Anyone here dealing with peripheral neuropathy?

I am a non-insulin diabetic with peripheral neuropathy of the feet. I live on Gabapentin, 900mg, 3 times a day. I have done all of the following: massage therapy, acupuncture, deep tissue red light therapy, shock wave therapy, and an abundance of supplements. I have had a ton of blood work to check all levels of vitamins and acids and blah, blah, blah. 3 years in and still, no relief. I am about to undergo Qutenza treatment as my last, desperate chance. It's not a cure, which, at this point, I don't believe there is one, but I'm praying to the Almighty that it will give me some relief. If anyone has a silver bullet, by all means, let me know.

I have been struggling with PN since my first scoliosis surgery at age 58. Ian now almost 76. For me, I have only felt pain a handful of times; however, my main complaint has been numbness/tingling.
The neurologists I’ve seen over the years can offer no relief and have absolutely no advice to help. I have spent tons of money on devices and pills advertised for relief of numbness. Of course, none of these “cures”work, and, as a matter of fact, one even made it worse.
I’ve been on Gabapentin many years. Again, massive doses had zero effect on the numbness.
That awful numbness has particularly worsened over the last seven days. It seems to have spread halfway up my calves. Over the last couple of days, even my left hand has periodically been affected. It’s a horrible feeling and very unsettling. Truly, it feels like bugs are crawling inside my limbs. As far as my balance….let’s just say it’s nil, hence the wheelchair.
If anyone out there has ANY suggestions, I’d love to hear them.

Welcome @bododa, Thanks for sharing the different treatments and challenges you have with restless leg syndrome and small fiber neuropathy. Poor sleep is a challenge indeed. I have small fiber peripheral neuropathy and also have obstructive sleep apnea. A CPAP device helps me but it also provides some challenges of it's own finding the right mask that works for me.

Have you ever had an overnight sleep study?

@bododa

I know what you’re going through. I am a 60 year old woman and I am scared. My symptoms came on suddenly. At home I kept falling all over the house because my legs and feet wouldn’t work. I couldn’t drive anywhere without the fear of falling or getting into an accident. I went to the gas station to fill a low tire. When the tire was full I capped the tire. I went to put the air hose back. I took a step back and I fell on my back and hit my head really hard. So I had my friend come get me and she took me to the emergency room, They ran bloodwork and lots of scans. They said they found nothing. And the bump on my scalp was as big as a baseball. As the days passed they transferred me to a nursing home. Now I’m freaking out. Why are doctors so clueless. I found a wealth of information on the internet. That’s how I ended up here. Feels like I’m on fire and someone is sticking pins and needles in my feet, lower legs, Wrists and hands. I wish someone would help me already!

Yes! Cancer treatment of chemo & radiation has given me neuropathy in my feet. Uncomfortable. I wear supportive shoes which seem to help . Any other suggestions will be accepted! I’d appreciate hearing from others