Anyone taking Lenvima (lenvatinib)?

Posted by tonbra32 @tonbra32, Apr 23, 2024

Is anyone taking Lenvatinib? How is it? How is it financially?

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Profile picture for lilyann @lilyann

@meghansa65
hi, lilyann here, i don't know, i haven't heard anything, but i will look on the search engine and see. but, if you already heard about it doing that in another group than they would know. please keep us informed. i do wish you well.

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@lilyann please keep us posted, and thank you.

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Profile picture for meghansa65 @meghansa65

Hei, is there any one in this group that take a covid vaccine? I just did and i am scared because i read in another group that the vaccine will make thyroid cancers grow and doubled fast. Any comments?

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@meghansa65
hi, lilyann here, i don't know, i haven't heard anything, but i will look on the search engine and see. but, if you already heard about it doing that in another group than they would know. please keep us informed. i do wish you well.

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Hei, is there any one in this group that take a covid vaccine? I just did and i am scared because i read in another group that the vaccine will make thyroid cancers grow and doubled fast. Any comments?

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Profile picture for meghansa65 @meghansa65

@lilyann how aare you? did you start with lenvima?

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@meghansa65
hi megan, lilyann here.

i'm off lenvima and they put me on cabometyx and now i am off that. just had a pet scan yesterday. i can feel the lymph nodes in my neck getting larger. i didn't get any more teeth pulled as i was suppose to get the radiation too. i don't feel up to it. they were rushing me and i was going to go along with it but the dental surgeon said it will take at least 5 weeks to heal where the teeth were pulled (3). they wanted me to only wait a week and he said that's not possible. to start the radiation. so that is where i am as of now. but, i did have an MRI the beginning of october of the brain and all is clear. so that is good news because the way my head hurts all the time they wanted to check it out. i guess its what you call referred pain. i still have the right ear pain also. so thank you for checking in on me and i am wishing you the best. keep in touch. god bless

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Profile picture for lilyann @lilyann

i am scheduled to take levima, and begin target radiation after my dental work is done. is anyone else taking this levima? lymph nodes taking over after radical neck dissection in 2023.

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@lilyann how aare you? did you start with lenvima?

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Profile picture for bfrank @bfrank

This June my husband started taking a daily dose of 14mg Lenvatinib and has tolerated it pretty well. Keeping weight on has been an issue so he drinks very high calorie “meal replacements”, in addition to his meals, 2-3 times a day. His blood pressure has remained normal. At times he has temperature sensitivity to cold in his hands, and for about a week or so, went through some major joint pain in his hips. He gets tired, but is able to continue working as normal. More than anything, he gets an upset stomach and nausea 3-4 days a week. He has been able to manage it with Zofran.
He just had a 3-month follow up MRI and bloodwork showing shrinking masses and improved Tg level. Also, no new disease progression. All reassuring.
He will continue at this dose for now since tumors are shrinking and side effects are tolerable. Follow-up appointment in 3 months.

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@bfrank Hei. How is your husband doin? I'm glad to hear that 14 mg lenvima worked for him.

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Profile picture for meghansa65 @meghansa65

Hei, I was admitted last month in the hospital because of bleeding ulcer in the stomach.
This week which is a manday I was admitted in the hospital again because of TIA. I am scared. I have not started with lenvima yet because my lung nodules is stable.

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@meghansa65 hi megan, sorry to hear this is happening to you. i will keep you in my prayers. stay strong in the lord. try not to be scared, sending you a virtual hug. keep us posted as i have been following you. lilyann here.

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Hei, I was admitted last month in the hospital because of bleeding ulcer in the stomach.
This week which is a manday I was admitted in the hospital again because of TIA. I am scared. I have not started with lenvima yet because my lung nodules is stable.

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Profile picture for zygote @zygote

@lilyann Hypersensitivity to inactive ingredients
The inactive ingredients (excipients) in different brands of levothyroxine can cause an allergic or hypersensitivity reaction, leading to a rash and itching. Some people with this reaction found their symptoms resolved after switching to a different formulation, such as a liquid or a brand with different excipients.
Itching from a change in thyroid levels
Itching can also be a sign of hyperthyroidism, a condition caused by having too much thyroid hormone. This may occur if your levothyroxine dose is too high
Tirosint capsules do not contain fillers such as gluten, lactose, or dyes, which are often found in tablet forms of levothyroxine. This makes it a suitable alternative for patients with allergies, sensitivities, or absorption issues.

Tirosint has a very minimal list of inactive ingredients:
Tirosint gel capsules: The liquid form of levothyroxine in gel capsules contains just three inactive ingredients: gelatin, glycerin, and water.
Tirosint-SOL liquid: The single-dose ampules are even more minimalist, containing only glycerol and water along with the active ingredient
The "clean" formulation of Tirosint and Tirosint-SOL can be beneficial for certain patients for several reasons:
Fewer allergens: A common reason for intolerance to standard levothyroxine tablets is an allergy or sensitivity to the fillers and binders they contain, such as lactose or cornstarch.

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@zygote
lilyann here, thank you so much for this information. i will be contacting my endocrinologist for sure as this is just too much stress if consistent itching. your a blessing to me. take care

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Profile picture for lilyann @lilyann

lilyann here. is anyone else suffering terrible itching taking the levothyroxine? wishing everyone wellness. hope all the tests come back positive. god bless.

Jump to this post

@lilyann Hypersensitivity to inactive ingredients
The inactive ingredients (excipients) in different brands of levothyroxine can cause an allergic or hypersensitivity reaction, leading to a rash and itching. Some people with this reaction found their symptoms resolved after switching to a different formulation, such as a liquid or a brand with different excipients.
Itching from a change in thyroid levels
Itching can also be a sign of hyperthyroidism, a condition caused by having too much thyroid hormone. This may occur if your levothyroxine dose is too high
Tirosint capsules do not contain fillers such as gluten, lactose, or dyes, which are often found in tablet forms of levothyroxine. This makes it a suitable alternative for patients with allergies, sensitivities, or absorption issues.

Tirosint has a very minimal list of inactive ingredients:
Tirosint gel capsules: The liquid form of levothyroxine in gel capsules contains just three inactive ingredients: gelatin, glycerin, and water.
Tirosint-SOL liquid: The single-dose ampules are even more minimalist, containing only glycerol and water along with the active ingredient
The "clean" formulation of Tirosint and Tirosint-SOL can be beneficial for certain patients for several reasons:
Fewer allergens: A common reason for intolerance to standard levothyroxine tablets is an allergy or sensitivity to the fillers and binders they contain, such as lactose or cornstarch.

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