Anyone have a positive Cologuard test?

Posted by dazlin @dazlin, Nov 21, 2019

My test results came back positive. I asked what did it show, because they test for 11 different cancers or categories. They said, it just states either negative or positive for cancer. I had problems a few years back and did a colonoscopy, which came back ok. Now this!! I'm reading theres a 13 percent chance of false positive. Right now I'm extremely distraught about having to go through all Consults, tests, and dreaded preps. Orders are in for Consult with gastro, but they're booked out through January or February in Mayo. I have not received any notice for appointment yet. Dont know what to think or do.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

@anna7

Marcia I’ll be thinking of you on the 22nd!

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anna7
Thank you. I am not a happy camper!

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@marcia115

Carolt1551
I am so sorry for you, this is what I am exactly afraid of, I go for a colonoscopy on May 22nd.
I have had a lot of problems with my bowels, I am so nervous, I just finished radiation for
breast cancer. I really need this! how many chemo's do you need.?
Marcia115

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Marcia I’ll be thinking of you on the 22nd!

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Howdy ,Just got my failing grade on a S***y test.Hang in there!! Dont fear the future,handle it.We tested positive,we can not change that ,we can only deal with it ,with dignity,humor and courage. Hug to ya brother or sister! Its gonna be ok in the end( pun intended).

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Carolt1551
I am so sorry for you, this is what I am exactly afraid of, I go for a colonoscopy on May 22nd.
I have had a lot of problems with my bowels, I am so nervous, I just finished radiation for
breast cancer. I really need this! how many chemo's do you need.?
Marcia115

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@marcia115

dazlin, mine also came back positive-- I am 82 and now mayo says I have to
have a colonoscopy, I heard it is very dangerous when your my age, why can't they
just give a CT scan, they would show something. if that shows something then have the
other, I was going to ask my doctor, I am to have it next month.
Does anyone have a feedback on my problem? I just finished radiation for breast cancer,
I have had problems with my bowels for years. but Cologuard saw blood.

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I'm 72 had a colorquard come back positive then had a colonoscopy that came back bad. Had my surgery to remove part of my colon remove. Found cancer in my lymph nodes so now starting chemo. Sucks

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@msrhray

My first cologuard test has come back positive and I am to see the gastro 4/16- I can totally relate to what you were feeling. TY for sharing. Yours is the first post I came to since my results came back today.

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msrhray,
I had the same, my cologuard test came back positive, but I don't no
how to read it, the green line says negative with a % sign and below it
is the red line that says positive with a % sign, I just don't understand it,
how do you figure it out?
marcia115

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anna, I just looked at the cologuard results again---the top in green says negative with a
66% negative.
then below that is red says positive, 45% negative finding. no one has explained this
to me but the nurse just said they found blood. I wrote a note to my doctor thinking I should hear something today.
thank you for your support.
Marcia115

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@marcia115

anna7 Thank you, made me feel a lot better, I don't understand why
the nurse said blood, I am going to re-read her notes. you made me feel
better after I read your reply, My last one was 11 years ago.
Marcia115

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Marcia , definitely re-read the notes and ask doctor if you have more questions.
When I went for my colonoscopy there were others there for the procedure who were 75 and over, some well into their eighties.
This is a great place to find support, please keep us posted on how things are going.

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anna7 Thank you, made me feel a lot better, I don't understand why
the nurse said blood, I am going to re-read her notes. you made me feel
better after I read your reply, My last one was 11 years ago.
Marcia115

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@marcia115

dazlin, mine also came back positive-- I am 82 and now mayo says I have to
have a colonoscopy, I heard it is very dangerous when your my age, why can't they
just give a CT scan, they would show something. if that shows something then have the
other, I was going to ask my doctor, I am to have it next month.
Does anyone have a feedback on my problem? I just finished radiation for breast cancer,
I have had problems with my bowels for years. but Cologuard saw blood.

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Marcia, I had a positive Cologuard and was absolutely terrified. I’m 75 and also a retired nurse, (a little knowledge isn’t always best thing!) worried about my age etc. and afraid of the colonoscopy just as you are. I hadn’t had one in years because of my fear. Cat Scans are not nearly as reliable in finding small polyps etc, much better to have the colonoscopy.
I had mine last week and have to say it wasn’t nearly as bad as I expected and I wondered why I had been so afraid. I know they will take great care of you, and afterwards you’ll feel it wasn’t nearly as bad as you anticipated.
Mine revealed two small polyps which were removed, and I’m relieved that I went ahead and did it. I was also told that the Cologuard doesn’t reveal if it shows blood, mine just said it was positive, no further details are given.

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