Anyone have a positive Cologuard test?

Posted by dazlin @dazlin, Nov 21, 2019

My test results came back positive. I asked what did it show, because they test for 11 different cancers or categories. They said, it just states either negative or positive for cancer. I had problems a few years back and did a colonoscopy, which came back ok. Now this!! I'm reading theres a 13 percent chance of false positive. Right now I'm extremely distraught about having to go through all Consults, tests, and dreaded preps. Orders are in for Consult with gastro, but they're booked out through January or February in Mayo. I have not received any notice for appointment yet. Dont know what to think or do.

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@colesnotknappin

I received notice on Saturday that I had a positive Cologuard and have been struggling with horrible thoughts ever since. I cant seem to calm my mind or worry and am just a mess! I know I shouldnt jump to any conclusions yet but its so hard not to. What if I am one of the unlucky ones? I am 45 with no symptoms. I have an appt with the dr tomorrow to talk about scheduling a colonoscopy but I just need some reassurance. Its hard to function and work and take care of a family and household with all these horrible thoughts running through my mind. I wish I hadnt done the Cologuard and did the colonoscopy instead. I wouldve saved myself so much anguish and sleepless nights. It does help to read through all these comments though. I have gone to it several times since Saturday to try and make myself feel better!

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I received news of a positive test in July as well. I did my first test five years prior and it was negative. I have a colonoscopy scheduled in two weeks. I've been trying really hard not to worry so I keep reading everything I can get my hands on that would help ease my worries. I too have had no symptoms and find myself dreading every trip to the bathroom yet always take a good hard look before I flush! lol If anything, the positive test has forced me to get a colonoscopy at 56.... and if the results come back with little to worry about then the positive Cologuard served its purpose with me. Thanks for your posts about your experience... it has made me feel better going into the procedure. So glad yours came back just fine. 🙂

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In reply to @colleenyoung "Happy dance!" + (show)
@colleenyoung

Happy dance!

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Soooooooo relieved! And a new found appreciation for being healthy!

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@colesnotknappin

Hello and thanks for checking in. I just completed my colonoscopy yesterday. Wow that was an emotional journey for me! Thinking I might wake up to hearing I have cancer thanks to the cologuard results. But thank GOD it was a false positive! My dr said he hates the cologuard tests. I wish I wouldve just went straight for the colonoscopy, it wouldve saved days and days of severe anxiety and mental breakdowns.

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Happy dance!

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@colleenyoung

@colesnotknappin, have you had the colonoscopy? How are you doing?

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Hello and thanks for checking in. I just completed my colonoscopy yesterday. Wow that was an emotional journey for me! Thinking I might wake up to hearing I have cancer thanks to the cologuard results. But thank GOD it was a false positive! My dr said he hates the cologuard tests. I wish I wouldve just went straight for the colonoscopy, it wouldve saved days and days of severe anxiety and mental breakdowns.

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@colesnotknappin

I received notice on Saturday that I had a positive Cologuard and have been struggling with horrible thoughts ever since. I cant seem to calm my mind or worry and am just a mess! I know I shouldnt jump to any conclusions yet but its so hard not to. What if I am one of the unlucky ones? I am 45 with no symptoms. I have an appt with the dr tomorrow to talk about scheduling a colonoscopy but I just need some reassurance. Its hard to function and work and take care of a family and household with all these horrible thoughts running through my mind. I wish I hadnt done the Cologuard and did the colonoscopy instead. I wouldve saved myself so much anguish and sleepless nights. It does help to read through all these comments though. I have gone to it several times since Saturday to try and make myself feel better!

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@colesnotknappin, have you had the colonoscopy? How are you doing?

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Yes, mine came back positive. Had the dreaded colonoscopy and get removed 5 polyps that were tested and were non-cancerous at this point. It is difficult to calm your mind. Take it one day at a time. I would suggest you get the colonoscopy.

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Hi! I did a cologuard test back in December of 2022. It came back negative! In March I had surgery to remove what I thought was hemorrhoids. It turned out to be anal cancer. The worst day of my life was waking up from surgery and my husband telling me I had cancer. I have gone through chemo and radiation which was the hardest and toughest thing I have ever done! I survived and will be getting my petscan in 10 days to show I am cancer free! I am praying of course as they say my chances are 65/35% chance they got it all! I know this is very scary for you! Praying your colonoscopy shows no cancer but please know there is life after cancer!

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I received notice on Saturday that I had a positive Cologuard and have been struggling with horrible thoughts ever since. I cant seem to calm my mind or worry and am just a mess! I know I shouldnt jump to any conclusions yet but its so hard not to. What if I am one of the unlucky ones? I am 45 with no symptoms. I have an appt with the dr tomorrow to talk about scheduling a colonoscopy but I just need some reassurance. Its hard to function and work and take care of a family and household with all these horrible thoughts running through my mind. I wish I hadnt done the Cologuard and did the colonoscopy instead. I wouldve saved myself so much anguish and sleepless nights. It does help to read through all these comments though. I have gone to it several times since Saturday to try and make myself feel better!

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@kcac

My wife age 61 in FL went to a new Doc in Fl about 18 months ago. She had the usual blood work, chest E-Ray and Cologuard test. She went back the following week and all tests were negative but Cologuard test not yet received. They were to call when results came in. About 2 months late my wife realized she had not heard about colorguard results and called the Doctors office and told they could not locate them but would call back. They never did and she forgot about and I assumed they must have been negative. Two months ago she goes for OB/GYN check up and was having issues with abdominal pain, and various symptoms related to female problems and a compete hysterectomy was planned for 7/3/23. The OB/GYN's office sent for medical records from the Doctors office that did the cologuard and in my wife's records found a positive cologuard test from about 18 months back. That Doc that did that had the cologuard records all the time then called yesterday (a trying to CYA call) and said she had called my wife and told her the result were positive which was a lie, as you do not forget a call like that. Nor would I, as my wife would surely have told me. Anyway, OB?GYN surgery postposed awaiting a colonscopy. Since symptoms of female issues can be similar to colon cancer issues we are obviously concerned. How much of a problem could that 18 month delay cause if it is cancer? We are assuming very big since early detection is the biggest life saver for this type of cancer. Very concerned couple!

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Wondering if your wife received a letter from Colorguard saying that her test results were positive. know that I did. And made plans for a colonoscopy. It was my understanding that my primary care doctor received the notification also however they did not notify me of the positive test results.
Always good to follow up for yourself.
I don't follow that no news is good news.
Follow up myself.
Hope all goes well.

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@brucenc

I had abnormal Cologard test at 66. I had never had a screening colonoscopy. I was scared to death about the result. Had Colonoscopy and they found some polyps and minor hemorrhoid. Don’t panic, in most cases it’s not a cancer issue.

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Terrible that we try a test that to me Cologuard is inaccurate. Then we have to go through the colonoscopy .

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