My husband will begin Lenvima tomorrow. We’re worried about the long list of side effects. It was recommended to take zofran 30-60 mins before Lenvima & at bedtime. Please share any helpful info to help him thru this treatment.
@meghansa65
lilyann here, how are you meghan?
had both you and eumanuell on my mind. wishing you both a merry christmas and a happy new year. god bless you both.
@meghansa65
hi, lilyann here, i don't know, i haven't heard anything, but i will look on the search engine and see. but, if you already heard about it doing that in another group than they would know. please keep us informed. i do wish you well.
Hei, is there any one in this group that take a covid vaccine? I just did and i am scared because i read in another group that the vaccine will make thyroid cancers grow and doubled fast. Any comments?
@meghansa65
hi, lilyann here, i don't know, i haven't heard anything, but i will look on the search engine and see. but, if you already heard about it doing that in another group than they would know. please keep us informed. i do wish you well.
Hei, is there any one in this group that take a covid vaccine? I just did and i am scared because i read in another group that the vaccine will make thyroid cancers grow and doubled fast. Any comments?
i'm off lenvima and they put me on cabometyx and now i am off that. just had a pet scan yesterday. i can feel the lymph nodes in my neck getting larger. i didn't get any more teeth pulled as i was suppose to get the radiation too. i don't feel up to it. they were rushing me and i was going to go along with it but the dental surgeon said it will take at least 5 weeks to heal where the teeth were pulled (3). they wanted me to only wait a week and he said that's not possible. to start the radiation. so that is where i am as of now. but, i did have an MRI the beginning of october of the brain and all is clear. so that is good news because the way my head hurts all the time they wanted to check it out. i guess its what you call referred pain. i still have the right ear pain also. so thank you for checking in on me and i am wishing you the best. keep in touch. god bless
i am scheduled to take levima, and begin target radiation after my dental work is done. is anyone else taking this levima? lymph nodes taking over after radical neck dissection in 2023.
This June my husband started taking a daily dose of 14mg Lenvatinib and has tolerated it pretty well. Keeping weight on has been an issue so he drinks very high calorie “meal replacements”, in addition to his meals, 2-3 times a day. His blood pressure has remained normal. At times he has temperature sensitivity to cold in his hands, and for about a week or so, went through some major joint pain in his hips. He gets tired, but is able to continue working as normal. More than anything, he gets an upset stomach and nausea 3-4 days a week. He has been able to manage it with Zofran.
He just had a 3-month follow up MRI and bloodwork showing shrinking masses and improved Tg level. Also, no new disease progression. All reassuring.
He will continue at this dose for now since tumors are shrinking and side effects are tolerable. Follow-up appointment in 3 months.
Hei, I was admitted last month in the hospital because of bleeding ulcer in the stomach.
This week which is a manday I was admitted in the hospital again because of TIA. I am scared. I have not started with lenvima yet because my lung nodules is stable.
@meghansa65 hi megan, sorry to hear this is happening to you. i will keep you in my prayers. stay strong in the lord. try not to be scared, sending you a virtual hug. keep us posted as i have been following you. lilyann here.
Hei, I was admitted last month in the hospital because of bleeding ulcer in the stomach.
This week which is a manday I was admitted in the hospital again because of TIA. I am scared. I have not started with lenvima yet because my lung nodules is stable.
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My husband will begin Lenvima tomorrow. We’re worried about the long list of side effects. It was recommended to take zofran 30-60 mins before Lenvima & at bedtime. Please share any helpful info to help him thru this treatment.
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lilyann here, how are you meghan?
had both you and eumanuell on my mind. wishing you both a merry christmas and a happy new year. god bless you both.
@lilyann please keep us posted, and thank you.
@meghansa65
hi, lilyann here, i don't know, i haven't heard anything, but i will look on the search engine and see. but, if you already heard about it doing that in another group than they would know. please keep us informed. i do wish you well.
Hei, is there any one in this group that take a covid vaccine? I just did and i am scared because i read in another group that the vaccine will make thyroid cancers grow and doubled fast. Any comments?
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Helpful -
Hug
1 Reaction@meghansa65
hi megan, lilyann here.
i'm off lenvima and they put me on cabometyx and now i am off that. just had a pet scan yesterday. i can feel the lymph nodes in my neck getting larger. i didn't get any more teeth pulled as i was suppose to get the radiation too. i don't feel up to it. they were rushing me and i was going to go along with it but the dental surgeon said it will take at least 5 weeks to heal where the teeth were pulled (3). they wanted me to only wait a week and he said that's not possible. to start the radiation. so that is where i am as of now. but, i did have an MRI the beginning of october of the brain and all is clear. so that is good news because the way my head hurts all the time they wanted to check it out. i guess its what you call referred pain. i still have the right ear pain also. so thank you for checking in on me and i am wishing you the best. keep in touch. god bless
@lilyann how aare you? did you start with lenvima?
@bfrank Hei. How is your husband doin? I'm glad to hear that 14 mg lenvima worked for him.
@meghansa65 hi megan, sorry to hear this is happening to you. i will keep you in my prayers. stay strong in the lord. try not to be scared, sending you a virtual hug. keep us posted as i have been following you. lilyann here.
Hei, I was admitted last month in the hospital because of bleeding ulcer in the stomach.
This week which is a manday I was admitted in the hospital again because of TIA. I am scared. I have not started with lenvima yet because my lung nodules is stable.
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Helpful -
Hug
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