Anyone else have CHEK2 gene mutation? And have had multiple cancers?

The three cancers I have had are lymphoma, penial cancer and chordoma. They found chordoma in my spine and is growing in my brain. They have operated twice taking it from my head with radiation after first operation. I have had all the radiation my head will take. In 2021 was my first operation and radiation which held it to no growth for 3 years then in March 2024 my 2nd operation. June 2024 the cancer had grown 3 times the amount of the last 3 years. Know I am on a experimental injection drug. Time will tell.

Thanks for the update. A rare cancer can add to the frustration. Good that you were able to be properly diagnosed so you can be properly treated. Clearly you’re a strong person. Praying that you beat all three cancers.

The dam spell check it's chordoma cancer.

Sorry to hear about your multi-cancer battle. That ‘s rough. Do you have the CHEK2 mutation? Can you give more detail of your 3 primary cancers? I want to look up your rare cancer. Thank you.

I know your feelings, I am on my 5th round of cancer
I have three different types, this time I have chronometer which 1 in a million people have. I have had 2 brain surgeries and am fighting it again. There is no cure for it after I had radiation on my head twice. Cancer sucks.

I'm truly sorry to hear this. You're in my prayers 🙏. God bless you

I'm very sorry to hear your story. Definitely sounds familiar, unfortunately. My father had prostate cancer but beat it, then 25 yrs later was diagnosed with stage 3 brain cancer. Lived 3 1/2 years afterwards. But my mother's side has all kinds of cancer & have lost everyone on that side except a few cousins. So I guess I'm the mix between the two lol.
I just had a CT scan done this week, Dr was looking for masses due to a tumor marker coming back positive. But nothing was found except a cyst on my ovary. It's not grown since the last time. Anyway, keep your head up. I know it's hard. This too shall pass.
God bless & best wishes for you on your journey.

I have the chek2 mutation as well. I found that out after being dx with triple positive breast cancer. I was told that I should have a colonoscopy every three years I think and keep an eye out for thyroid issues. I do the Signatara testing every three months because I cannot tolerate the AI’s. I understand your frustration, it’s like waiting for a bomb to explode. I am sure I got the mutation from my father as he had prostate, kidney and bladder cancer none of which metastasized all were primary cancers

@kmitch75
I’m sorry to hear of your plight. You’re in my prayers.

Looking for any insight into clinical trails for chek2 mutation resulting in undifferentiated cancer with tumors all over abdomen. Stage 4. Tumors are entwined and enmeshed with organs and can't be cut out. Being treated at MSK...they've done extensive DNA research and can't pinpoint where cancer started.