1. < Breast Cancer

Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

Posted by EJ @elsajohnson, Aug 7, 2018

I am sorry if this is not the right forum. I know ADH is not cancer and this is a breast cancer forum, but I can't find another forum that may be more relevant.

I am wondering if there is anyone who is dealing with ADH or has been diagnosed with ADH that can share their experience. I was diagnosed a month ago. While I am relieved that I don't have cancer, I am confused with the radiology report that shows BI-RAD6 - surgical removal is recommended. I have seen a breast oncology surgeon and I don't think she took me seriously because I don't have cancer. It almost feels like I wasted her time seeing her because I don't have cancer. If ADH is no big deal, why BI-RAD 6 (which i understand is for biopsy proven malignancy). I also read up about ADH online and understand that with ADH, my risk for breast cancer is 4x. Should I not worry about it and just do annual check? Should i see another breast surgeon? Should I see an oncologist? Do I need genetic testing to better understand my risk? I feel like an impostor for even posting this on a breast cancer forum but I am genuinely confused and concerned. Any help will be greatly appreciated.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

maureenmckean | @maureenmckean | May 6, 2023
In reply to @cinzia80 "Hi @maureenmckean , I’m in more or less the same situation. How did the excisional biopsy..." + (show)
@cinzia80

Hi @maureenmckean ,
I’m in more or less the same situation.
How did the excisional biopsy go?

Jump to this post

Biopsy and lumpectomy were fine. They did not find anything further in the lumpectomy luckily

REPLY
maureenmckean | @maureenmckean | May 6, 2023
In reply to @cinzia80 "Thank you for your reply! I hope I’ll have your luck. I’m scheduled to have surgery..." + (show)
@cinzia80

Thank you for your reply! I hope I’ll have your luck.
I’m scheduled to have surgery on May 9th.
How was your recovery from surgery?

Jump to this post

Good luck! It’s so stressful. I felt like my life was on pause until I knew it wasn’t cancer. My recovery was fine. First day or two sore. I could have gone back to work if I had a desk job. I ended up taking a week due to my job.

I will say a prayer and send positive vibes for you on May 9th

REPLY
1 reply
cinzia80 | @cinzia80 | May 5, 2023
In reply to @debbie2721 "I found this information dated for the year 2023." + (show)
@debbie2721

I found this information dated for the year 2023.

Jump to this post

Article of September 2022
On the Mayo Clinic website.
REPLY
debbie2721 | @debbie2721 | May 5, 2023
In reply to @cinzia80 "I’ve found this that probably anwers your question." + (show)
@cinzia80

I’ve found this that probably anwers your question.

Jump to this post

I found this information dated for the year 2023.
REPLY
3 replies
cinzia80 | @cinzia80 | May 4, 2023
In reply to @k7schult "Hello! I have recently been diagnosed with ADH and FEA from a core needle biopsy sample..." + (show)
@k7schult

Hello! I have recently been diagnosed with ADH and FEA from a core needle biopsy sample that was ordered due to a suspicious grouping calcifications found on mammography. I understand that ADH is considered benign but also pre-malignant, so excisional biopsy will be next in the standard protocol of treatment to fully rule out DCIS or invasive cancer. My understanding is that if diagnosed with ADH, a woman has a 7% chance of developing breast cancer (either DCIS or invasive) within 5 years, and a 13% chance within 10 years. I'm trying to understand these numbers more accurately -- does anyone on this thread know if these statistics include women who have undergone the standard treatment -- excisional biopsy and then 20mg of tamoxifen for 5 years -- or does it include the entire population of women with ADH whether or not they have had treatment. I want to get an accurate understanding of how much standard treatment would reduce my risk of developing DCIS or invasive cancer.

Jump to this post

I’ve found this that probably anwers your question.
REPLY
1 reply
resort | @resort | May 2, 2023
In reply to @k7schult "Hello! I have recently been diagnosed with ADH and FEA from a core needle biopsy sample..." + (show)
@k7schult

Hello! I have recently been diagnosed with ADH and FEA from a core needle biopsy sample that was ordered due to a suspicious grouping calcifications found on mammography. I understand that ADH is considered benign but also pre-malignant, so excisional biopsy will be next in the standard protocol of treatment to fully rule out DCIS or invasive cancer. My understanding is that if diagnosed with ADH, a woman has a 7% chance of developing breast cancer (either DCIS or invasive) within 5 years, and a 13% chance within 10 years. I'm trying to understand these numbers more accurately -- does anyone on this thread know if these statistics include women who have undergone the standard treatment -- excisional biopsy and then 20mg of tamoxifen for 5 years -- or does it include the entire population of women with ADH whether or not they have had treatment. I want to get an accurate understanding of how much standard treatment would reduce my risk of developing DCIS or invasive cancer.

Jump to this post

My surgeon told me “it’s high risk benign”. So I had lumpectomy to remove it. No further treatment needed. However, I also have invasive cancer on another breast. So after mastectomy on another breast, I would receive with AI or Tamoxifen. Still going through chemo.

REPLY
cinzia80 | @cinzia80 | May 2, 2023
In reply to @maureenmckean "Sorry for the late reply. After the biopsy found ADH the did a lumpectomy or they..." + (show)
@maureenmckean

Sorry for the late reply. After the biopsy found ADH the did a lumpectomy or they also called it a partial mastectomy. They didn’t find anything further suspicious surprisingly! So I feel like I dodged a bullet for now. Given the small amount of ADH they found the breast surgeon did not recommend tamoxifen. I will be closely monitored every 6 months with mammograms and MRI since ADH puts you at a higher risk for breast cancer. Please let me know how you are doing!

Jump to this post

Thank you for your reply! I hope I’ll have your luck.
I’m scheduled to have surgery on May 9th.
How was your recovery from surgery?

REPLY
1 reply
maureenmckean | @maureenmckean | May 2, 2023
In reply to @cinzia80 "Hi @maureenmckean , I’m in more or less the same situation. How did the excisional biopsy..." + (show)
@cinzia80

Hi @maureenmckean ,
I’m in more or less the same situation.
How did the excisional biopsy go?

Jump to this post

Sorry for the late reply. After the biopsy found ADH the did a lumpectomy or they also called it a partial mastectomy. They didn’t find anything further suspicious surprisingly! So I feel like I dodged a bullet for now. Given the small amount of ADH they found the breast surgeon did not recommend tamoxifen. I will be closely monitored every 6 months with mammograms and MRI since ADH puts you at a higher risk for breast cancer. Please let me know how you are doing!

REPLY
1 reply
cinzia80 | @cinzia80 | May 1, 2023
In reply to @tigerjulie "Glad you posted as I’m in a similar place. Core needle biopsy showing ADH and waiting..." + (show)
@tigerjulie

Glad you posted as I’m in a similar place. Core needle biopsy showing ADH and waiting for my surgical appointment which I assume will be to schedule a surgical biopsy of more tissue. Would love to understand the significance given the ADH. My understanding is that the surgery is more diagnostic than treating.

Jump to this post

Hi @tigerjulie ,
I’m in your situation.
I’ve been scheduled fir a surgical biopsy next week.
After a diagnosis of ADH they want ti rule out the possibility of underlying DCIS or invasive tumors.
How did your surgery go?

REPLY
1 reply
cinzia80 | @cinzia80 | Apr 30, 2023
In reply to @maureenmckean "No advice. I was just diagnosed with ADH Wednesday from a biopsy taken due to suspicious..." + (show)
@maureenmckean

No advice. I was just diagnosed with ADH Wednesday from a biopsy taken due to suspicious micro calcifications. Seeing the breast surgeon Monday. Has anyone had a lumpectomy and they discovered cancer. That’s my main fear is that I do have cancer they just didn’t get a sample of it from the biopsy.

Jump to this post

Hi @maureenmckean ,
I’m in more or less the same situation.
How did the excisional biopsy go?

REPLY
2 replies
View MoreView Less
Please sign in or register to post a reply.