Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

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Profile picture for punkie1214 @punkie1214

@cit10jetjockey
Hi I’ve been dealing with Peripheral Neuropathy for years. Glad to hear you’re pain free! I have numbness and tingling all over and weakness also. I can’t take Lyrica or Gabapentin. I get bad reactions. I eat well and try to keep moving but it’s hard sometimes. What’s your secret for being pain free?

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@punkie1214 Baclofin has really helped me. I take 2 10mg every morning. Cant take at night as I have an opposite reaction to sleepiness, I can't sleep if I take it.

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Profile picture for NJ Ed @njed

@jakedduck1 -- I agree with you and I was careful not to use the word lucky because in my opinion, there is nothing lucky about having PN. In 2025, doc added distended bladder to the list of PN issues. Balance issues, had to give up my boat and after 60 years of boating, that wasn't easy. Secondary PN issues, there are many.

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@njed
Sorry about your boat Ed. I have only been on cruise ships or smaller vessels that carry 50-100 people. Never a recreational boat on a lake. Someday I hope, although it better be quick😳
Jake

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