Anyone else with endometrial carcinosarcoma?

I had minimal spotting in July of 2022 and my primary care doc did a biopsy and I found out I had an aggressive endometrial cancer. Met with gynecology oncologist and had full hysterectomy and that pathology report indicated carcinosarcoma. I was stage 1A but still did 6 rounds of carbo/taxol followed by some brachytherapy. In May I felt a lump in my stomach that indicated a recurrence and had surgery to remove mass and it was successfully removed with negative margins. Unfortunately this cancer just keeps coming back and next round of chemo w herceptin was ineffective and keytruda/lenvima which I was just on had mixed results at best. So I was off to Mayo last week for scans and consult. Scans showed progression and we had great visit talking about next steps. I’m off all treatment now in preparation for next steps- possibly a clinical trial. Throughout all of this, I feel pretty good and have had minimal side effects. I’m on the treadmill almost every day, appetite is good and attitude remains positive and optimistic. I am in a FB group for this cancer with women from all over the world but am always looking to connect with others with this rare aggressive cancer.

@careng9 Welcome to our support group. You will get emotional support and others will share their cancer journeys. Would you like to share more of your journey? As you are now starting at Mayo have you already been seen there and have a treatment plan in place?