I’ve been dealing with it 7yrs now. It’s in both legs, feet,and hands. I’m in a wheelchair. I’ve had nerve ablation, spinal stimulator, 2 Fusions. I’m left with pain, burning, and numbness. I’ve tried Gabapentin, Lyrica, Elavil. My Doctor limited me to 3 Tylenol 4 a day. I’ve tried all the over counter creams,and every pill they say helps. I take a strong vitamin plus magnesium and a combo of B vitamins. Any help out there?
Try ALA (alpha lipoic acid). I take 600mg a day. It doesn't get rid of the symptoms, but it decreases the intensity. I have had PN for 9 years now. I refused to take any seizure medicine, like gabapentin. I believe they kill the pain by kiliing your nerves. I want to heal my nerves. I take vitamins, and exercise my toes 100 wiggle per day. Also, hot showers keep the pain down. It keeps the blood flowing! I keep my feet warm at all times.
I work 40 hours a week as a medical transporter. Sometimes I transport with a wheelchair van, pushing wheelchairs up a ramp. I am able to walk unhindered. The symptoms never completely go away, but are manageable so that I'm not constantly aware of them.
I’ve been reading these submissions for awhile now and what I remember most is “PN is progressive. Symptomatic relief is spotty at best. It won’t kill you except indirectly through falls from the inability of those micro movements in your feet and calves that would keep your gait smooth and stable. The rest is just conversation.”
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
My daughter is 35. She had a hysterectomy and bladder lift. Her bladder dropped. Her hands and feet went numb and started experiencing pain. She was diagnosed with sfn(small fiber neuropathy. My question has anyone had compressed nerves or entrapment? How do you get relief?
Yes I am, it’s not pleasant. Fortunately, I don’t have the pain connected with a lot of people who suffer from peripheral neuropathy but I do suffer greatly from the weakness which seems to be increasing with time. I’m looking at exercise as a means to help I go to Aqua fitness five days a week and I’m going to increase it with weight-bearing walking Because although the Aqua is good, you’re not putting any stress on your muscles. Motivation seems to be my greatest enemy at the moment but won’t give up the good fight. I hope anything in there helped good luck,
My daughter is 35. She had a hysterectomy and bladder lift. Her bladder dropped. Her hands and feet went numb and started experiencing pain. She was diagnosed with sfn(small fiber neuropathy. My question has anyone had compressed nerves or entrapment? How do you get relief?
Welcome @4sherri1961, I'm sorry to hear that your daughter has been diagnosed with small fiber neuropathy and having to deal with the pain. There are quite a few members who have mentioned compressed or nerve entrapment in other discussions. It might be helpful to scan through their comments to learn what they have shared. Here's a search link that lists the comments - https://connect.mayoclinic.org/search/comments/?search=compressed%20or%20nerve%20entrapment.
I don't think your daughter is alone with her symptoms and she might want to connect with other members who have had similar post surgery experiences:
-- Having problems post Bladder Prolapse Surgery: What helps? https://connect.mayoclinic.org/discussion/surgery-failure/
Has her surgeon or care team offered any treatment suggestions that might provide some relief?
Welcome @4sherri1961, I'm sorry to hear that your daughter has been diagnosed with small fiber neuropathy and having to deal with the pain. There are quite a few members who have mentioned compressed or nerve entrapment in other discussions. It might be helpful to scan through their comments to learn what they have shared. Here's a search link that lists the comments - https://connect.mayoclinic.org/search/comments/?search=compressed%20or%20nerve%20entrapment.
I don't think your daughter is alone with her symptoms and she might want to connect with other members who have had similar post surgery experiences:
-- Having problems post Bladder Prolapse Surgery: What helps? https://connect.mayoclinic.org/discussion/surgery-failure/
Has her surgeon or care team offered any treatment suggestions that might provide some relief?
Her surgeon was in denial when we had mentioned that her feet and hands had gone numb after her bladder had dropped which is frustrating because he offered no solutions. So we have been on this journey alone which is very frustrating.
Yes I am, it’s not pleasant. Fortunately, I don’t have the pain connected with a lot of people who suffer from peripheral neuropathy but I do suffer greatly from the weakness which seems to be increasing with time. I’m looking at exercise as a means to help I go to Aqua fitness five days a week and I’m going to increase it with weight-bearing walking Because although the Aqua is good, you’re not putting any stress on your muscles. Motivation seems to be my greatest enemy at the moment but won’t give up the good fight. I hope anything in there helped good luck,
Magrose45
I was diagnosed 7 years ago with PN, non diabetic, no pain, just walking problems & balance. Fatigue & probably inflammation the biggest problems. I also have drop foot which causes me to wear AFO’s , I don’t go anywhere without them. I walk in the pool 3 times a week for exercise but hasn’t improved my situation, probably has kept me from getting worse. Anyone out there with similar situation, please reply . Is there anything out there to help your nerves to regenerate?
I also have non diabetic PN, no pain, walking and balance problems and drop foot (I also must wear an AFO). For the weakness in my thighs, I do various physical therapy exercises to try to strengthen them, or at least keep the weakness from getting worse. For balance, I stand in a corner next to the walls and a high chest of drawers, with my feet together and my eyes closed. I'm up to 1 minute 15 seconds most days, but often it takes 2 or 3 attempts. Because of where I stand, I can't fall down, just onto a wall or the chest. My therapist said that is training my brain to use new pathways to send signals to my legs. My balance doesn't seem to be getting any better, but if I didn't do these exercises, it might be much worse.
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Try ALA (alpha lipoic acid). I take 600mg a day. It doesn't get rid of the symptoms, but it decreases the intensity. I have had PN for 9 years now. I refused to take any seizure medicine, like gabapentin. I believe they kill the pain by kiliing your nerves. I want to heal my nerves. I take vitamins, and exercise my toes 100 wiggle per day. Also, hot showers keep the pain down. It keeps the blood flowing! I keep my feet warm at all times.
I work 40 hours a week as a medical transporter. Sometimes I transport with a wheelchair van, pushing wheelchairs up a ramp. I am able to walk unhindered. The symptoms never completely go away, but are manageable so that I'm not constantly aware of them.
I’ve been reading these submissions for awhile now and what I remember most is “PN is progressive. Symptomatic relief is spotty at best. It won’t kill you except indirectly through falls from the inability of those micro movements in your feet and calves that would keep your gait smooth and stable. The rest is just conversation.”
My daughter is 35. She had a hysterectomy and bladder lift. Her bladder dropped. Her hands and feet went numb and started experiencing pain. She was diagnosed with sfn(small fiber neuropathy. My question has anyone had compressed nerves or entrapment? How do you get relief?
Yes I am, it’s not pleasant. Fortunately, I don’t have the pain connected with a lot of people who suffer from peripheral neuropathy but I do suffer greatly from the weakness which seems to be increasing with time. I’m looking at exercise as a means to help I go to Aqua fitness five days a week and I’m going to increase it with weight-bearing walking Because although the Aqua is good, you’re not putting any stress on your muscles. Motivation seems to be my greatest enemy at the moment but won’t give up the good fight. I hope anything in there helped good luck,
Welcome @4sherri1961, I'm sorry to hear that your daughter has been diagnosed with small fiber neuropathy and having to deal with the pain. There are quite a few members who have mentioned compressed or nerve entrapment in other discussions. It might be helpful to scan through their comments to learn what they have shared. Here's a search link that lists the comments - https://connect.mayoclinic.org/search/comments/?search=compressed%20or%20nerve%20entrapment.
I don't think your daughter is alone with her symptoms and she might want to connect with other members who have had similar post surgery experiences:
-- Having problems post Bladder Prolapse Surgery: What helps?
https://connect.mayoclinic.org/discussion/surgery-failure/
Has her surgeon or care team offered any treatment suggestions that might provide some relief?
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1 ReactionHer surgeon was in denial when we had mentioned that her feet and hands had gone numb after her bladder had dropped which is frustrating because he offered no solutions. So we have been on this journey alone which is very frustrating.
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Helpful -
Hug
1 ReactionMagrose45
I was diagnosed 7 years ago with PN, non diabetic, no pain, just walking problems & balance. Fatigue & probably inflammation the biggest problems. I also have drop foot which causes me to wear AFO’s , I don’t go anywhere without them. I walk in the pool 3 times a week for exercise but hasn’t improved my situation, probably has kept me from getting worse. Anyone out there with similar situation, please reply . Is there anything out there to help your nerves to regenerate?
-
Like -
Helpful -
Hug
1 ReactionI also have non diabetic PN, no pain, walking and balance problems and drop foot (I also must wear an AFO). For the weakness in my thighs, I do various physical therapy exercises to try to strengthen them, or at least keep the weakness from getting worse. For balance, I stand in a corner next to the walls and a high chest of drawers, with my feet together and my eyes closed. I'm up to 1 minute 15 seconds most days, but often it takes 2 or 3 attempts. Because of where I stand, I can't fall down, just onto a wall or the chest. My therapist said that is training my brain to use new pathways to send signals to my legs. My balance doesn't seem to be getting any better, but if I didn't do these exercises, it might be much worse.