My rectum hurts almost constantly and I’ve had constipation for years. Dr wants to do a Botox injection. Colonoscopies have never showed anything. I’m tired of taking Miralax or Metamucil and fiber. I’m trying probiotics. Has anyone ever used any brand that has provided relief? I’ve had pelvic floor therapy with short lived pain relief. I would love to hear from anyone who has this problem and found relief. I haven’t been able to sit comfortably for years!
...after pelvic radiation, years later they said ibs-d, but over the years hasn't stopped and then too many antibiotics and c.diff 2018 since then bowel issues worse and diet poor; Imodium - the least I can take because too much then cannot go! Then the dreaded fecal incontinence - every time (I am female) I urinate, there is feces to clean up and the skin inside and around gets so sore; I used to get relief from sitz baths but then realized my frequent uti's was from sitting in water in sitz bath with feces germs in... so now it's wiping area .... with those round makeup remover pads with vaseline on and then putting a clean one there; but next bathroom visit it is soiled. and gets expensive; .. its unbelievable how extremely sore rectal area (along with other illnesses to cope with) can be so painful even to sit on a chair!
....my anal pain and it's severe is from ibs diarrhea and every other day; now i have it after a course of antibiotic; when on antibiotics you are not allowed to take anti diarrhea meds; anway, after c.diff 2018also hae fecal incontinence. ....so today passed about ten times fecal matter and anal area is so painful and this has been going on for years. difficult to discuss with friends and neighbours! as soon as i clean up or have a half shower, get dried and they suggested hair dryer on low; use some zinc ointment, or vaseline etc., and get redressed about half hour later have to go again and nothing stops it or it leaks out.... honestly, compared to other life threatening issues and my other medical issues this should be easily handled but it is not; and constant change of clothing and cloths... but really its the pain... like pouring lemon juice on cuts. not a nice subject to discuss but no cure as soon as use ointment, it is wiped off shortly after..... any ideas welcome.....
Same here! Once I start going it won’t stop! Mostly water, incontinence, wearing pads and depends, making messes beyond belief! Besides that Awful Pain! No one understands that burning pain! And yet, still, no one can help me!
I developed squamous cell carcinoma (skin cancer) at the exit site of my colostomy 3 1/2 years ago. I have never experienced more pain than this, and I am 83. They finally did surgery nine days ago, despite the fact that it took me YEARS and dozens of hyperbaric treatments before I healed after the last surgery. I am doing daily sitz baths now and packing the wound with gauze soaked in liquid lidocaine for 5 minutes a day, followed by a gauze pack soaked in a saline solution. This seems to diminish the pain somewhat. I am also taking 2 tbsp. ProHeal (Amazon) daily to enhance the healing process.
It was a pill given to me off-label for headaches by an MD at a headache center. It did not help my headache but my pelvic pain went away. I told my pelvic physical therapist and she said she had heard of that before. Maybe because it is for seizures, it loosens up the spasms in the rectum? I don't know. Since PTs can't prescribe medicine, I don't know who you would ask. Maybe discuss with family doctor???? Let me know how you make out. Who are you seeing now? As any doctor you are seeing now. Good luck. I will pray for you.
Ask for anti-seizure medicine - Topamax maybe. This is the only thing that worked for me after 2 fissure surgeries and sitting on a donut for 4-1/2 years.
This may be a stupid question, but is Topomax a cream applied to the lesion, or is it ingested? I don't understand the anti-seizure/lesion connection. What type of doctor (oncologist, radiologist, surgeon, primary care provider) could I discuss this with?
Ask for anti-seizure medicine - Topamax maybe. This is the only thing that worked for me after 2 fissure surgeries and sitting on a donut for 4-1/2 years.
It doesn't sound like radiation is the answer either. Not many (any?) options left. I am having a PET scan on the 17th and will know more then. In the meantime, I feel like my bottom is on fire with a few intermittent stabbing pains.
I certainly hope someone has advice on this that will at least lessen the pain. I am 3-years post colostomy and my anal fissure has just been diagnosed as squamous cell carcinoma, moderately differentiated. I meet with a radiation doctor Jan. 4th to see if that is worth trying. In the meantime, I am experiencing unbearable pain. This has gone on for over a month now and I'm desperate for suggestions. A sitz bath, perhaps?
I certainly hope someone has advice on this that will at least lessen the pain. I am 3-years post colostomy and my anal fissure has just been diagnosed as squamous cell carcinoma, moderately differentiated. I meet with a radiation doctor Jan. 4th to see if that is worth trying. In the meantime, I am experiencing unbearable pain. This has gone on for over a month now and I'm desperate for suggestions. A sitz bath, perhaps?
And certainly avoid produce with seeds. Important to keep ur stools soft so use Acacia fiber powder per directions on bottle plus lots of filtered water.
Avoid foods that burn such as vinegars. (look on Google).
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My rectum hurts almost constantly and I’ve had constipation for years. Dr wants to do a Botox injection. Colonoscopies have never showed anything. I’m tired of taking Miralax or Metamucil and fiber. I’m trying probiotics. Has anyone ever used any brand that has provided relief? I’ve had pelvic floor therapy with short lived pain relief. I would love to hear from anyone who has this problem and found relief. I haven’t been able to sit comfortably for years!
...after pelvic radiation, years later they said ibs-d, but over the years hasn't stopped and then too many antibiotics and c.diff 2018 since then bowel issues worse and diet poor; Imodium - the least I can take because too much then cannot go! Then the dreaded fecal incontinence - every time (I am female) I urinate, there is feces to clean up and the skin inside and around gets so sore; I used to get relief from sitz baths but then realized my frequent uti's was from sitting in water in sitz bath with feces germs in... so now it's wiping area .... with those round makeup remover pads with vaseline on and then putting a clean one there; but next bathroom visit it is soiled. and gets expensive; .. its unbelievable how extremely sore rectal area (along with other illnesses to cope with) can be so painful even to sit on a chair!
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3 ReactionsSame here! Once I start going it won’t stop! Mostly water, incontinence, wearing pads and depends, making messes beyond belief! Besides that Awful Pain! No one understands that burning pain! And yet, still, no one can help me!
-
Like -
Helpful -
Hug
5 ReactionsI developed squamous cell carcinoma (skin cancer) at the exit site of my colostomy 3 1/2 years ago. I have never experienced more pain than this, and I am 83. They finally did surgery nine days ago, despite the fact that it took me YEARS and dozens of hyperbaric treatments before I healed after the last surgery. I am doing daily sitz baths now and packing the wound with gauze soaked in liquid lidocaine for 5 minutes a day, followed by a gauze pack soaked in a saline solution. This seems to diminish the pain somewhat. I am also taking 2 tbsp. ProHeal (Amazon) daily to enhance the healing process.
-
Like -
Helpful -
Hug
2 ReactionsIt was a pill given to me off-label for headaches by an MD at a headache center. It did not help my headache but my pelvic pain went away. I told my pelvic physical therapist and she said she had heard of that before. Maybe because it is for seizures, it loosens up the spasms in the rectum? I don't know. Since PTs can't prescribe medicine, I don't know who you would ask. Maybe discuss with family doctor???? Let me know how you make out. Who are you seeing now? As any doctor you are seeing now. Good luck. I will pray for you.
This may be a stupid question, but is Topomax a cream applied to the lesion, or is it ingested? I don't understand the anti-seizure/lesion connection. What type of doctor (oncologist, radiologist, surgeon, primary care provider) could I discuss this with?
Ask for anti-seizure medicine - Topamax maybe. This is the only thing that worked for me after 2 fissure surgeries and sitting on a donut for 4-1/2 years.
-
Like -
Helpful -
Hug
3 ReactionsIt doesn't sound like radiation is the answer either. Not many (any?) options left. I am having a PET scan on the 17th and will know more then. In the meantime, I feel like my bottom is on fire with a few intermittent stabbing pains.
@jacqquie, how did your appointment with radiology go? What did you learn? Treatment for the squamous cell carcinoma?
And certainly avoid produce with seeds. Important to keep ur stools soft so use Acacia fiber powder per directions on bottle plus lots of filtered water.
Avoid foods that burn such as vinegars. (look on Google).