Anyone have a positive Cologuard test?

Posted by dazlin @dazlin, Nov 21, 2019

My test results came back positive. I asked what did it show, because they test for 11 different cancers or categories. They said, it just states either negative or positive for cancer. I had problems a few years back and did a colonoscopy, which came back ok. Now this!! I'm reading theres a 13 percent chance of false positive. Right now I'm extremely distraught about having to go through all Consults, tests, and dreaded preps. Orders are in for Consult with gastro, but they're booked out through January or February in Mayo. I have not received any notice for appointment yet. Dont know what to think or do.

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Profile picture for dlc69 @dlc69

I also had a positive Cologuard and just had my first colonoscopy yesterday at the age of 52. The doctor told me that there is a medium sized polyp at the base of my appendix that couldn't be removed safely due to risk of perforation and the fact that they cannot be sure that the polyp doesn't extend into the appendix. So I now I am waiting to hear the result of the biopsy. The doctor said that the polyp needs to be removed even if its just benign or precancerous (which I thought was the same thing) either by a highly skilled gastro surgeon or via an appendectomy. He said he'd be surprised if its cancerous but that would be a different conversation. I'm so confused and upset by all this.

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@dlc69 Any updates?

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Profile picture for pops74 @pops74

I did a Cologuard and received a positive result June 10. I see the Dr on July 31 I assume to get colonoscopy scheduled. I am curious I had a CT scan with contrast in August of last year for kidney stone issue. In the report it indicates that the bowel appears normal. This does provide some relief I have to admit.should it? I am pretty scared about all this as well. It’s hard not to think about.

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@pops74
Update on colonoscopy?

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Profile picture for klesab @klesab

Thank you for your post and update. I had a negative test a little over 3 years ago and a positive test this week. Luckily I have my scope next week but I’m terrified.

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@klesab
Any updates?

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Profile picture for jst1ech61 @jst1ech61

@johnwilliamson
I just did my cologuard test and it came back with abnormal results. So I’m still numb from reading that online. I was told my results were sent to my Dr that ordered it and that I will most likely get a call from him to schedule an appt with gastroenterologist.

It’s been only 4 days since I got the results and waiting for Dr to call before end v of week. It it’s Wednesday. If I get no call then I will call him. My insurance allows for me to make these kind of appts if there is a legitimate reason, I don’t need a referral from my Dr. so I am not allowing myself to be terrified about the results, which is very hard to do.

I’ve already told my daughter and she’s been very positive. She we don’t need to worry until we need to worry. I agree. I try to be very practical but finding my nerves are getting a little stretched.

I’ve read what I could that’s available to read. We don’t have a history of cancer in our family.

I haven’t until just recently had blood in my stool. But I also have hemorrhoids which I’ve been told can give false positives. I’ve had blood in my stool on and off over the years but I’ve given that over to a large bowel movement or my hemorrhoids or too much wiping because of diarrhea but never cancer.

So I’m nervous. I know they’ve said it could just be polyps but whatever the case may be the bottom line is that it came back “abnormal”.

I am 63. I will be doing all I can do to fight it if it turns out that I need too. But I’m praying I don’t. I totally agree about being active on your part to get better. I hope all is well with you.

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@jst1ech61
Any update on colonoscopy?

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Yes I had 2 positive colon guard test. After the 1st positive, they sent another test kit to re-do the test; it also came back positive. (I had just hit my 5 year mark from throat cancer in Dec-2025, so I was very worried). Colonoscopy removed 4 polyps, 3 small one a little larger and all non-cancerous. Told to come back in 5 years for the next colonoscopy. I am still breathing a sigh of relief. Gastro doc also said no more Colonguard test for me.

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Yes, i had a positive Cologuard result. i went for a colonoscopy 4 weeks ago. i had 15 polyps and was diagnosed with Familial adenomatous poliosis syndrome. still researching and trying to learn about it

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Profile picture for jst1ech61 @jst1ech61

@johnwilliamson
I just did my cologuard test and it came back with abnormal results. So I’m still numb from reading that online. I was told my results were sent to my Dr that ordered it and that I will most likely get a call from him to schedule an appt with gastroenterologist.

It’s been only 4 days since I got the results and waiting for Dr to call before end v of week. It it’s Wednesday. If I get no call then I will call him. My insurance allows for me to make these kind of appts if there is a legitimate reason, I don’t need a referral from my Dr. so I am not allowing myself to be terrified about the results, which is very hard to do.

I’ve already told my daughter and she’s been very positive. She we don’t need to worry until we need to worry. I agree. I try to be very practical but finding my nerves are getting a little stretched.

I’ve read what I could that’s available to read. We don’t have a history of cancer in our family.

I haven’t until just recently had blood in my stool. But I also have hemorrhoids which I’ve been told can give false positives. I’ve had blood in my stool on and off over the years but I’ve given that over to a large bowel movement or my hemorrhoids or too much wiping because of diarrhea but never cancer.

So I’m nervous. I know they’ve said it could just be polyps but whatever the case may be the bottom line is that it came back “abnormal”.

I am 63. I will be doing all I can do to fight it if it turns out that I need too. But I’m praying I don’t. I totally agree about being active on your part to get better. I hope all is well with you.

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@jst1ech61 How did your colonoscopy go?

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Profile picture for jellybean25 @jellybean25

I am 47 female and had Cologuard test positive result today for the first time. Never had colonoscopy either before. I started searching everything online what could cause positive result, I learned it could be certain medications and foods that are possible causes. I also found out that your doctor would give you instructions on what not to eat before this type of test. Long story short, some of the things I take and ate when I did the test was high dose of NSAID, Iron supplement that I take everyday and food that contain pork blood (a delicacy). My doctor never gave me instructions to my surprise so I don’t know if these things may have caused the positive result. Thank you.

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@jellybean25, have you been able to talk to your doctor about the positive Cologuard test? What is the next step for you?

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Profile picture for jellybean25 @jellybean25

I am 47 female and had Cologuard test positive result today for the first time. Never had colonoscopy either before. I started searching everything online what could cause positive result, I learned it could be certain medications and foods that are possible causes. I also found out that your doctor would give you instructions on what not to eat before this type of test. Long story short, some of the things I take and ate when I did the test was high dose of NSAID, Iron supplement that I take everyday and food that contain pork blood (a delicacy). My doctor never gave me instructions to my surprise so I don’t know if these things may have caused the positive result. Thank you.

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@jellybean25 you are right. Certain foods and medications need to be stopped before doing the test as they could affect the result. The food and medications you mentioned could have been the cause of your positive test. Most kits give you instructions on what you should avoid before taking the test, but your doctor definitely should have told you.

But I wouldn’t assume your Cologuard test was positive because of what you ate, although that does seem to be the reason. Your doctor would be the best person to determine that.

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Profile picture for jellybean25 @jellybean25

I am 47 female and had Cologuard test positive result today for the first time. Never had colonoscopy either before. I started searching everything online what could cause positive result, I learned it could be certain medications and foods that are possible causes. I also found out that your doctor would give you instructions on what not to eat before this type of test. Long story short, some of the things I take and ate when I did the test was high dose of NSAID, Iron supplement that I take everyday and food that contain pork blood (a delicacy). My doctor never gave me instructions to my surprise so I don’t know if these things may have caused the positive result. Thank you.

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@jellybean25
I did so I had a colonoscopy. At 70 it was the best thing to do.

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