Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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4 years.

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In reply to @corvette4 "4 years." + (show)
@corvette4

I could stand the pain, if I just could have normal balance back. I have had a number of serious falls and now use a walker.

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Hi,
Yes, I have Peripheral Neuropathy from inherited CMT. (Charcot Marie Tooth) and I was very active in
playing Tennis along with other fun activities, but I slowed down as I got older. Did you know that "Alan Jackson" -Country singer has this as well ? Hugs to you !

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@kimmykat

I have neuropathy in my feet, calves, and hands. I take gabapentin but it doesn't do much. I also had a laminectomy in left side of my back due to leg cramping and seizing up and causing excrutiating pain. It didn't helpmy leg. It went more numb or dead as I call it because it really is dead. Plus, before I had that surgery, they tried a shot, which didn't work and caused my right calve to die also. Now its in my hands. I don't know what to do, it's just getting worse. I feel I will eventually be in a wheel chair. Doctors just give meds with and tell you to cut out sugars. It's unbelievable there is no real help here. I am in Wyoming.

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Hi !
I am a Diebetic II for seven years and neurology pain with tingling, nerve strikes and finally numbness started 5 years ago. Started in feet, then grew to calves, thighs then hands/fingers…

I have seen many doctors and specialists but there is no cure as they prescribed gabapintin, juniva, etc… I also tried many creams to ease nerve pains. Icy hot was the only one that helps a bit.

After thousands of dollars, doctors do not have a cure for it. It’s sad that i have live with such discomfort and pain for rest of my life. I’m 58 and plan to retire at 65. I cry cause my golden year’s retirement won’t be as enjoyable as it should be!

I only had wished that doctors would said “no cure” but make patients believe that they can help….money is taken from you and it’s so extremely sad !

I wish you the best!

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