Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

I took have just been told I have ADH after a core needle biopsy. I was sent for an MRI and now I have another biopsy scheduled for July 3rd, for another suspicious area. My surgeon wants to have that biopsied so she knows if she needs to remove that tissue as well. My BI RADS score is a 4 which is so vague. Mammogram biopsy on both breast MRI and now another biopsy. My Brain is all over the place. I'm trying to be strong and not let my family see me falling apart but I'm scared. And I know there is a good chance it's nothing and I'm just over reacting. And Im glad my surgeon is being so through. I just don't know how to mentally keep it together. I'm 53 years old and I am feeling like a frightened child.

I'm not considering a mastectomy. I'm questioning whether it's necessary to have a lumpectomy when my ADH diagnosis was non cancerous. In my research, I found that as little as 20% of women with this diagnosis go on to develope cancer, and that was without doing any preventative strategies such as monitoring with regular mammograms or meds to decrease estrogen production. Even so, the % is even less in the first 5 years. I'm 78 yrs old with no risk factors so I feel unlikely to die from breast cancer. Thoughts?

Are you questioning having the ADH removed or a prophylactic mastectomy?

In a yearly mammogram calcifications were found on my left breast. They were so small that they suggested I have a stereostatic biopsy. It was so small that surgery was suggested to confirm ADH and to see if it was Ductal Carcinoma instu.
I had a lumpectomy and I didn't have DCI.
I was sent to an oncologist and was encouraged to try medication to suppress estrogen. Tamoxifen would have been prescribed but because I have the factor five mutation, tgw doctor prescribed anastrozole. The side effects can be a challenge but I am don't want to deal with cancer.

Have the surgery. It’s really pretty minor in my opinion- and gives you peace of mind

I had a breast ultrasound because of a lump I detected and then a biopsy which resulted in a diagnosis of ADH (non cancerous) and the recommendation was to remove the tumor surgically. The reason was because it was large and that lends increase possibility for detecting cancer.
I was leaning toward going the preventative route with regular mammograms and maybe meds to decrease the production of estrogen, but now I’m not so sure. I have my GYN, the oncologist and my internist all telling me to have the surgery. Any input appreciated.

I am 76, after years of suspicious areas in breast , this November 2022 I was called back for ultrasound & then biopsies , 2 in right breast, 1 in left breast ,radial scars I was told, all benign but had surgery on Mar 9,2023 on right breast and diagnosed with ADH saw oncologist in June who explained risk factors of medication versus just yearly mammograms ,now I’m wondering why when I was in surgery why didn’t they just remove all those atypical areas ?

How funny…my husband is American and dreams every day to come back to the US😅

Oh I didn’t know you were in Italy! Push for a yearly MRI and a yearly mammogram- that is basically how they do it here in the states. So essentially every 6 months you are seen. My husband and I dream of moving to Europe! We have Italy, Malta, and Spain on our wish list

Yes, I’m waiting to see what will be my plan. I honestly would have a double mastectomy if they gave me a chance😒 But here in Italy it looks impossible unless you have a cancer or are positive for BRCA genes😖