.
I am starting Lenvatinib soon. I am so very worried about the side effects. Has anyone had bad side effects and what helped? I am really thinking about not taking it. My thyroid cancer spread to my lungs.
This June my husband started taking a daily dose of 14mg Lenvatinib and has tolerated it pretty well. Keeping weight on has been an issue so he drinks very high calorie “meal replacements”, in addition to his meals, 2-3 times a day. His blood pressure has remained normal. At times he has temperature sensitivity to cold in his hands, and for about a week or so, went through some major joint pain in his hips. He gets tired, but is able to continue working as normal. More than anything, he gets an upset stomach and nausea 3-4 days a week. He has been able to manage it with Zofran.
He just had a 3-month follow up MRI and bloodwork showing shrinking masses and improved Tg level. Also, no new disease progression. All reassuring.
He will continue at this dose for now since tumors are shrinking and side effects are tolerable. Follow-up appointment in 3 months.
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Hi all thanks for your well wishes. I am on my second week on lenvima. The first week was bad. But my side effects are getting better. Still a little dizzy, my blood pressure elevated and l had to be put on BP medication. The acid reflux is very bad. I am continuing to pray for positive results. I will keep you all updated. Thanks.
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1 Reactionmeghansa65, stay strong. let us know how things are going with you. lilyann
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1 ReactionI hope you will let us know how it is with lenvatinib and it's side effects? thank you
My thyroid cancer spread to my lungs, too. I have 40 nodules. I am very scared to start with Lenvatinib, too.
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1 ReactionThank so very much 💞
@emmanuel1, thinking of you as you get set to start treatment tomorrow.
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1 ReactionI will start on the 18th of August.
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2 ReactionsI am starting Lenvatinib soon. I am so very worried about the side effects. Has anyone had bad side effects and what helped? I am really thinking about not taking it. My thyroid cancer spread to my lungs.
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6 ReactionsHubby starts Lenvima in Sept/Oct. Lenvima is about $26k in the US. Luckily Medicare covers it.
This June my husband started taking a daily dose of 14mg Lenvatinib and has tolerated it pretty well. Keeping weight on has been an issue so he drinks very high calorie “meal replacements”, in addition to his meals, 2-3 times a day. His blood pressure has remained normal. At times he has temperature sensitivity to cold in his hands, and for about a week or so, went through some major joint pain in his hips. He gets tired, but is able to continue working as normal. More than anything, he gets an upset stomach and nausea 3-4 days a week. He has been able to manage it with Zofran.
He just had a 3-month follow up MRI and bloodwork showing shrinking masses and improved Tg level. Also, no new disease progression. All reassuring.
He will continue at this dose for now since tumors are shrinking and side effects are tolerable. Follow-up appointment in 3 months.
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Hug
2 Reactions