1. < Sarcoma

Is anybody dealing with an angiosarcoma?

Posted by amyqueenof4 @amyqueenof4, Sep 4, 2022

Is anybody dealing with an angiosarcoma? My fiancé is 48 and was diagnosed in January. It has been in two different locations already.

Interested in more discussions like this? Go to the Sarcoma Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 12, 2023
In reply to @jbeck7406 "I was diagnosed in dec Angiosarcoma in the breast had a mastectomy Jan 26 then was..." + (show)
@jbeck7406

I was diagnosed in dec Angiosarcoma in the breast had a mastectomy Jan 26 then was told I stil have more cancer cells so I have to go back in for another surgery feb 9 to remove a margin in breast

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@jbeck7406, just a quick note to wish you well with your post surgery recovery. I hope you'll write an update on how you are doing when you're able.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 12, 2023
In reply to @posi9 "Unfortunately it’s still the waiting game. Waiting for a lung biopsy. Radiation caused the cancer so..." + (show)
@posi9

Unfortunately it’s still the waiting game. Waiting for a lung biopsy. Radiation caused the cancer so that doesn’t sound like a realistic option, even though high doses apparently are effective , my understanding is that surgery is the best alternative for AS. Not sure how lung metastasis fits in with all this. Is surgery a possibility. I’m sure it boils down to every case is different. The waiting game is so stressful!

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@posi9, thinking of you as you ride out the wait.

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posi9 | @posi9 | Feb 3, 2023

Sorry to hear you are dealing with this as well. As rare as it is suppose to be, there seems to be a lot of it. Glad you are in surgery mode as the waiting game is so painful and surgery seems to be the best alternative. What country do you live in? Good luck with your upcoming surgery. You’ve got this 🙏

REPLY
posi9 | @posi9 | Feb 3, 2023
In reply to @colleenyoung "@posi9, welcome. I moved your post to this existing discussion so you can read the previous..." + (show)
@colleenyoung

@posi9, welcome.
I moved your post to this existing discussion so you can read the previous posts and get connected by replying to the group.
- Is anybody dealing with an angiosarcoma? https://connect.mayoclinic.org/discussion/angiosarcoma/

Here you can meet @amyqueenof4 @grizz20 @crackerjack @milo1 @mermaid7272 @brinys @chuckp @twinsisty1, who have experience with angiosarcoma.

I'm sorry to hear that the angiosarcoma of the breast has metastacized to your lungs. You ask what treatments people have had for metastatic angiosarcoma. May I ask what treatments have been suggested for you?

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Unfortunately it’s still the waiting game. Waiting for a lung biopsy. Radiation caused the cancer so that doesn’t sound like a realistic option, even though high doses apparently are effective , my understanding is that surgery is the best alternative for AS. Not sure how lung metastasis fits in with all this. Is surgery a possibility. I’m sure it boils down to every case is different. The waiting game is so stressful!

REPLY
1 reply
jbeck7406 | @jbeck7406 | Feb 1, 2023
In reply to @posi9 "Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s..." + (show)
@posi9

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

Jump to this post

I was diagnosed in dec Angiosarcoma in the breast had a mastectomy Jan 26 then was told I stil have more cancer cells so I have to go back in for another surgery feb 9 to remove a margin in breast

REPLY
2 replies
twinsisty1 | @twinsisty1 | Jan 31, 2023
In reply to @twinsisty1 "Yes, for sure!" + (show)
@twinsisty1

Yes, for sure!

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Mermaid, I also had a melanoma after surgery. Still doing well now. Scan every three months, hopefully will be every six if I’m clean after my next scan.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 31, 2023
In reply to @posi9 "Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s..." + (show)
@posi9

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

Jump to this post

@posi9, welcome.
I moved your post to this existing discussion so you can read the previous posts and get connected by replying to the group.
- Is anybody dealing with an angiosarcoma? https://connect.mayoclinic.org/discussion/angiosarcoma/

Here you can meet @amyqueenof4 @grizz20 @crackerjack @milo1 @mermaid7272 @brinys @chuckp @twinsisty1, who have experience with angiosarcoma.

I'm sorry to hear that the angiosarcoma of the breast has metastacized to your lungs. You ask what treatments people have had for metastatic angiosarcoma. May I ask what treatments have been suggested for you?

REPLY
1 reply
posi9 | @posi9 | Jan 26, 2023
In reply to @posi9 "Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s..." + (show)
@posi9

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

Jump to this post

Does anyone have/or had lung Angiosarcoma. Looking for treatments you may have had. Surgery? Successes, trials?

REPLY
posi9 | @posi9 | Jan 19, 2023

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

REPLY
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