Anyone else ME/CFS long/post Covid diagnose as Somatic Illnesses?

Posted by fourleaf @fourleaf, 2 days ago

Akiko Iwasaki "... She sharply rejected views that ME/CFS or post-COVID might not be somatic illnesses."
She gives me HOPE for recovery.

(Note: Original article in German, this is translated link to English)
https://science-apa-at.translate.goog/power-search/17729239753393598891?_x_tr_sl=de&_x_tr_tl=en&_x_tr_hl=de&_x_tr_pto=wapp
August 25, 2025, 12:45 pm
Immunologist: Hope for ME/CFS and post-Covid, research needed

At the International Congress of Immunology (IUIS) in Vienna, immunologist Akiko Iwasaki of Yale University (USA) expressed hope that treatment options can be found for at least some of those affected by conditions such as ME/CFS and long/post-COVID. In an APA interview, she emphasized that the causes must be addressed. She sharply rejected views that ME/CFS or post-COVID might not be somatic illnesses.

Diagnose
APA
Akiko Iwasaki: "Addressing the root causes"
"I'm hopeful that we can find treatment options for at least some of those affected," the renowned scientist said in an APA interview on the sidelines of last week's conference at the Austria Center Vienna, discussing the current state of research. She added that it's important to consider the heterogeneity (diversity) of the diseases in order to be able to develop appropriate treatment options.

"Tragic" cases with the most severe manifestations

Iwasaki also emphasized the potentially extremely severe development of the disease: "It is so tragic that young people take their own lives due to neglect, lack of recognition, research, care, and financial support," said the researcher, referring to severe ME/CFS cases and the use of euthanasia even by very young patients - including in Austria and Germany in the recent past.

(click on link to continue reading)

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Suz | @db72 | 2 days ago

@fourleaf It’s an age old problem and deep frustration that doctors who don’t know or just don’t care will label patients with ME/CFS (and more recently LC) as psychosomatic cases.

Fortunately that is changing.
40 years with ME/CFS here and I was brushed off by plenty of doctors over the years. But thankfully I’ve seen a change and some of my doctors are now even putting Myalgic Encephalomyelitis in my chart. The wheels of progress turn slowly.

sanDGuy | @sandguy | 2 days ago

In reply to @db72 "@fourleaf It’s an age old problem and deep frustration that doctors who don’t know or just..." + (show)

Yes, I wonder if the prevalence of LC (6% of the U.S. population according to some sources) has finally awoken many physicians to the longer-standing reality of M.E./CFS too.
The "psychosomatic" attitude to these diseases is so old-school, and somewhat redolent of the old "hysteria" diagnosis, especially given the preponderance of female patients with this disease.

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