Anyone experienced bilateral numbness, both facial sides affected ?

Posted by margesil @margesil, 1 day ago

I’ve had PN for the past 4 years, with left leg, foot being most affected. About 2 months ago I noticed that both sides of my face felt like I had novacaine, that has worn half off. It wasn’t hurting, so I tried to ignore it. When I mentioned it to a medical professional, I had varying responses, from TMJ being cause, to it definitely not being that. So down the dreaded Google rabbit hole I went. Of course I found a number of other reasons causing that symptom that truly were concerning, like MS . Anyone relate to this symptom as part of PN?

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Hello @margesil, I know what it feels like to go down the Google rabbit hole trying to figure out what might be going on. I haven't experienced the facial numbness as part of my neuropathy but I have following a few dental appointments so I know it has to be an awful feeling out of the blue. You might want to scan through a few of the discussions on facial paresthesia to see if any are similar to what you are experiencing. Here's a link with the search results that shows the discussions and comments on the topic - https://connect.mayoclinic.org/search/discussions/?search=facial%20paresthesia%20.

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Hello @margesil, I know what it feels like to go down the Google rabbit hole trying to figure out what might be going on. I haven't experienced the facial numbness as part of my neuropathy but I have following a few dental appointments so I know it has to be an awful feeling out of the blue. You might want to scan through a few of the discussions on facial paresthesia to see if any are similar to what you are experiencing. Here's a link with the search results that shows the discussions and comments on the topic - https://connect.mayoclinic.org/search/discussions/?search=facial%20paresthesia%20.

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@johnbishop thanks for the info.
I took a peek, but not great to read , as a person who tends to be an empath. Hard to complain at all when others are suffering so much. If all I have to deal with is sole facial numbness, and stable PN, I will count my blessings.

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I have had idiopathic parallel peripheral neuropathy for about 30 years. I went the first 10 years without a proper diagnosis (restless legs syndrome). I do not believe you would have autonomic nerves under attack after only 4 years. Who knows? Maybe the nerves to the paranasal sinuses have been affected.

I have had these type of attacks for the last 7 years or so and know how ***strange*** these pains and sensations can be.

Just in case, look up other symptoms of autonomic nerve PN to see where else you may have “misplaced” nerve damage. My first “autonomic nerve?” damage was sleep apnea and related heart stoppages. No one will say if this was due to PN, but now I have a pacemaker and I am supposed to sleep with a breathing machine.

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