Am I autistic or just a highly sensitive introvert?

Posted by wonderwall12345 @wonderwall12345, May 8 8:38am

Hi all!

Firstly, let me apologise in advance for the War & Peace-length bulletpoint memoir.

I recently took the Myers-Briggs test and my result was INTJ, which a colleague told me is often what individuals with autism have. A few people throughout my adult life have asked if I had ever been diagnosed with autism. There are definitely some aspects I relate to, and then others I don’t relate to at all. The waiting list to see a mental health professional in the UK is 6 months plus at the moment, so I wanted to seek some initial advice here before proceeding, in case the answers to my question could be found here.

I would be so interested to know if other forum members recognise any of the below traits as consistent with autism. The research I have done is so overwhelming and varies so much, it can be hard to self assess and I don’t want to end up convincing myself of something prematurely.

Traits which seem consistent with autism:
* I tend to like spending time on my own. I love spending time with friends too, but I need to have time to prepare for it mentally and make myself look forward to it. Sometimes I will go to a party and I will just want to go home straight away and find the situation exhausting, especially if it involves making conversation with people. I often find myself taking a break in an empty room or toilet. If I go into a social situation and people are friendly I will feel only mildly uncomfortable, but if people are stand-offish then I will get extremely stressed and usually leave.
* I struggle with having people in my space for prolonged periods of time or people being messy or inconsiderate in my space. This makes me disproportionately angry. My partner’s mother came over for a week and the first few days were fine, but after that I just felt her presence irritating me. I didn’t want to have to make constant conversation and to be ‘on’ all the time. I felt trapped.
* I am not a fan of small talk. I enjoy deep philosophical conversations and I have noticed that sometimes other people will try and change the topic of conversation because it’s too ‘heavy’. I enjoy talking about these sorts of things and small talk seems pointless and inane to me. I love analysing and questioning things and no question is too deep or heavy for me. These sorts of questions don’t make me feel depressed or sad as they seem to make other people feel.
* People tell me I see the world differently and that my way of thinking through things is unusual. I’ve been told I ask unusual questions.
* The running joke with my boyfriend is that I listen to the same music over and over again. If I like a song I can listen to it on repeat, it satisfies me to do this.
* I hate changes in plan or when plans I’ve made don’t work out. It makes me feel disproportionately frustrated or upset.
* Making and maintaining eye contact. I will make eye contact briefly and then usually look away. I find making eye contact extremely uncomfortable during any sort of sexual scenario in particular, to the point where my eyes are usually closed for the duration. I thought I was shy and have tried many times to overcome this but feel too uncomfortable.
* I love memorising lists of information. As an adult I memorised every US president, every country in the world, every movie to win a Best Picture Oscar. I find it very satisfying acquiring information in this way.
* I hate loud noises and struggle to concentrate if there is any repetitive sound or loud noise. I cannot have music on in the background while working or studying, it makes me feel like someone is screaming in my face.
* I’ve noticed that subconsciously I will shake my left leg - it can be in bed or at work, anywhere. I also subconsciously stroke my hair with my hand. I only noticed I did these things when others pointed them out. I also have a fixation on cutting the split ends of my hair.
* I can be too honest sometimes. I have learnt not to do this with regards to other people’s lives, but if someone asks me how I am and something is going on with me, I find it hard to not just be honest. I’ve noticed sometimes this makes people uncomfortable.
* I was diagnosed with bipolar disorder as a teenager due to mood swings (from overjoyed and interested in something too reserved and disinterested). They then told me I wasn’t bipolar, but couldn’t account for the mood fluctuations I was experiencing.
* I felt very isolated as a child and would read and write a lot. I felt abnormal and different from my peers (like I was over sensitive or over analysed situations they didn’t - I still feel like this sometimes). My parents would get angry at me for being either too shy/rude or too enthusiastic and hyper about something, so I learnt to act more normal but always felt very different.
* I do still have quite an obsessive personality. I was obsessed with Game of Thrones and struggle to not talk about it at length if someone brings it up (it’s a running joke in my family). I can sit on YouTube and watch the same sort of videos for hours and hours. I have noticed I particularly love reaction videos (college decision reactions, reactions to songs or sad moments in tv shows). Something about watching other people express emotion, particularly joy, is intriguing to me.
* I struggle not to correct people if they say something wrong. I know it sounds so rude but I have to really bite my tongue.

Traits not consistent with autism:
* I do like spending time with other people, just not very often and not for prolonged periods of time. I don’t find it difficult interacting with true friends.
* Many people have told me that I come across as very extroverted and confident. I think I have taught myself how to behave like this, rather than it being who I actually am, but I don’t know if if I had autism I would be able to turn this on and off (I do find it very draining put on the extroverted persona).
* Most of the above things are things I feel on the inside but things that barely anyone (beside perhaps my boyfriend) would notice in the moment. I don’t know whether these are things that everyone experiences and I’m just glossing over them as all people do, or whether I have just been conditioned to suppress my real feelings in order to avoid social awkwardness.
* I have never had trouble making friends or maintaining friendships. While I do sometimes struggle to click with people, I have always been able to find 'my people' in any setting, whether it be school, university, work.

As a child:
I was very quiet, very shy, but also a bit of a know it all when I felt comfortable (ie with family). I used to obsessively read quiz books and encyclopaedias to learn as much as possible. I found a book on arabic and wrote diary entries in simplified arabic. I collected teabag sleeves (don’t ask). I fantasised about being someone else. I became obsessive about certain historical topics (Anastasia Romanov, the Titanic, Henry VIII, Queen Victoria). I liked playing on my own with dolls and did this until quite late (12 or 13 years old).

Interested in more discussions like this? Go to the Autism (ASD) Support Group.

Hi, you sound just like me! I’ve always known I am a highly sensitive person. All my life I’ve felt misunderstood, and people think I’m weird.
I was diagnosed with PTSD. I am 65 now and recently told I probably have autism. I was sort of relieved, it explains so much if my life!

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@wonderwall12345 Thank you for giving such a detailed description. Personally, and please remember I am not a medical professional, I think there can be an overlap of conditions. I feel it is not "one size fits all" and a medical professional might be a better source to help you find out if you are indeed on the autism spectrum.

Years ago I also took the Meyers-Brigg testing, resulting in INTJ, the same as you. Subsequently I was professionally diagnosed with Aspergers Syndrome at a time when there was a lot of strife and stress in my professional life. Suddenly, so many things became crystal clear, and events/reactions/responses made much more sense.

Are you going through a difficult time in your life where you feel the need for diagnosis? For me, I have told myself, "I am who I am. No official label is going to necessarily change that." And I am happy to say that there has been a lot of self-education, and understanding as a result of it all. By reading your post, I can see you are a deep thinker, and pretty danged in-tune with yourself. Good for you for wanting to become the best person you can be, and learning how to navigate in this world.
Ginger

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My 27 yr old son has diagnosed Aspergers. I am not a doctor so it is not my place to say it but as I read what you wrote I was thinking you are obviously on the spectrum. My son has those same traits as you. I think you sound like someone who has done an exceptional job functioning with it.

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I am 67 and just recently began considering the possibility that I have ASD. Which is kind of crazy because I've always been aware of being neuroatypical, struggling profoundly with social and sensory issues my entire life. I've been given (and accepted) many different descriptive labels and treatment protocols for anxiety, depression, eating disorders, PTSD, substance abuse, social anxiety, all of which left me feeling broken and hopeless. At the same time, over the years, I learned how to cope & how to appear normal enough. I married, raised children and have had several successful careers. I'm not looking for a diagnosis anymore. But I never stopped struggling to keep my world in balance and frankly, it was exhausting. It's a relief to have a framework that allows me to understand my differences in a more constructive way. So much of my efforts have always been directed towards disguising my weirdness. Now I'm learning to focus specifically and directly on my hypersensitivity and hyperreactivity, instead of trying to fix/change an endless array of secondary, adaptive behaviors. I also feel more able to appreciate my unique perspectives and skills.

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@kharmamusic Welcome to Mayo Clinic Connect! I am glad you found us, would you tell me how that happened?

It seems that sometimes we "know" without a formal diagnosis, that we fit somewhere onto the autism spectrum. A life-long feeling and examples of not fitting in with how others navigate their days, feeling uncomfortable in crowds, reacting to loud crowds/crowded spaces, having little in common to feel comfortable in a multi-person conversation. All these were, and are, part of my life. Understanding that these don't combine well with how most of society lives, and looking out for myself first, has made a big difference for me.

Like you, I tried masking my "weirdness". Did you feel a big sense of relief to yourself when you began to simply honor who you are? I did! And then we need to get ourselves stronger yet, as we stand up for ourselves. My husband knows I will not accompany him to certain places because the sensory input is too much for me. And yes! we certainly do have unique views on things. Do you, like me, find yourself much more empathetic to others who might be dealing with a bad situation, and able to help them out?
Ginger

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Ginger,

Thank you so much for reaching out. I'll try to respond coherently, but just connecting has sent me into what will be an evening of spontaneous crying spells... just my usual physiological hyper-reaction to feeling connected.

I read a memoir by Katherine May, "The Electricity of Every Living Thing. " Her descriptions unleashed a torrent of memories and made sense of experiences that I had literally "rewritten" in order create any sustainable sense of self.

An internet search sent me to several self assessment tools, which I was surprised placed me quite extremely in the diagnosable range of ASD. Now I'm just researching and Mayo Clinic is always a dependable resource.

Your other question is about empathy. Yes, I tap into enormous empathy without even recognizing that I'm picking up the feeligs of other people, but it's a mixed blessing. I spent 30 years in caring professions, family therapist, middle school teacher, counselor, personnel manager. I'm really skilled in professional, interpersonal communications. Without a script, I'm lost. Unable to figure out how to act with people I care about. Unable to manage my personal feelings, along with those of other people. Completely unable to manage my personal interactions. Unable to make sense of boundaries.

As I open this subject up, I'm pretty overwhelmed with the enormity of what all I've masked and how I've adapted. Huge relief to acknowledge that maybe I'm a huge success, instead of a chronic failure.

Holly

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