Anyone taking Lenvima (lenvatinib)?

@colleenyoung
I’ve been on Lenvima since 8/2025, started with 24mg then reduced over time to 20mg, 14mg, currently at 10mg. My diagnosis is papillary tall cell thyroid carcinoma.

@colleenyoung I believe he’s been fortunate to be able to tolerate this drug. He continues to take the zofran as recommended for at least the 1st month. It’s certainly a journey. We’re not always sure what tomorrow may bring. I remain interested in hearing from others who have been treated with Lenvima.

@sha75, welcome. I'm tagging fellow members who have experience with Lenvima (lenvatinib) and cn share with you.

She, how is your husband doing on Lenvima? Did taking Zofran before help? How are YOU doing?

My husband will begin Lenvima tomorrow. We’re worried about the long list of side effects. It was recommended to take zofran 30-60 mins before Lenvima & at bedtime. Please share any helpful info to help him thru this treatment.

@meghansa65
lilyann here, how are you meghan?
had both you and eumanuell on my mind. wishing you both a merry christmas and a happy new year. god bless you both.

@lilyann please keep us posted, and thank you.

@meghansa65
hi, lilyann here, i don't know, i haven't heard anything, but i will look on the search engine and see. but, if you already heard about it doing that in another group than they would know. please keep us informed. i do wish you well.

Hei, is there any one in this group that take a covid vaccine? I just did and i am scared because i read in another group that the vaccine will make thyroid cancers grow and doubled fast. Any comments?

@meghansa65
hi megan, lilyann here.

i'm off lenvima and they put me on cabometyx and now i am off that. just had a pet scan yesterday. i can feel the lymph nodes in my neck getting larger. i didn't get any more teeth pulled as i was suppose to get the radiation too. i don't feel up to it. they were rushing me and i was going to go along with it but the dental surgeon said it will take at least 5 weeks to heal where the teeth were pulled (3). they wanted me to only wait a week and he said that's not possible. to start the radiation. so that is where i am as of now. but, i did have an MRI the beginning of october of the brain and all is clear. so that is good news because the way my head hurts all the time they wanted to check it out. i guess its what you call referred pain. i still have the right ear pain also. so thank you for checking in on me and i am wishing you the best. keep in touch. god bless

@lilyann how aare you? did you start with lenvima?