Anyone have a positive Cologuard test?

Posted by dazlin @dazlin, Nov 21, 2019

My test results came back positive. I asked what did it show, because they test for 11 different cancers or categories. They said, it just states either negative or positive for cancer. I had problems a few years back and did a colonoscopy, which came back ok. Now this!! I'm reading theres a 13 percent chance of false positive. Right now I'm extremely distraught about having to go through all Consults, tests, and dreaded preps. Orders are in for Consult with gastro, but they're booked out through January or February in Mayo. I have not received any notice for appointment yet. Dont know what to think or do.

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@dlc69

I also had a positive Cologuard and just had my first colonoscopy yesterday at the age of 52. The doctor told me that there is a medium sized polyp at the base of my appendix that couldn't be removed safely due to risk of perforation and the fact that they cannot be sure that the polyp doesn't extend into the appendix. So I now I am waiting to hear the result of the biopsy. The doctor said that the polyp needs to be removed even if its just benign or precancerous (which I thought was the same thing) either by a highly skilled gastro surgeon or via an appendectomy. He said he'd be surprised if its cancerous but that would be a different conversation. I'm so confused and upset by all this.

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My diagnosis sounds like exactly what you went thru. Had a colonoscopy last week after a positive colorguard. Flat polyp at appendix and colon. Scraped polyp for biopsy. Waiting for results.
Thanks for sharing your journey.

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@medicar

I am a 53 year-old-female. I had a routine Cologuard test come back positive in Dec. 2022. It was recommended to follow up with a colonoscopy. I had told myself it was probably positive from possibly hemorrhoid. The colonoscopy had a positive finding for a 60mm mass in my cecum. The biopsy confirmed cancer adenocarcinoma. I am awaiting further testing for Lynch Syndrome and will meet with the surgeon next week.

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@medicar, while I'm very sorry you were diagnosed with cancer, I'm glad that it was caught early because of screening.

Have you testing positive for Lynch? How did the meeting with the surgeon go? What are next steps?

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That is the MAJOR problem with the Cologuard tests!!!. You may have a false negative or false positive reading so how good is that if your potential life depends on it? From what I have read, the test cannot differentiate between benign or cancerous polyps present so either way I believe it is prudent to get a colonoscopy. The last time I used magnesium citrate in ginger ale along with laxatives for a prep, but for whatever reasons, somehow the magnesium citrate got contaminated and it has been pulled off the shelves everywhere.
I had a colonoscopy two weeks ago and since I am now 73, this will be my last one unless something unusual comes up. This round I ended up using a split prep of Miralax and Gatorade zero (flavor of glacier cherry which has no red coloring) along with Ducolax and, overall, the prep went better than expected. My major problem with these preps is that I am not a person who drinks a lot of fluids and getting 64 ounces down in a limited period of time is the real challenge for me. This time I drank 4 8-oz. glasses of the mixture in the evening and the same amount in the early morning since my appt. was at 2 p.m.
Fortunately, for me, this time I had zero polyps. I feel good that I got it done because if I had polyps presumably the dr. could have removed them successfully since I had my last colonoscopy 9 years ago. Even if one has cancerous polyps that are relatively small, they can be removed before they proliferate and cause life threatening problems.
I hope you good forward in getting the colonoscopy to see what is really happening and get it taken care of promptly. Best of luck to you!

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I am a 53 year-old-female. I had a routine Cologuard test come back positive in Dec. 2022. It was recommended to follow up with a colonoscopy. I had told myself it was probably positive from possibly hemorrhoid. The colonoscopy had a positive finding for a 60mm mass in my cecum. The biopsy confirmed cancer adenocarcinoma. I am awaiting further testing for Lynch Syndrome and will meet with the surgeon next week.

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I had a positive Cologuard test and had a colonoscopy at age 84. The doctor found a small, benign looking polyp which came back negative. The doctor told me that he doesn't think I need to bother with further Cologuard tests, probably because of my age (still 84).

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@dlc69

I also had a positive Cologuard and just had my first colonoscopy yesterday at the age of 52. The doctor told me that there is a medium sized polyp at the base of my appendix that couldn't be removed safely due to risk of perforation and the fact that they cannot be sure that the polyp doesn't extend into the appendix. So I now I am waiting to hear the result of the biopsy. The doctor said that the polyp needs to be removed even if its just benign or precancerous (which I thought was the same thing) either by a highly skilled gastro surgeon or via an appendectomy. He said he'd be surprised if its cancerous but that would be a different conversation. I'm so confused and upset by all this.

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Interestingly when I had a CAT scan several years ago since I had lots of digestive problems the radiologist picked up that I had a mucinous neoplasm of the appendix incidentally. My gastroenterologist at the time advised me that these neoplasms are precancerous and need to be removed so I ended up having an appendectomy. Fortunately when they removed it it was self-contained and had no cancer cells. I was told and read that they are fairly rare but when it happens to you statistics don't matter. I hope by now you have finalized a diagnosis and feel much better.

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@bjmc

I’m a 52yo woman. I’ve had symptoms (constipation, bloated) for approx 5 months. I took a cologuard test because I was told that it would be a couple of months before they could get me in for a colonoscopy. ( I live in MT.). My test came back positive 01/05. I’m scheduled for a colonoscopy 01/18. Is there a chance it could still be precancerous even though I’ve had symptoms for a few months? I’m scared.

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The test is not 100% accurate. My Cologuard test results came back negative but after completing that test my doctor suggested I have a colonoscopy which I did. The colonoscopy showed stage 4 colon cancer. I had no symptoms.

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I just got my postitive Cologuard test result today. I am an asian male 49 years old. I do not have any symptoms, but did the test because my wife did it a few weeks back. Since this morning, it is a dreaded long day. It came as a suprised and I was not ready for that at all. I am waiting unil Tuesday to make an appintment for a Colonoscopy. Waiting is a exhuasting. I know it is crazy to say it...but whenver I see my wife and two young kids (one is just 10 years), I am literaly crying without showing it.

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@cinj

Hi bjmc,

I am 53yo female and had symptoms for much longer than 5mos. After dr visits and an ER visit, X-rays, and ct scan I was told I had an impacted bowel and a guess that it could be IBS. Decided to go to a GI dr and she also guessed IBS, but said since I had never had a colonoscopy I should get one. If you have not had a colonoscopy let me relieve your fears, it’s nothing. The idea of it is far worse than the process. But for me I woke up with the news that the dr could not complete the colonoscopy because of a tumor blocking my sigmoid colon. I am 9 weeks out from a Colectomy where they removed 12” of my sigmoid colon. I had a stage 2 adenocarcinoma. No cancer was found in my lymph nodes. I did not have to do any chemo or radiation. I will have to get tests every 6 months for awhile and colonoscopies more frequently than most people. But I’ll take it! I am healing well and cannot believe how much better I feel and how long I actually lived with the symptoms.
It is scary. But you are ahead of the game already. Try and have a positive attitude because that does help. Expect the best outcome and know that you can get through whatever it is you need to do.

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Thank you for your reply. It was really helpful. Your story was exactly what I needed to hear right now. Thank you.

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@bjmc

I’m a 52yo woman. I’ve had symptoms (constipation, bloated) for approx 5 months. I took a cologuard test because I was told that it would be a couple of months before they could get me in for a colonoscopy. ( I live in MT.). My test came back positive 01/05. I’m scheduled for a colonoscopy 01/18. Is there a chance it could still be precancerous even though I’ve had symptoms for a few months? I’m scared.

Jump to this post

Hi bjmc,

I am 53yo female and had symptoms for much longer than 5mos. After dr visits and an ER visit, X-rays, and ct scan I was told I had an impacted bowel and a guess that it could be IBS. Decided to go to a GI dr and she also guessed IBS, but said since I had never had a colonoscopy I should get one. If you have not had a colonoscopy let me relieve your fears, it’s nothing. The idea of it is far worse than the process. But for me I woke up with the news that the dr could not complete the colonoscopy because of a tumor blocking my sigmoid colon. I am 9 weeks out from a Colectomy where they removed 12” of my sigmoid colon. I had a stage 2 adenocarcinoma. No cancer was found in my lymph nodes. I did not have to do any chemo or radiation. I will have to get tests every 6 months for awhile and colonoscopies more frequently than most people. But I’ll take it! I am healing well and cannot believe how much better I feel and how long I actually lived with the symptoms.
It is scary. But you are ahead of the game already. Try and have a positive attitude because that does help. Expect the best outcome and know that you can get through whatever it is you need to do.

REPLY
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