Is anybody dealing with an angiosarcoma? My fiancé is 48 and was diagnosed in January. It has been in two different locations already.
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Thank you for your responses,
I am Chuck Park. 78 hrs old. Diagnosed with angiosarcoma cancer in scalp 7-27-22. Removed surgically 8-15-22. Pathology report showed cancer removed completely with close margins. As a precaution did re-excision with wider margins 8-29-22. I have been receiving treatment at the VA Loma Linda, California. The Cancer Board at VA recommend I do radiation treatments. I have not seen an oncologist. I am working on getting an appointment through my primary care VA doctor.
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@chuckp, when will you start radiation?
I had angiosarcoma about 10-12 years ago, and was in my upper chest wall . It is, as you probably have learned,
a cancer of the lining of a blood vessel. And extremely rare. Men who have worked in the manufacturing of certain types of plastic are prone to get it. (I am neither!) There are other causes, & I suggest you research it with Google.
Mine started as a very odd-colored bruise that did not hurt, it disappeared, then reappeared in the same place. My dr. said it was nothing, but I insisted she biopsy it. She finally did, and when results came back, said she had never heard of it! I got a new dr.!
I had surgery to remove it, & had no more trouble with that particular cancer. I am one of the fortunate ones. Good luck with your friend, and learn as much about it as you can.
I also developed mine after breast cancer. My doctor spotted it right away. Had it removed last year . Have Cat Scan every three month since. Clean so far except for a large kidney stone I had to have removed. He believes mine is from all the radiation I had after two procedures for my breast cancer. Have had a total mastectomy after he found it.
Mine was not in breast, it was near my clavical (?) bone.
It was removed by surgery, no other treatment. But…………… I have had numerous medical problems after, including many cancers. Several sarcomas & a second melanoma, pancreatis,
and assorted ills.
Hope we both will be healthy & happy & lucky!
Yes, for sure!
Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance
Does anyone have/or had lung Angiosarcoma. Looking for treatments you may have had. Surgery? Successes, trials?
I moved your post to this existing discussion so you can read the previous posts and get connected by replying to the group.
– Is anybody dealing with an angiosarcoma? https://connect.mayoclinic.org/discussion/angiosarcoma/
Here you can meet @amyqueenof4 @grizz20 @crackerjack @milo1 @mermaid7272 @brinys @chuckp @twinsisty1, who have experience with angiosarcoma.
I'm sorry to hear that the angiosarcoma of the breast has metastacized to your lungs. You ask what treatments people have had for metastatic angiosarcoma. May I ask what treatments have been suggested for you?
Mermaid, I also had a melanoma after surgery. Still doing well now. Scan every three months, hopefully will be every six if I’m clean after my next scan.
I was diagnosed in dec Angiosarcoma in the breast had a mastectomy Jan 26 then was told I stil have more cancer cells so I have to go back in for another surgery feb 9 to remove a margin in breast
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