Hi, the side effects are not very bad. My blood pressure is elevated and l was put on blood pressure meds. Still a little tired at times, not as dizzy as the first week. I have to make, myself eat no appetite everything is tasteless. Do you know what treatment if any your doctor is talking about? I will definitely like, to know. Thanks for your prayers, and l will be praying for you as well.
This June my husband started taking a daily dose of 14mg Lenvatinib and has tolerated it pretty well. Keeping weight on has been an issue so he drinks very high calorie “meal replacements”, in addition to his meals, 2-3 times a day. His blood pressure has remained normal. At times he has temperature sensitivity to cold in his hands, and for about a week or so, went through some major joint pain in his hips. He gets tired, but is able to continue working as normal. More than anything, he gets an upset stomach and nausea 3-4 days a week. He has been able to manage it with Zofran.
He just had a 3-month follow up MRI and bloodwork showing shrinking masses and improved Tg level. Also, no new disease progression. All reassuring.
He will continue at this dose for now since tumors are shrinking and side effects are tolerable. Follow-up appointment in 3 months.
Nice to hear that your husband managed the side effects of Lenvatinib. And seems the treatment works for him. Can I ask why he is taking Lenvatinib and what kind of thyroid cancer has he has? I am about to start with Lenvatinib because of my lung mets, and I am scared to hear the heavy side effects. Thank you for your reply.
How are you coping with the side effects of Lenvima? I have 40 cancer cells in my lungs and i am not a candidate for radiation. Too many. Please let me know, and you are in my prayers, too.
Hi, the side effects are not very bad. My blood pressure is elevated and l was put on blood pressure meds. Still a little tired at times, not as dizzy as the first week. I have to make, myself eat no appetite everything is tasteless. Do you know what treatment if any your doctor is talking about? I will definitely like, to know. Thanks for your prayers, and l will be praying for you as well.
Hi, am not sure at the moment. My indo is going to check my markets at the end of September. But the gold is to shrink the tumor and my markers to be at normal levels. But l will discuss on my next visit, that is definitely a good question. I did not ask l was so sad that the cancer spread to my lungs and now chemotherapy my mind just went. I will keep you updated.
How are you coping with the side effects of Lenvima? I have 40 cancer cells in my lungs and i am not a candidate for radiation. Too many. Please let me know, and you are in my prayers, too.
Hi, am not sure at the moment. My indo is going to check my markets at the end of September. But the gold is to shrink the tumor and my markers to be at normal levels. But l will discuss on my next visit, that is definitely a good question. I did not ask l was so sad that the cancer spread to my lungs and now chemotherapy my mind just went. I will keep you updated.
Hi, am not sure at the moment. My indo is going to check my markets at the end of September. But the gold is to shrink the tumor and my markers to be at normal levels. But l will discuss on my next visit, that is definitely a good question. I did not ask l was so sad that the cancer spread to my lungs and now chemotherapy my mind just went. I will keep you updated.
Hi all thanks for your well wishes. I am on my second week on lenvima. The first week was bad. But my side effects are getting better. Still a little dizzy, my blood pressure elevated and l had to be put on BP medication. The acid reflux is very bad. I am continuing to pray for positive results. I will keep you all updated. Thanks.
That first week was Tuff tuff couldn’t hold anything on stomach had to runs and throat was sore . Appetite just disappeared. Things are appearing to be coming back in order this week . I’ll take it day at a time .
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Hei, I was confined for 7 days because of bleeding ulcer. I have not started with Lenvima yet. I have lung mets.
Nice to hear that your husband managed the side effects of Lenvatinib. And seems the treatment works for him. Can I ask why he is taking Lenvatinib and what kind of thyroid cancer has he has? I am about to start with Lenvatinib because of my lung mets, and I am scared to hear the heavy side effects. Thank you for your reply.
Hi, the side effects are not very bad. My blood pressure is elevated and l was put on blood pressure meds. Still a little tired at times, not as dizzy as the first week. I have to make, myself eat no appetite everything is tasteless. Do you know what treatment if any your doctor is talking about? I will definitely like, to know. Thanks for your prayers, and l will be praying for you as well.
How are you coping with the side effects of Lenvima? I have 40 cancer cells in my lungs and i am not a candidate for radiation. Too many. Please let me know, and you are in my prayers, too.
Markers. I am very tired and should read before I hit send.
Hi, am not sure at the moment. My indo is going to check my markets at the end of September. But the gold is to shrink the tumor and my markers to be at normal levels. But l will discuss on my next visit, that is definitely a good question. I did not ask l was so sad that the cancer spread to my lungs and now chemotherapy my mind just went. I will keep you updated.
For how long will you be taking lenvima?
Thank you , lilyann. I hope to hear more.
Hei Bert60, how are you doing now? after starting Lenvatinib? I hope everything is fine with you.
lilyann here, meghansa65, so glad to meet you. everyone on here is so nice and helpful. i have you in my prayers.