Is anybody dealing with an angiosarcoma?

No unfortunately I haven’t , after surgery everything looks clear, march 28th I have a CT scan on lung so I’m guessing I’ll just wait and see how that turns out then go from there.

jbeck7406 - no second opinion yet. I am with Kaiser, and they have review teams that bring several voices into pathology, radiology and even my Oncologist has team reviews of their opinions. I will be getting some second opinions outside Kaiser soon. My plan is to get this first round of chemo done, then travel some including second opinions when I am either done with chemo (they really only have one option right now with taxol - which they say will stop helping any soon...) and traveling while on chemo is rough for sure.
I am getting infusion once a week. 13 infusions so far. Oncologist adjusted dosage to make my side effects a little less (helping quality of life a bit) which helps but after taking a short trip i know to do any more i want to stop the chemo for at least two weeks. I have neuropathy pain in feet and hands which the chemo treatment makes much more intense. My hope is in the Lord..

@amicusdedeus, how are you doing on chemo? How often do you get an infusion?

@jbeck7406, did you get a second opinion?

I was diagnosed with Angiosarcoma in my liver on October 26th 2022. Started Taxol chemotherapy in November and get my 13th infusion tomorrow. No known cause for mine but my mother's side of the family had an uncle and first cousin pass from Angiosarcoma in the heart. November 22 prognosis from Kaiser Permanente oncologist was maybe 9 to 12 months with chemotherapy.. less than 6 months without.

My Angiosarcoma, which was diagnosed in 2019 was radiation induced..........caused from cancer surgery in 2006.

I also have angioscarcoma and was cancer free until about a month ago. I had chemo, radiation and several surgeries, 5 years ago. I have recently had a biopsy on my head that showed angioscarcoma, luckily no metastasis. I was wondering how your family member's surgeon was able to cover the scalp after removal of the sarcoma. Any information you can provide would be greatly appreciated.
Hopefully she continues to do well. Sounds like she is an amazing women and survivor.

I live in Nebraska and sometimes I wonder, but they did send my biopsy originally to the mayo clinic for pathology review , I’m trying to get second opinion overall at the Mayo currently just waiting to hear back from them . I don’t know why it’s taking so long

I’m clear of Angiosarcoma as of now !
I’m curious if anyone has had Angiosarcoma in the breast without having /had radiation therapy due to a breast cancer prior?
I have never had cancer or radiation before and ended up with lump on breast and biopsy showed Angiosarcoma so I’m confused.

@jbeck7406, just a quick note to wish you well with your post surgery recovery. I hope you'll write an update on how you are doing when you're able.

@posi9, thinking of you as you ride out the wait.