1. < Sarcoma

Is anybody dealing with an angiosarcoma?

Posted by amyqueenof4 @amyqueenof4, Sep 4, 2022

Is anybody dealing with an angiosarcoma? My fiancé is 48 and was diagnosed in January. It has been in two different locations already.

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posi9 | @posi9 | Feb 3, 2023
In reply to @colleenyoung "@posi9, welcome. I'm sorry to hear that the angiosarcoma of the breast has metastasized to your..." + (show)
@colleenyoung

@posi9, welcome.
I'm sorry to hear that the angiosarcoma of the breast has metastasized to your lungs. You ask what treatments people have had for metastatic angiosarcoma. May I ask what treatments have been suggested for you?

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Unfortunately it’s still the waiting game. Waiting for a lung biopsy. Radiation caused the cancer so that doesn’t sound like a realistic option, even though high doses apparently are effective , my understanding is that surgery is the best alternative for AS. Not sure how lung metastasis fits in with all this. Is surgery a possibility. I’m sure it boils down to every case is different. The waiting game is so stressful!

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1 reply
jbeck7406 | @jbeck7406 | Feb 1, 2023
In reply to @posi9 "Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s..." + (show)
@posi9

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

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I was diagnosed in dec Angiosarcoma in the breast had a mastectomy Jan 26 then was told I stil have more cancer cells so I have to go back in for another surgery feb 9 to remove a margin in breast

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2 replies
twinsisty1 | @twinsisty1 | Jan 31, 2023
In reply to @twinsisty1 "Yes, for sure!" + (show)
@twinsisty1

Yes, for sure!

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Mermaid, I also had a melanoma after surgery. Still doing well now. Scan every three months, hopefully will be every six if I’m clean after my next scan.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 31, 2023
In reply to @posi9 "Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s..." + (show)
@posi9

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

Jump to this post

@posi9, welcome.
I'm sorry to hear that the angiosarcoma of the breast has metastasized to your lungs. You ask what treatments people have had for metastatic angiosarcoma. May I ask what treatments have been suggested for you?

REPLY
1 reply
posi9 | @posi9 | Jan 26, 2023
In reply to @posi9 "Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s..." + (show)
@posi9

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

Jump to this post

Does anyone have/or had lung Angiosarcoma. Looking for treatments you may have had. Surgery? Successes, trials?

REPLY
posi9 | @posi9 | Jan 19, 2023

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

REPLY
3 replies
twinsisty1 | @twinsisty1 | Oct 4, 2022
In reply to @mermaid7272 "Mine was not in breast, it was near my clavical (?) bone. It was removed by..." + (show)
@mermaid7272

Mine was not in breast, it was near my clavical (?) bone.
It was removed by surgery, no other treatment. But............... I have had numerous medical problems after, including many cancers. Several sarcomas & a second melanoma, pancreatis,
and assorted ills.
Hope we both will be healthy & happy & lucky!

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Yes, for sure!

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1 reply
mermaid7272 | @mermaid7272 | Oct 4, 2022
In reply to @twinsisty1 "I also developed mine after breast cancer. My doctor spotted it right away. Had it removed..." + (show)
@twinsisty1

I also developed mine after breast cancer. My doctor spotted it right away. Had it removed last year . Have Cat Scan every three month since. Clean so far except for a large kidney stone I had to have removed. He believes mine is from all the radiation I had after two procedures for my breast cancer. Have had a total mastectomy after he found it.

Jump to this post

Mine was not in breast, it was near my clavical (?) bone.
It was removed by surgery, no other treatment. But............... I have had numerous medical problems after, including many cancers. Several sarcomas & a second melanoma, pancreatis,
and assorted ills.
Hope we both will be healthy & happy & lucky!

REPLY
1 reply
twinsisty1 | @twinsisty1 | Oct 4, 2022
In reply to @mermaid7272 "I had angiosarcoma about 10-12 years ago, and was in my upper chest wall . It..." + (show)
@mermaid7272

I had angiosarcoma about 10-12 years ago, and was in my upper chest wall . It is, as you probably have learned,
a cancer of the lining of a blood vessel. And extremely rare. Men who have worked in the manufacturing of certain types of plastic are prone to get it. (I am neither!) There are other causes, & I suggest you research it with Google.
Mine started as a very odd-colored bruise that did not hurt, it disappeared, then reappeared in the same place. My dr. said it was nothing, but I insisted she biopsy it. She finally did, and when results came back, said she had never heard of it! I got a new dr.!
I had surgery to remove it, & had no more trouble with that particular cancer. I am one of the fortunate ones. Good luck with your friend, and learn as much about it as you can.

Jump to this post

I also developed mine after breast cancer. My doctor spotted it right away. Had it removed last year . Have Cat Scan every three month since. Clean so far except for a large kidney stone I had to have removed. He believes mine is from all the radiation I had after two procedures for my breast cancer. Have had a total mastectomy after he found it.

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