Anyone have a positive Cologuard test?

Posted by dazlin @dazlin, Nov 21, 2019

My test results came back positive. I asked what did it show, because they test for 11 different cancers or categories. They said, it just states either negative or positive for cancer. I had problems a few years back and did a colonoscopy, which came back ok. Now this!! I'm reading theres a 13 percent chance of false positive. Right now I'm extremely distraught about having to go through all Consults, tests, and dreaded preps. Orders are in for Consult with gastro, but they're booked out through January or February in Mayo. I have not received any notice for appointment yet. Dont know what to think or do.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

I found it helpful reading the comments from this group after I got a positive Cologuard test. I wanted to contribute. After my positive Cologuard I had a colonoscopy and had 2 small polyps. No cancer, no pre-cancerous. Just benign. It was easy to get caught up in the bad thoughts, but I am glad it got me to take a colonoscopy. And luckily there was nothing serious.

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The way Cologuard advertise the test is very misleading. This is pasted directly from the first statement on their current website...

"Cologuard finds 92% of all colon cancers. Cologuard is the first and only test that looks for both abnormal DNA and blood in stool. Other tests only detect blood".

Many read this as a positive test means you have a 92% chance of having colon cancer. At least I did, as did my wife. Thus we are still worried despite this site greatly helping the worry level with so many NOT having cancer but a positive Cologuard test.

In my wife's case where we were not notified of the positive Cologuard until 18 months later, I would think the prescribing Dr. who dropped the ball, better hope no cancer is found. If so, it would seem that any polyps or cancer would have had 18 additional months to grow undetected. I assume that is a long time with colon cancer.

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My wife age 61 in FL went to a new Doc in Fl about 18 months ago. She had the usual blood work, chest E-Ray and Cologuard test. She went back the following week and all tests were negative but Cologuard test not yet received. They were to call when results came in. About 2 months late my wife realized she had not heard about colorguard results and called the Doctors office and told they could not locate them but would call back. They never did and she forgot about and I assumed they must have been negative. Two months ago she goes for OB/GYN check up and was having issues with abdominal pain, and various symptoms related to female problems and a compete hysterectomy was planned for 7/3/23. The OB/GYN's office sent for medical records from the Doctors office that did the cologuard and in my wife's records found a positive cologuard test from about 18 months back. That Doc that did that had the cologuard records all the time then called yesterday (a trying to CYA call) and said she had called my wife and told her the result were positive which was a lie, as you do not forget a call like that. Nor would I, as my wife would surely have told me. Anyway, OB?GYN surgery postposed awaiting a colonscopy. Since symptoms of female issues can be similar to colon cancer issues we are obviously concerned. How much of a problem could that 18 month delay cause if it is cancer? We are assuming very big since early detection is the biggest life saver for this type of cancer. Very concerned couple!

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@gmaha67

Hello. I had a positive cologuard come back positive. Having colonoscopy done this Monday. A little worried. My last cologuard was negative 3 years ago.

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I had abnormal Cologard test at 66. I had never had a screening colonoscopy. I was scared to death about the result. Had Colonoscopy and they found some polyps and minor hemorrhoid. Don’t panic, in most cases it’s not a cancer issue.

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@mikosmommy

I had a false positive cologuard. My first, at 55, was negative. The second, at 58, was positive. That result I received via email. There was some small print that basically said 4% of positive cologuard results = CRC. The rest (51%) are either polyps (benign or pre-cancerous) or "no colorectal neoplasia" (45%). My colonoscopy found nothing at all. From the positive result to the procedure was exactly one month.

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I know your message is old but this made me feel better. I had a positive test a couple months ago and I have a colonoscopy on the 6/20. Good to know only 4% = CRC🙏🏻

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I had a positive Cologuard test and had a colonoscopy at age 84. A small polyp was found and removed. It was benign.

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Feel like doing the Colorguard and then a colonoscopy makes it double stressful

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@hohnster

My thoughts exactly. The reason I got Cologuard was to avoid a colonoscopy. Now I’m scheduled to have done next week.

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same thing with me. I have to have one in 3 weeks, I am 82 and not to happy about
this.
marcia115

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@brownsf

I got positive results. I called cologuard , expecting to find out more details than just one word (“positive”). They said my doctor received more details so to contact him. My doctor sent me what he got and it was exactly the same-one word. I especially was interested to find out if the positive result was from detected blood or from dna, which Cologuard is supposed to find. Apparently Cologuard has a lot more information but doesn’t release it to patients..or doctors. The next step should be a colonoscopy , which I was hoping to avoid with the Cologuard. The colonoscopy found two polyps which were removed. I’ll need another colonoscopy in 1-3years. I won’t bother with Cologuard again.

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My thoughts exactly. The reason I got Cologuard was to avoid a colonoscopy. Now I’m scheduled to have done next week.

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@brownsf

I got positive results. I called cologuard , expecting to find out more details than just one word (“positive”). They said my doctor received more details so to contact him. My doctor sent me what he got and it was exactly the same-one word. I especially was interested to find out if the positive result was from detected blood or from dna, which Cologuard is supposed to find. Apparently Cologuard has a lot more information but doesn’t release it to patients..or doctors. The next step should be a colonoscopy , which I was hoping to avoid with the Cologuard. The colonoscopy found two polyps which were removed. I’ll need another colonoscopy in 1-3years. I won’t bother with Cologuard again.

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Agree. Would not do Colorguard again. Would just do a colonoscopy. Also would not do again if there were negative results from Colorguard and then something positive was found.
Just go with the colonoscopy.

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