Anyone out there diagnosed with Pudendal Neuralgia?
I have not been on connect for quite a while since I have only recently received a diagnosis (one of many probably to come) I am looking for someone/anyone who has the pain from a surgical injury of sorts to this nerve to talk to. Is there anyone out there with Pudendal Neuralgia on connect? Thank you!
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I believe that. It took them years to even diagnose me. The nerve blocks just made it more irritated. Somehow try to get an anti-seizure med and see how it works. Find a good neurologist who will prescribe it. I will praying for you.
No I have not experienced any side effects with Lyrica. To my knowledge my thyroid is ok but I will be having blood tests in a couple of weeks so I will see.
I have pudendal neuralgia along with lots of other conditions. But I think it’s this condition that has changed my life the most.
Does this pain seem likd it’s a uti
I my experience it can sometimes seem like a uti.
Harc to know isn’t
Not at all for me. Basically anything that can burn or hurt does, I sit on a pillow with ice packs inside the pillowcase. Everywhere I go I have to bring my pillow & a cooler for the ice packs. And still I can’t sit more than 3-4 hrs in a day.
Thank you. I really don’t think this is pudendal neuralgia. Think it’s more prolapse. Urogynoncologist say pn. But it’s my rectum vaginal pressure!!!! so bad !!
Best to get a urine culture at a lab in case it is a uti.
I sat on a donut for 14 years. I am so sorry for you. Like I told others, anti-seizure medicine was the final cure.