Anyone have a positive Cologuard test?

Posted by dazlin @dazlin, Nov 21, 2019

My test results came back positive. I asked what did it show, because they test for 11 different cancers or categories. They said, it just states either negative or positive for cancer. I had problems a few years back and did a colonoscopy, which came back ok. Now this!! I'm reading theres a 13 percent chance of false positive. Right now I'm extremely distraught about having to go through all Consults, tests, and dreaded preps. Orders are in for Consult with gastro, but they're booked out through January or February in Mayo. I have not received any notice for appointment yet. Dont know what to think or do.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

@coolibrarian

I received news of a positive test in July as well. I did my first test five years prior and it was negative. I have a colonoscopy scheduled in two weeks. I've been trying really hard not to worry so I keep reading everything I can get my hands on that would help ease my worries. I too have had no symptoms and find myself dreading every trip to the bathroom yet always take a good hard look before I flush! lol If anything, the positive test has forced me to get a colonoscopy at 56…. and if the results come back with little to worry about then the positive Cologuard served its purpose with me. Thanks for your posts about your experience… it has made me feel better going into the procedure. So glad yours came back just fine. 🙂

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VERY SHORT VERSION :
I took a Cologuard test because I liked it wasn’t intrusive. I had previous gone through at least 2 other colonoscopies that were negative in my life before…

Cologuard test to me is nothing but false information,
Can’t even believe FDA approved it! They use statistics as part of the test I took that came back positive. Had to go for a colonoscopy and it was negative.

Cologuard your lucky I don’t sue you people for what you put me through …….

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The last cologuard test came positive & I had to do a colonoscopy. Isn’t the idea of the test to catch the cancer before it spreads or at least while it’s in a precancerous stage?
Therefore, the test in my view is useless no matter how often you do it, as long as it’s missing it!

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My cologuard came back positive. I assumed they would provide more information than just positive or negative . Wrong! I called the company and they said my doctor would receive a more detailed report. Wrong again! My doctor’s report was exactly the same as mine. They could provide no information, for example, on whether the positive result was detected from DNA or from occult blood. I contacted multiple doctors until finding one who could do a colonoscopy within a reasonable time. I had two polyps removed, one of which was benign and one pre-cancerous. I will not bother with cologuard again. I suggest talking to your primary care doctor about alternative possibilities for a colonoscopy if your insurance would cover this, asking others where they go, and making phone calls.

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@sgbisrat

Stay away from Cologuard! I used the test for the last 9 years every 3 years and a few months ago a full blown colon cancer that spread was discovered the test missed.
Have a second thought before taking the Cologuard route!

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How did you find out then that you had cancer? You recent one was negative??? I had Cologuard tests also for over 19 yrs, but the kast one came back positive, and therefore confirmed by a followup colonoscopy, then surgery for invasive colon cancer.
I think insurance should pay for the Cologuard test more often than 3 years. I was hoping mine would be just a precancer polyps.

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Stay away from Cologuard! I used the test for the last 9 years every 3 years and a few months ago a full blown colon cancer that spread was discovered the test missed.
Have a second thought before taking the Cologuard route!

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Yes I just had one and like you unable to get an appointment till Feb. 2024. I wish someone could explain this.

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@coolibrarian

I received news of a positive test in July as well. I did my first test five years prior and it was negative. I have a colonoscopy scheduled in two weeks. I've been trying really hard not to worry so I keep reading everything I can get my hands on that would help ease my worries. I too have had no symptoms and find myself dreading every trip to the bathroom yet always take a good hard look before I flush! lol If anything, the positive test has forced me to get a colonoscopy at 56…. and if the results come back with little to worry about then the positive Cologuard served its purpose with me. Thanks for your posts about your experience… it has made me feel better going into the procedure. So glad yours came back just fine. 🙂

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Hi @coolibrarian (I LOVE your username. I think librarians are cool), if I have the timeline right you have either had your colonoscopy or are doing the prep for it now. I had my first colonoscopy before I was 50 because of family history with colon cancer. For me it was an assurance to have it.

Just wanted to write to let you know that I’m thinking of you and am here if you have questions or just want to write.

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@mistscout2013

I had a colonscopy in 03 Was o k Again in 13 Was fine Now I am eighty and tech at clinic thought she was being easy on me so said I should have cologuard. I had seen that little blue and white box marching around the yard and pool and was not too impressed but I caved in anyway. I know I have internal hemorroids and bleed sometimes Not often. But Cologuard test was positive and said it sensed adenoma or colon cancer. Thanks for being real candid about everything which told me nothing specific. Just got to have colonscopy anyway which I should have insisted on in the first place. I am worried and am trying to search on internet and every piece of info I can find to see what my chance of having cancer is. What made it worse is they emailed me and told me but the link only lasted for 24 hrs Considering the test cost 500 to 600 dollars that was not much for my money. My aprn that I had been going to is sick and was in the midst changing to a doctor I had formerly. Getting records changed over and the anxiety it is causing is really nerve wracking. I am crying one day and being bold the next day and hoping I can get scheduled for the colonscopy soon. I will never take or reccomend the colorguard test to anyone.

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mistscout2013 Welcome to Mayo Clinic Connect. I'm sorry you have had a poor experience so far. There seems to be questions about what Medicare or insurance might cover for colon cancer screening.

From the medicare site, they offer this informstion:
https://www.medicare.gov/coverage/colonoscopies
From assurance.com:
"Cologuard is covered for Medicare beneficiaries as a preventive screening under Medicare Parts A and B, so Medicare Advantage plans will also provide coverage under those terms.

However, as Medicare Advantage is offered by private insurance companies approved by Medicare, many plans include extended benefits. For example, some Medicare Advantage plans cover stool DNA tests more frequently than Original Medicare’s three-year requirement, as well as follow-up appointments and tests for those who need it.

Look into your Medicare Advantage plan’s details to see if your policy offers extended stool DNA test benefits, or speak with a trusted agent to find a plan that does."

Personally, the last time I had a colonoscopy, the preparation took a terrible toll on my body, as I am a kidney disease patient, and the medication used took me to my knees, literally and figuratively. It has now been 9 years since that experience, and I know I should get some kind of testing done!

I hope you will let us know you had a false positive in that Cologuard test.
Ginger

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@coolibrarian

I received news of a positive test in July as well. I did my first test five years prior and it was negative. I have a colonoscopy scheduled in two weeks. I've been trying really hard not to worry so I keep reading everything I can get my hands on that would help ease my worries. I too have had no symptoms and find myself dreading every trip to the bathroom yet always take a good hard look before I flush! lol If anything, the positive test has forced me to get a colonoscopy at 56…. and if the results come back with little to worry about then the positive Cologuard served its purpose with me. Thanks for your posts about your experience… it has made me feel better going into the procedure. So glad yours came back just fine. 🙂

Jump to this post

I had a colonscopy in 03 Was o k Again in 13 Was fine Now I am eighty and tech at clinic thought she was being easy on me so said I should have cologuard. I had seen that little blue and white box marching around the yard and pool and was not too impressed but I caved in anyway. I know I have internal hemorroids and bleed sometimes Not often. But Cologuard test was positive and said it sensed adenoma or colon cancer. Thanks for being real candid about everything which told me nothing specific. Just got to have colonscopy anyway which I should have insisted on in the first place. I am worried and am trying to search on internet and every piece of info I can find to see what my chance of having cancer is. What made it worse is they emailed me and told me but the link only lasted for 24 hrs Considering the test cost 500 to 600 dollars that was not much for my money. My aprn that I had been going to is sick and was in the midst changing to a doctor I had formerly. Getting records changed over and the anxiety it is causing is really nerve wracking. I am crying one day and being bold the next day and hoping I can get scheduled for the colonscopy soon. I will never take or reccomend the colorguard test to anyone.

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@colesnotknappin

I received notice on Saturday that I had a positive Cologuard and have been struggling with horrible thoughts ever since. I cant seem to calm my mind or worry and am just a mess! I know I shouldnt jump to any conclusions yet but its so hard not to. What if I am one of the unlucky ones? I am 45 with no symptoms. I have an appt with the dr tomorrow to talk about scheduling a colonoscopy but I just need some reassurance. Its hard to function and work and take care of a family and household with all these horrible thoughts running through my mind. I wish I hadnt done the Cologuard and did the colonoscopy instead. I wouldve saved myself so much anguish and sleepless nights. It does help to read through all these comments though. I have gone to it several times since Saturday to try and make myself feel better!

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I received news of a positive test in July as well. I did my first test five years prior and it was negative. I have a colonoscopy scheduled in two weeks. I've been trying really hard not to worry so I keep reading everything I can get my hands on that would help ease my worries. I too have had no symptoms and find myself dreading every trip to the bathroom yet always take a good hard look before I flush! lol If anything, the positive test has forced me to get a colonoscopy at 56…. and if the results come back with little to worry about then the positive Cologuard served its purpose with me. Thanks for your posts about your experience… it has made me feel better going into the procedure. So glad yours came back just fine. 🙂

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