Is anybody dealing with an angiosarcoma?

Posted by amyqueenof4 @amyqueenof4, Sep 4, 2022

Is anybody dealing with an angiosarcoma? My fiancé is 48 and was diagnosed in January. It has been in two different locations already.

Interested in more discussions like this? Go to the Sarcoma Support Group.

I am responding to your group info on angiosarcoma.
My family member has angiosarcoma of the scalp-very very rare-& not much info for patient or family…she has had many surgeries on her scalp-tumors re occurred-radiation didn’t do a thing.
(2 times -each like 8 weeks)
Then chemo 2 times for a very long time.
She is a survivor.
She is a strong person with a lot of will.
Diagnosed in Oct 2019.
She is still alive and has not had new tumors in the last year.
She has no scalp left, so that is a good thing.
She has PETscans regularly- no indication of spread to other areas - she feels good considering -living her life -good days and down days.
Amazing gal. I love her! Sending hope to all of you-I never thought she’d be here living her life fully in 2022
Always have hope!!!

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Hi @amyqueenof4, welcome. As you likely already know, angiosarcoma is quite rare. I’m tagging fellow members @grizz20 @crackerjack @mermaid7272 @brinys, who have experience with angiosarcoma either as a patient or caregiver, like you.

I know that angiosarcoma can start anywhere in the body. Where did it appear for your fiancé? What treatments has he had?

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