Worried this might be anal cancer

Posted by blac @blac, Jan 13, 2024

Have been having this pain around the left side of my anus its very painful mostly at night and feels hard,
This pain as lasted for 3years now each day,
And more recently am noticing some kind of small growth in the left opening

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@tinamarie2025

Hi my name is Tina, and I was recently diagnosed with squamous cell carcinoma anal cancer. I am a 53 year old female. Over the last two years I had some anal itching but didn't think anything of it. I had recently went through surgery for a total thyroid ectomy and the pain medication caused me to become constipated, which in that time is when I noticed that I had a huge tumor protruding in the vaginal area. I went to see the doctor to find out it was not in the vaginal area but it was in the rectal area. CT scans and MRI revealed a mass and also a lymph node that was enlarged. They did a colonoscopy and found the mass did a biopsy and it was then revealed to be staged 2 squamous cell carcinoma anal cancer. I was ordered to do two rounds of chemotherapy one in the beginning of treatment and another at the fifth week I was given two different medication one was given in the office the other was put on a pump that I went home with for 5 days. I have finished both rounds of chemotherapy and I am now finishing my radiation. As I started the beginning of the 6th week of radiation they had to stop and give me a week's break because I was burned so badly down in that area that I could not handle any more radiation. I was ordered 30 plus session of radiation, which is a total of seven whole weeks. I still have 2 weeks left to go

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Hi Tina, see my lengthy reply to yancy. Thank you for sharing your experience. I am a 74yo female. I was recently diagnosed by a Galleri blood test that detects 50 types of cancer. Squamous cell anal carcinoma was confirmed by a biopsy. I’m currently awaiting surgery, ct, scan, mri, and staging in late march before treatment begins. I read somewhere that women are predominantly diagnosed with this rare cancer. Cigarette smoking is a factor. I quit smoking nearly 25 years ago. I’m sorry to hear about your severe radiation experience. Are you being treated with a photon or proton laser?

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@yancy

Hi. I was Dx with squamous cell anal cancer in March of 2024. After several months of tests, etc., I started with one chemo infusion through a port, followed by 28 sessions of radiation and chemo pills. I had nausea only after that first infusion. I’m happy to say that I had no pain. It was so much “easier” than I anticipated. The partial lack of control over my bowels wasn’t pleasant but I used diapers. The worst part was the fatigue. I finished treatment in July 2024 and still not quite back to full strength. I’m getting there and otherwise feel fine. So hang in there, and stay positive!

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Thanks for sharing Yancy. Did anyone tell you your anal cancer phase? Was it photon or proton radiation?
I stepped outside of my Medicare HMO and ordered a Galleri blood test online from Grail in December 2024 because I experienced mild, vague symptoms for about 3 years (bloated feeling, 5-9 daily pencil thin soft bowel movements with a reddish orange hue and occasional light bleeding). I developed distinct pain on the left side of my anus following a colonoscopy 2 years ago. I have fibromyalgia pain everywhere so I always worry about my brain’s ability to properly interpret the seriousness of pain signals. I was diagnosed with non cancerous colon polyps and hemorrhoids in February 2023 and told to repeat my colonoscopy in 5 years. Galleri blood test confirmed markers for anal cancer in Feb2025. My Medicare HMO doctor pushed back against this type of blood test until her anal palpation identified an irregularity on left side of anus. Sigmoidoscopy and biopsy confirmed squamous cell anal cancer. I am currently scheduled for mri, ct scan and surgery in late March. I hope to know stage and path forward by early April. Your fatigue comment is very helpful as I am primary caretaker for my partner of nearly 50 years who has severe dementia. I need to plan for outside help.
Thanks again for posting your comments.

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@terrymayo50

I have anal cancer, the Squamous Cell type. The port has already been installed and waiting for chemo and radiation. Has anyone else had this type cancer, if so, please tell your story.

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Hi my name is Tina, and I was recently diagnosed with squamous cell carcinoma anal cancer. I am a 53 year old female. Over the last two years I had some anal itching but didn't think anything of it. I had recently went through surgery for a total thyroid ectomy and the pain medication caused me to become constipated, which in that time is when I noticed that I had a huge tumor protruding in the vaginal area. I went to see the doctor to find out it was not in the vaginal area but it was in the rectal area. CT scans and MRI revealed a mass and also a lymph node that was enlarged. They did a colonoscopy and found the mass did a biopsy and it was then revealed to be staged 2 squamous cell carcinoma anal cancer. I was ordered to do two rounds of chemotherapy one in the beginning of treatment and another at the fifth week I was given two different medication one was given in the office the other was put on a pump that I went home with for 5 days. I have finished both rounds of chemotherapy and I am now finishing my radiation. As I started the beginning of the 6th week of radiation they had to stop and give me a week's break because I was burned so badly down in that area that I could not handle any more radiation. I was ordered 30 plus session of radiation, which is a total of seven whole weeks. I still have 2 weeks left to go

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Hi. I was Dx with squamous cell anal cancer in March of 2024. After several months of tests, etc., I started with one chemo infusion through a port, followed by 28 sessions of radiation and chemo pills. I had nausea only after that first infusion. I’m happy to say that I had no pain. It was so much “easier” than I anticipated. The partial lack of control over my bowels wasn’t pleasant but I used diapers. The worst part was the fatigue. I finished treatment in July 2024 and still not quite back to full strength. I’m getting there and otherwise feel fine. So hang in there, and stay positive!

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@lolly

What were your symptoms? Thanks.

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Hi @lolly, have you been diagnosed with anal cancer? Do you have symptoms that are concerning you?

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@slindsay6

Terry , I was diagnosed with anal cancer stage2 after growth was removed from my anus. April 2023. My treatment was 28 days of chemo and RT. Had a PET scan in November ,I am now cancer free.
My chemo was oral except for 2 infusions day 1 and 28. RT was labor intensive. Trying to have an empty bowel and a full bladder for RT was a day full of challenges.
After 28 days of RT cumulative effects set in. Intense swelling of the genitalia and anus. I experienced 2 weeks when it was necessary to take pain medication.
Expect to be reclining during this period. Sitting is very difficult.
Just like child birth when you get a cancer free diagnosis it was all worth it. Praying for you and a speedy recovery.

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What were your symptoms? Thanks.

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@kassray

I am 5 year survivor, in the next couple of weeks I will find out if consider cured. That being said I had 30 rounds of radiation and 6 days of chemo, took a chemo ball home once on the beginning and at the end of radiation. I was tired, lost my hair. Some nausea. I do have long term side effects from radiation. Mainly in hip bones. I am grateful for my results and doctors I went to Ironwood Cancer Research.

If possible keep a positive attitude. Good luck and blessings

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@kassray, have you had your follow-up appointment? How are you doing?

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@janchan

Hi!

I'm new here and I have a question. Has anyone else been denied colonoscopies because of their age, even when they are producing pre-cancerous polyps?

Thank you for your input.

Janet

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Yes, I have had colon cancer and a colon and liver resection 5 yrs ago, had Chemo and check ups regularly, at 83 I was told they did not want to do anymore colonoscopies for safety reasons , they could damage or perforate the the colon. Had CT scans and blood tests instead. I have passed the 5 year mark and cancer free. (Am 86 now)
Margreet

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@clare12351

also if you are in pain, they should move the colonoscopy up or send you to a place that can do it sooner

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I don’t have constant pain just sporadic. I was told they had to wait 8 weeks since I also had gallbladder surgery

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