Anyone have NET on carotid artery in neck?

I was diagnosed w carotid body paraganglioma on right carotid neck artery, w too many symptoms for the size and likely being benign, so Mayo did full body CT w contrast and found culprit: 2 tumors on left kidney. Those have been 100% removed w good margins and I'm healing well, minus alot of those symptoms! But in Spring, carotid artery tumor will come off back burner. Anyone else have one of these, where they've done more than watchful waiting?