Anyone have side effects after Lanreotide injection?

@hopeful33250: Hi Teresa, my oncologist dismisses Lanreotide causing my “boil-sore” problem. My primary internal med physician treated me for herpes with no change.
I want to be clear, as much as I hate these sores, I am grateful to receive my 28day Lanreotide injections because I trust that this universal treatment for NET patients helps me stay “syndrome free” and may be keeping my tumors stable. I would urge every NET patient to “deal with any side effects” of Lanreotide… we have a serious cancer and need to acknowledge that there will be side effects in our journey, but we must weigh the risk (or slight discomfort) with the benefit of treatment.

I used to get very fatigued. 30 treatments to date and the fatigue is nominal and only last a few days. Best of luck with your journey.

That sounds very uncomfortable, @dbamos1945. What does your doctor have to say about this? Are there any alternative meds that you might try?

April also gives you time to do research so you can make a informative decision
Good luck
Be well

@ teresa33250:
Lanreotide 28 day injections- I have taken them monthly since 10/21. My main concern is the boil-type sores that form around/on my nose and occasionally on my cheeks. They are firey red and very sore and remain for 4-5 days, then an infection fluid comes out and they slowly heal, but leave a scar mark. I have tried every remedy available with no luck; however, lately I have been applying retinol cream (Nutragena) on face every night. This has reduced the amount of sores and I think they heal up quicker.
I can’t swear this is caused by the Lanreotide injections, but I never had it before! I am 79 yrs old… you don’t suppose I am going through pimple puberty again , do you? 🙂

Thank you for telling me this! I felt like a wimp because of my array of symptoms, especially because I didn’t understand the need for the injection in the first place. One symptom was sufficient to condemn me to abject misery that I’m still waiting to go away.
Luckily I have till mid-April before my oncologist makes her next decision.

I am struggling with exhaustion and pain in my legs as well as a weight gain of 25 lbs in less than a year
I was suppose to get a mri and pet scan in February ( 4 months after my last PRRT treatment) but I had an URI and had to cancel
Rescheduled for March
My last set of bloods were good
Neurologist did an EEG and a vascular sonogram all good
Still unknown why I get severe pains in my temples and walk to the right side on numerous occasions
Cardiologist did a stress test EKG and an echocardiogram all good
Still unknown why my BP and pulse are so erratic
My cardiologist believes it is all from the octreotide but I don’t think stopping us an option to
I remain hopeful and grateful for every day
Thank you for asking

Hello @sophiarose

I appreciate your reply to @dbmenger about your difficulties with Lanreotide and Octreotide. It helps to see that everyone reacts differently to medications.

How are you feeling these days, sophiarose?

Before I was put on Lanreotide I had no symptoms
Lanreotide gave me such a horrible array of symptoms that after 3 injections I had to stop
I started octreotide had some side effects but nothing like lanreotide

She thinks we can stop the lanreotide now because she gave it to me only to stop the flushing, which it intensified. Looks as if I’ll just continue being a hot mess but hopefully without all the other side effects. I was curious as to when they’ll stop because feeling this way is not a good thing.