Yes, I am using it for the first time. One of the issues I had initially was understanding the different modes and levels of intensity. The standard red light therapy units have three modes: 1) regular 2) 10hz pulse 3) 40hz pulse. It didn't explain which one to use for my specific symptom(s). I had the same problem with the 5 intensity levels. I researched these questions on line and got some answers. Bear in mind this is not a quick fix but a long term treatment program. I just started using the device this week so I can't draw any conclusions except for healing some skin damage I had on my big toe. It really helped with that problem expediting the healing. My unit is for feet and ankle areas only which is my affected area for PN. I also use a device called Neurogo which provides electrical impulses to the feet, ankles, calves and thighs to stimulate blood flow. You can feel it working but it is also a long term "solution". The jury's still out for both of these devices since I'm just a newbie. I will post progress reports periodically.
I bought one through TEMU at around $75.00 It looks very much like the same one sold by LUMA for $200.00 plus. I have used it several times already noticing its healing capabilities. I damaged my big toe carelessly and felt no pain from that incident but this device has easily expedited the healing of the damage to the skin surrounding the toe. My wife is a retired RN who is my "in house" medical consultant. The toe was a slow healing process until this device was added to the process. She remarked that the healing was greatly improved after using it. Has it lessened the neuropathy pain?...not yet, but you are told it won't be an overnight fix. It was worth the $75 alone just to speed up the healing. I use it about 3 -4 times per week for 20 minutes set on pulse 10mh for deep penetration. It's just too soon to evaluate it for nerve damage repair. I do not regret the purchase. If you want a link for the purchase I'll be glad to send it to you.
Hello,
am 60 (male) and have had 20yrs of combined gradually worsening RLS and SFN. Have done various tests to fairly certainly confirm these diagnoses. Been on pretty much all medications, done acupuncture, Chinese medicine TENS (and other electrical treatments) etc. and currently taking Methadone 5mg (at dinner time). The Methadone helps with the RLS but I still have gradually worsening burning feet for at least 2hrs each night (mostly between 12am - 2am).
Needless to say, poor sleep is challenging and poor prognosis with no known effective treatment is discouraging. I work with a neurologist and intermittently with other practitioners (acupuncture, naturopath, functional medicine) whom I trust - but they have no effective treatments to offer so far. Does anyone here have additional information? Thank you!
I have been suffering from Peripheral Neuropathy for about 8 years now. I even have a spinal cord stimulator in and still no relief.
I am sorry you suffer from neuropathy also. I have had no help from my doctors and no medication that helps me at all. I just lay in bed until I fall asleep with my tv on very quietly.
I am a non-insulin diabetic with peripheral neuropathy of the feet. I live on Gabapentin, 900mg, 3 times a day. I have done all of the following: massage therapy, acupuncture, deep tissue red light therapy, shock wave therapy, and an abundance of supplements. I have had a ton of blood work to check all levels of vitamins and acids and blah, blah, blah. 3 years in and still, no relief. I am about to undergo Qutenza treatment as my last, desperate chance. It's not a cure, which, at this point, I don't believe there is one, but I'm praying to the Almighty that it will give me some relief. If anyone has a silver bullet, by all means, let me know.
I have peripheral neuropathy as a result of surgery from an aortic tear and TAVR surgery (
Aug 25). Numbness and tingling from surgical site to top of left shoulder. Post op my left arm was black from all the bruising. I was left with numbness, tingling, intermittant sharp pains and low strength in the left arm. Also presented with odd muscular feeling in bicep and forearm. Currently under no doctors care. Have used massage and acupunture and tai chi to varing degrees of success. Would like to continue without medication if possible, Do have an appointment with neurologist in near future. Will update as things proceed.
I have peripheral neuropathy as a result of surgery from an aortic tear and TAVR surgery (
Aug 25). Numbness and tingling from surgical site to top of left shoulder. Post op my left arm was black from all the bruising. I was left with numbness, tingling, intermittant sharp pains and low strength in the left arm. Also presented with odd muscular feeling in bicep and forearm. Currently under no doctors care. Have used massage and acupunture and tai chi to varing degrees of success. Would like to continue without medication if possible, Do have an appointment with neurologist in near future. Will update as things proceed.
Welcome @viperious, Thank you for sharing your experience. Hoping you get some answers at your upcoming appointment with the neurologist. You mentioned having some degree of success with the symptoms using massage, acupuncture and Tai Chi. There is another discussion that my be helpful if nerve compression is present.
-- Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
How soon is your appointment with your neurologist?
I am new to this group so please forgive me if I am not following the right protocol. Is anyone on this site been experimenting with red light therapy for neuropathy in feet and lower limbs???!
@weewillie70
I have been experimenting with Red Light for a while and am working on a detailed article on the subject. If you would like to see some detailed preliminary data you may send me a direct message through the member's page.
I have been struggling with PN since my first scoliosis surgery at age 58. Ian now almost 76. For me, I have only felt pain a handful of times; however, my main complaint has been numbness/tingling.
The neurologists I’ve seen over the years can offer no relief and have absolutely no advice to help. I have spent tons of money on devices and pills advertised for relief of numbness. Of course, none of these “cures”work, and, as a matter of fact, one even made it worse.
I’ve been on Gabapentin many years. Again, massive doses had zero effect on the numbness.
That awful numbness has particularly worsened over the last seven days. It seems to have spread halfway up my calves. Over the last couple of days, even my left hand has periodically been affected. It’s a horrible feeling and very unsettling. Truly, it feels like bugs are crawling inside my limbs. As far as my balance….let’s just say it’s nil, hence the wheelchair.
If anyone out there has ANY suggestions, I’d love to hear them.
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What red light device using ?
I bought one through TEMU at around $75.00 It looks very much like the same one sold by LUMA for $200.00 plus. I have used it several times already noticing its healing capabilities. I damaged my big toe carelessly and felt no pain from that incident but this device has easily expedited the healing of the damage to the skin surrounding the toe. My wife is a retired RN who is my "in house" medical consultant. The toe was a slow healing process until this device was added to the process. She remarked that the healing was greatly improved after using it. Has it lessened the neuropathy pain?...not yet, but you are told it won't be an overnight fix. It was worth the $75 alone just to speed up the healing. I use it about 3 -4 times per week for 20 minutes set on pulse 10mh for deep penetration. It's just too soon to evaluate it for nerve damage repair. I do not regret the purchase. If you want a link for the purchase I'll be glad to send it to you.
@bododa
I have been suffering from Peripheral Neuropathy for about 8 years now. I even have a spinal cord stimulator in and still no relief.
I am sorry you suffer from neuropathy also. I have had no help from my doctors and no medication that helps me at all. I just lay in bed until I fall asleep with my tv on very quietly.
Hope for the best for you,
Very frustrating.
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2 ReactionsI’ve been dealing with it for eight years now mine is pretty severe
I am a non-insulin diabetic with peripheral neuropathy of the feet. I live on Gabapentin, 900mg, 3 times a day. I have done all of the following: massage therapy, acupuncture, deep tissue red light therapy, shock wave therapy, and an abundance of supplements. I have had a ton of blood work to check all levels of vitamins and acids and blah, blah, blah. 3 years in and still, no relief. I am about to undergo Qutenza treatment as my last, desperate chance. It's not a cure, which, at this point, I don't believe there is one, but I'm praying to the Almighty that it will give me some relief. If anyone has a silver bullet, by all means, let me know.
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Like -
Helpful -
Hug
2 ReactionsI have peripheral neuropathy as a result of surgery from an aortic tear and TAVR surgery (
Aug 25). Numbness and tingling from surgical site to top of left shoulder. Post op my left arm was black from all the bruising. I was left with numbness, tingling, intermittant sharp pains and low strength in the left arm. Also presented with odd muscular feeling in bicep and forearm. Currently under no doctors care. Have used massage and acupunture and tai chi to varing degrees of success. Would like to continue without medication if possible, Do have an appointment with neurologist in near future. Will update as things proceed.
-
Like -
Helpful -
Hug
1 ReactionWelcome @viperious, Thank you for sharing your experience. Hoping you get some answers at your upcoming appointment with the neurologist. You mentioned having some degree of success with the symptoms using massage, acupuncture and Tai Chi. There is another discussion that my be helpful if nerve compression is present.
-- Myofascial Release Therapy (MFR) for treating compression and pain:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
How soon is your appointment with your neurologist?
@weewillie70
I have been experimenting with Red Light for a while and am working on a detailed article on the subject. If you would like to see some detailed preliminary data you may send me a direct message through the member's page.
Yes, I am
I have been struggling with PN since my first scoliosis surgery at age 58. Ian now almost 76. For me, I have only felt pain a handful of times; however, my main complaint has been numbness/tingling.
The neurologists I’ve seen over the years can offer no relief and have absolutely no advice to help. I have spent tons of money on devices and pills advertised for relief of numbness. Of course, none of these “cures”work, and, as a matter of fact, one even made it worse.
I’ve been on Gabapentin many years. Again, massive doses had zero effect on the numbness.
That awful numbness has particularly worsened over the last seven days. It seems to have spread halfway up my calves. Over the last couple of days, even my left hand has periodically been affected. It’s a horrible feeling and very unsettling. Truly, it feels like bugs are crawling inside my limbs. As far as my balance….let’s just say it’s nil, hence the wheelchair.
If anyone out there has ANY suggestions, I’d love to hear them.