Adult Life after a Traumatic Brain Injury

Hi, @neet - welcome to Mayo Clinic Connect. Just for a little more background so members can be helpful to you, will you share a little of your (or your loved one's) story with traumatic brain injury (TBI)? When was the arachnoid cyst discovered?

Does anyone know if an Arachnoid Cyst from a TBI will disappear gradually?

Thank you for sharing your ideas. The library is always a good resource. I wonder if social services would know of any programs also? I think it's a wonderful benefit that we can support one another and share ideas.
Dawn

Thank you for sharing your experiences. I can't even imagine how hard this would be to live through in your life. By sharing, I think we can find comfort in one another. We know that we are not alone in our struggles.
Dawn

@etadams I can certainly understand your frustration. My son was a real problem from the day he was born. I was frustrated, sad, and scared. Like he was angry at the world!
Do you have a center for people with disabilities in your area? Your library should have a list of resources. They can help you work thru your plans for his future. Maybe even help him move now when he is young enough to meet and participate with others. And you can get some semblance of your life back.
I really wish you luck. You’ve been on a long, hard road. Becky

I have a tbi and too suffered from emotional outbursts. They seemed to be out of my control. I would try not to have them but it seemed impossible. There is a tremendous amount of frustration when it feels like your whole life has been taken away from you and for me it truly was. I share your challenge of living with a disabled adult and caring for them. Although he has a different diagnosis the behavior is the same. Because he cannot control himself I have had to establish safe zones for myself . I have a lock on my bedroom which really helps. He can be destructive and steal my things etc. I have found I also have to leave. Yesterday I had to leave for 6 hours. While it is not intention the behavior is abusive. Without boundaries I ithad triggered former PTSD. So take care of yourself. I need to remind myself it usually has nothing to do with me but he will accuse me a lot for causing his outbursts. I am with you on this and know you are not alone
Sue

Hi, @etadams - just wanted to reach out and see how things are going this week with your son and the outbursts and threats you mentioned with his TBI?

Hi there and welcome!
I'm so glad you're sharing your journey with us!! You are not alone. I know that where we are located, they have group homes for men who have suffered/are living with a brain injury. These are professionals who know how to deal with those behaviors while trying to give the highest quality of life possible. Also, have you looked into any kind of an outpatient treatment situation? Those lingering symptoms can be so self defeating for the tbi sufferer, and equally as painful for the family. Treatment options are always evolving and perhaps there is something out there that could be of help. Lastly, has your son had a recent physical? The reason I mention this is that as we age or bodies change and perhaps another disease process is aggravating TBI symptoms. Just some ideas. Please continue to reach out. I hope you will find some comfort on this site. Please listen to the podcast listed in my initial posting. Perhaps it will also give you some comfort. Best to you and your son.

Hi, @etadams, and welcome to Mayo Clinic Connect. So understandable you'd feel frustrated, and your son, as well.

I'd like to invite some of the other members in this discussion, like @dawnpereda @treyaj @becsbuddy @hopeful33250 @david33 @lrbrush @lakelifelady and others to offer any thoughts or suggestions related to your son's outbursts and threats and also your biggest concern of where he will go when you are gone.

What kind of living arrangement would you ideally like to see for your son, someday when you are gone, etadams?

Thank you for sharing your story. I have a son that has a TBI, since the age of 15.He is now 31. He is frustrated, I am frustrated, and no one in the family wants to deal with his outburst and threats, controllable or noncontrollable. My biggest concern is where will he go when I am gone?