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Anyone in their 20s, 30s, or 40s here? How are you managing?
I am in my early 40s, have chemo-induced neuropathy in my left foot and radiation-induced brachial plexus neuropathy in my right hand and arm, both from cancer treatment in my late 30s.
Now that I am back to basically myself, and am recurrence-free, I am trying to get in shape and deal with moving and being in the world with the neuropathies.
Anyone else in the same boat, looking at managing this for another few decades? What has helped? How do you talk about this with others?
The arm thing was so much worse that in the beginning I forgot about my foot, but now I am really feeling the foot issue, too, especially when running and swimming.
Thanks!
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Hi @seathink, while you wait for members with experience to respond I thought you might find it help to scan through posts by members in the following discussion to see if there may be suggestions that help.
-- Chemotherapy-induced neuropathy: What helps get rid of it?
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/
Here's a search of Connect using "chemo-induced neuropathy what helps" that lists a few other discussions and comments from members - https://connect.mayoclinic.org/search/discussions/,
Hello Im late 40s. I cant really say that I am managing. Ive been trying some exercise but think that is making me worse. I dont have pain but my feet feel like they are broken (I know doesnt make sense but thats how it is) and I can barely walk…..I limp. I believe a wheelchair is in my horizon. Regarding the next 40 years I really dont know what is going to happen. Next year is going to be a big turning point in my situation and if I continue to decline I wont be able to survive on my own due to my current circumstances and the symptoms of this damned disease.
Apologize if this was not the positive answer you may have been hoping for but as I keep hearing this disease is different for everyone and that is the reality of my situation. Ive went a bit more in detail in past posts here but dont want to dox myself….
Im not being negative just honest. I have axonal demyelinating sensorimotor polyneuropathy, Type 2 diabetes and some other stuff 😔. This all started with a diabetes diagnosis and quickly went downhill from there. Two years ago I was a completely different person. Ive tried supplements, exercise, diet - nothing has really helped honestly. I can’t really talk to others about this because if they don’t have it they cant really understand. I have tried but always feel ignored or made to feel like Im exaggerating.
Im not looking for sympathy or having a so called pity party - this is just my reality. I can’t pretend to be happy. I’m not. However, I still do greatly enjoy bacon and eggs.