Is anybody dealing with an angiosarcoma?

Does anyone know if Angiosarcome changes someone's personality or is it the chemotherapy? My husband has it on his scalp and neck.

It appeared on top of his bladder and grew up to 7cm- he had taxitol and radiation and for two months he was remission. Then 3 months ago his lung collapsed bc he was bleeding in his plura cavity. He was on a chest tube for over a month with two surgeries to get the bleeding to stop- they even tried blood clotting meds. Now they currently have him on taxotere with gemzare (Not sure of spelling) and the doctors at standford have never seen angiosarcoma do this.

I had angiosarcoma about 10-12 years ago, and was in my upper chest wall . It is, as you probably have learned,
a cancer of the lining of a blood vessel. And extremely rare. Men who have worked in the manufacturing of certain types of plastic are prone to get it. (I am neither!) There are other causes, & I suggest you research it with Google.
Mine started as a very odd-colored bruise that did not hurt, it disappeared, then reappeared in the same place. My dr. said it was nothing, but I insisted she biopsy it. She finally did, and when results came back, said she had never heard of it! I got a new dr.!
I had surgery to remove it, & had no more trouble with that particular cancer. I am one of the fortunate ones. Good luck with your friend, and learn as much about it as you can.

I am responding to your group info on angiosarcoma.
My family member has angiosarcoma of the scalp-very very rare-& not much info for patient or family…she has had many surgeries on her scalp-tumors re occurred-radiation didn’t do a thing.
(2 times -each like 8 weeks)
Then chemo 2 times for a very long time.
She is a survivor.
She is a strong person with a lot of will.
Diagnosed in Oct 2019.
She is still alive and has not had new tumors in the last year.
She has no scalp left, so that is a good thing.
She has PETscans regularly- no indication of spread to other areas - she feels good considering -living her life -good days and down days.
Amazing gal. I love her! Sending hope to all of you-I never thought she’d be here living her life fully in 2022
Always have hope!!!

Hi @amyqueenof4, welcome. As you likely already know, angiosarcoma is quite rare. I’m tagging fellow members @grizz20 @crackerjack @mermaid7272 @brinys, who have experience with angiosarcoma either as a patient or caregiver, like you.

I know that angiosarcoma can start anywhere in the body. Where did it appear for your fiancé? What treatments has he had?