Anyone have hypoparathyroidism or non-working parathyroid glands?

Posted by ripley @ripley, 10 hours ago

I am currently hyper-parathyroid, which has caused my osteoporosis to get much worse. I had unsuccessful surgery last year, as the surgeon could only locate two parathyroid glands, both appearing normal. He removed one gland that was encased in scar tissue from a previous thyroid surgery. He repositioned the 2nd gland.

I recently had a more sensitive scan that found a 3rd parathyroid gland that is "highly suspicious" for an adenoma. However, my new surgeon has concerns about removing it. He said surgery could cause my remaining parathyroid gland to stop working, leaving me with no working parathyroid gland. He said that would be very bad and I could end up worse than I am now. I have an appt with a different surgeon for a 2nd opinion this week.

Looking to connect with anyone who is hypoparathyroid, or has no working parathyroid glands. How are you treating the condition and what is life like for you?

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