Adult Life after a Traumatic Brain Injury

Posted by Dawn Pereda @dawnpereda, Sep 27, 2017

Hi, My name is Dawn and I am an RN. Just over two years ago I received a work related injury. This injury has left me with a traumatic brain injury (TBI). Even though two years have passed, I still suffer with lingering tbi symptoms. I have some issues with memory. Some things I remember with no problems, other things I just don't remember and I can't explain why... I also suffer with issues related to mood dis-regulation. I can be angry at times and not understand why or end up having explosive outbursts. This has greatly impacted my life. I still work but no longer with patients. Also, this has been a huge turn around for my family. I'm no longer the mom who has everything under control. I used to work full time, manage my kids' schedules, pay household bills, and keep my house clean. Now I struggle to remember to brush my hair before leaving for work. My husband pays the bills and my kids write their schedules on a large calendar (that hangs in our dining room) so I can visually be reminded where they are and what they are doing. I am a "new" me and I never would have imagined this journey for myself.

I know there are things out there for youth that suffer from concussion/tbi, but I don't always find a lot of discussion/support for adults, like myself. I get up every day and work to live my life to its fullest. If you would like to know more about my life and journey, you can listen to a podcast that I did with my family. Its called "Terrible, Thanks For Asking". We're season 1, episode 5. Its brutally honest. If any of this rings true to your life please join this discussion with me. Thanks for your time!

Interested in more discussions like this? Go to the Traumatic Brain Injury (TBI) Support Group.

What is the title of your episode?

REPLY
@nannybrister

Boy, you've really had it! I'm so sorry; but thankful that God is helping you. I notice this was several years ago. How are you now?

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Often a TBI will cause SS. If you have SS and an active bleed you must get it fixed or you will get much worse quickly. Please google Superficial Siderosis.

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@techi

I also remember when l first came home after my TH I l cried because l didn't know my house and that l had children. Then one day my therapist took me to the grocery store to see what l remembered. I cried because there were people around and it was to overwhelming. I didn't know how to do house work or cook. I also couldn't take hearing loud noise and too many people talking frightened.me. Then one day l was told l was strangling my daughter and l really didn't know what l did then l was sent to the mental hospital. And l can remember only one time being there. I guess it was the drugs l was given. Then l was discharged. Then everything after while seemed ok. I was reading doing math and my speech therapist helped me to do these things. Then once again something happened again l fell on an antique table and hit my head. I wanted to go home because when l hit my head we were to fly back home. My mother and l did and l was told l did something else l am not sure. I was told when we got off the plane they took me straight to the hospital and l kept calling my therapist name and she came and Then l was transferred to another mental hospital. I came back out and l was put on stronger antidepressants from 1997- 2014. I had another attack with my brain injury. Viral encephalitis first and then autoimmune encephalitis and all the things l was going through were symptoms of autoimmune encephalitis disease and at that time and still today doctors don't know about it and they think it's a mental problem when it's actually all the signs of autoimmune encephalitis disease. Then l had a 4hr test for memory and then a PET for dementia and they all came back normal. So l prayed Lord give me my memory back. I listened to music and watched wheel of fortune. When l read the bible or hear the preacher speak l couldn't comprehend or remember as soon as l got out the church. Now l can read and understand what l hear and not frightened of my surroundings but now in the times we are living in we have to be aware so that is normal. Now l haven't been driving for a year because they didn't know what was going on with me so l have to tell doctors go to about my illness and the symptoms but l am doing great and they can't believe it but God is not surprised. And just recently l read about 2 people who went through the same thing and were treated the same way and also placed in mental hospitals. So it takes time and lots of prayer. And don't be hard on yourself because all of this is normal and it will get better.

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Boy, you've really had it! I'm so sorry; but thankful that God is helping you. I notice this was several years ago. How are you now?

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@nannybrister

Would this be the group to discuss TBI?

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Welcome @nannybrister. You are in the right group. I moved your post to this discussion
- Adult Life after a Traumatic Brain Injury (TBI) https://connect.mayoclinic.org/discussion/adult-life-after-a-tbi/

I did this so you can read previous posts and connect with other members like @dawnpereda @rosexxxx @amyabi @pinkyandthebrain @anncgrl @lakelifelady who have have or had a traumatic brain injury.

I look forward to getting to know more about you. How long have you been living with TBI? How is your recovery going?

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Would this be the group to discuss TBI?

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@colleenyoung

Oh gosh, Rose, this happened to you only last Friday (a week ago)? How are you doing?

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I am taking it slowly. I notice strange things like swelling around my ankles. I real try not to push the activities but you got much more damage with the 14 feet. I am more concerned about you. I had a weird cough which they thought was covid from the hospital but tested negative today.
Mentioned you to the taxi driver coming home from the hospital so you know I am thi king of you.

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@rosexxxx

friday i tipped over in a golf cart staples plus temporary memory loss. i am going back to the doctor today due to problems breathing. i cannot imagine what you have gone through. the nurse tapped around the cuts to be sure i felt nothing. i am supposed to keep the staples in for two weeks. it sounds as if you had them taken out sooner. please keep in touch and let us know how you are doing. yes it is strange being in such a confused state. and as far as the two grabby friends, i would have words for them!

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Oh gosh, Rose, this happened to you only last Friday (a week ago)? How are you doing?

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@pinkyandthebrain

I sustained a TBI in 2014. I fell backwards fourteen feet onto a concrete slab. I was care-flighted to a local hospital. Fluid was leaking from my ears, my skull was cracked, and a piece of bone was missing from my skull.
They put eight staples in my scalp, prescribed me five medications, and sent me home within a few hours.
It was diagnosed as a Class/Grade (?) 3 TBI.
Very few things I can say I remember clearly after that. However, this I remember very clearly.
Within days, the medications they wrote sent me into anaphylactic shock. I could feel the itchy, tingling in my throat. I'd never felt that before. I remember trying to scratch the itch with my tongue. In minutes, it became harder and harder to breathe. I called three different people. No one answered. Finally, my father called back, and, as loud as I could (with my throat closing), with a rasp in my voice, I 'whisper screamed,'
"Dad. Don't panic, but I can't breathe."
"I'll call you right back."
I laid down on the living room floor, thinking, 'So, this is the day I die...'
Although it seemed like forever, within a minute, the phone rang. "I called Jim, Donna, and 911. SOMEONE is going to pick you up."
Donna is about five blocks away. Jim is across town, and the ambulance is further than Jim.
Jim beat them all.
On the way to the hospital, he's driving 85 MPH down city streets, weaving in and out of traffic, squealing the tires as he's turning left/left/right/left/right. I'm hanging on to the "Oh, S#!tter" handle, my eyes are swelling shut, I can see out of two little slits, and I say to him with my raspy whisper scream, "are you going to kill me on the WAY to the hospital?!"
To be fair, he did a good job. As he pulled up to the Emergency Room doors, I'm gasping for air, and I can only see blurry images. As he is leading me inside, I hear someone yell, "GET THE CRASH CART!"
I have no idea how long I was out. But I wake up to two of my friends fighting over who is going to inherit my stuff. (hahaha-No Joke. They Truly Did This. Sitting right in front of me.)
The ER nurse assigned to me comes over and says, as long as I am there, she may as well remove the staples from my scalp.
"Are you going to give me a local anesthetic?"
"Oh, don't worry," she says, "you'll just feel a little bit of pressure."
She YANKED out each staple, one by one.
I told her, "I'm going to give you a little bit of pressure!"

Now, I told you that story, to tell you this ..
Before the accident, if I told you I was going to be somewhere, if I told you I was going to do something, you could carve it in stone if you had a mind to.
I never wrote appointments down.
I never had a "schedule" to remind myself what to do, or when to do it.
My house was always spotless.
My bills were always on time.
I was in complete control of my emotions.
Hell, I was in complete control of my life.
After the accident, I remember getting a phone call.
"Where are you?"
"I'm at home. Where are you?"
"I'm where we said we would meet. And you're still at home??"
I was embarrassed, hot with anger, and I couldn't even remember that I had ever said that I would meet anyone, anywhere.
I didn't know who I was anymore, and all of a sudden, I was unsure of myself, and I was scared.
I was living with someone I had never met - ME.

...(more to come)...

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@pinkyandthebrain, I'm encouraged by your post. Now that may seem an odd response reading the incredible story of your TBI and harrowing experience with the analphalactic reaction. The reason I'm encouraged is the incredible writing. It seems to indicate that you've come a long way in your recovery.

I know that recovery from a brain injury is slow and riddled with frustrating setbacks and struggles with acceptance. Can you tell me more about your recovery and how you're doing today?

REPLY
@pinkyandthebrain

I sustained a TBI in 2014. I fell backwards fourteen feet onto a concrete slab. I was care-flighted to a local hospital. Fluid was leaking from my ears, my skull was cracked, and a piece of bone was missing from my skull.
They put eight staples in my scalp, prescribed me five medications, and sent me home within a few hours.
It was diagnosed as a Class/Grade (?) 3 TBI.
Very few things I can say I remember clearly after that. However, this I remember very clearly.
Within days, the medications they wrote sent me into anaphylactic shock. I could feel the itchy, tingling in my throat. I'd never felt that before. I remember trying to scratch the itch with my tongue. In minutes, it became harder and harder to breathe. I called three different people. No one answered. Finally, my father called back, and, as loud as I could (with my throat closing), with a rasp in my voice, I 'whisper screamed,'
"Dad. Don't panic, but I can't breathe."
"I'll call you right back."
I laid down on the living room floor, thinking, 'So, this is the day I die...'
Although it seemed like forever, within a minute, the phone rang. "I called Jim, Donna, and 911. SOMEONE is going to pick you up."
Donna is about five blocks away. Jim is across town, and the ambulance is further than Jim.
Jim beat them all.
On the way to the hospital, he's driving 85 MPH down city streets, weaving in and out of traffic, squealing the tires as he's turning left/left/right/left/right. I'm hanging on to the "Oh, S#!tter" handle, my eyes are swelling shut, I can see out of two little slits, and I say to him with my raspy whisper scream, "are you going to kill me on the WAY to the hospital?!"
To be fair, he did a good job. As he pulled up to the Emergency Room doors, I'm gasping for air, and I can only see blurry images. As he is leading me inside, I hear someone yell, "GET THE CRASH CART!"
I have no idea how long I was out. But I wake up to two of my friends fighting over who is going to inherit my stuff. (hahaha-No Joke. They Truly Did This. Sitting right in front of me.)
The ER nurse assigned to me comes over and says, as long as I am there, she may as well remove the staples from my scalp.
"Are you going to give me a local anesthetic?"
"Oh, don't worry," she says, "you'll just feel a little bit of pressure."
She YANKED out each staple, one by one.
I told her, "I'm going to give you a little bit of pressure!"

Now, I told you that story, to tell you this ..
Before the accident, if I told you I was going to be somewhere, if I told you I was going to do something, you could carve it in stone if you had a mind to.
I never wrote appointments down.
I never had a "schedule" to remind myself what to do, or when to do it.
My house was always spotless.
My bills were always on time.
I was in complete control of my emotions.
Hell, I was in complete control of my life.
After the accident, I remember getting a phone call.
"Where are you?"
"I'm at home. Where are you?"
"I'm where we said we would meet. And you're still at home??"
I was embarrassed, hot with anger, and I couldn't even remember that I had ever said that I would meet anyone, anywhere.
I didn't know who I was anymore, and all of a sudden, I was unsure of myself, and I was scared.
I was living with someone I had never met - ME.

...(more to come)...

Jump to this post

friday i tipped over in a golf cart staples plus temporary memory loss. i am going back to the doctor today due to problems breathing. i cannot imagine what you have gone through. the nurse tapped around the cuts to be sure i felt nothing. i am supposed to keep the staples in for two weeks. it sounds as if you had them taken out sooner. please keep in touch and let us know how you are doing. yes it is strange being in such a confused state. and as far as the two grabby friends, i would have words for them!

REPLY

I sustained a TBI in 2014. I fell backwards fourteen feet onto a concrete slab. I was care-flighted to a local hospital. Fluid was leaking from my ears, my skull was cracked, and a piece of bone was missing from my skull.
They put eight staples in my scalp, prescribed me five medications, and sent me home within a few hours.
It was diagnosed as a Class/Grade (?) 3 TBI.
Very few things I can say I remember clearly after that. However, this I remember very clearly.
Within days, the medications they wrote sent me into anaphylactic shock. I could feel the itchy, tingling in my throat. I'd never felt that before. I remember trying to scratch the itch with my tongue. In minutes, it became harder and harder to breathe. I called three different people. No one answered. Finally, my father called back, and, as loud as I could (with my throat closing), with a rasp in my voice, I 'whisper screamed,'
"Dad. Don't panic, but I can't breathe."
"I'll call you right back."
I laid down on the living room floor, thinking, 'So, this is the day I die...'
Although it seemed like forever, within a minute, the phone rang. "I called Jim, Donna, and 911. SOMEONE is going to pick you up."
Donna is about five blocks away. Jim is across town, and the ambulance is further than Jim.
Jim beat them all.
On the way to the hospital, he's driving 85 MPH down city streets, weaving in and out of traffic, squealing the tires as he's turning left/left/right/left/right. I'm hanging on to the "Oh, S#!tter" handle, my eyes are swelling shut, I can see out of two little slits, and I say to him with my raspy whisper scream, "are you going to kill me on the WAY to the hospital?!"
To be fair, he did a good job. As he pulled up to the Emergency Room doors, I'm gasping for air, and I can only see blurry images. As he is leading me inside, I hear someone yell, "GET THE CRASH CART!"
I have no idea how long I was out. But I wake up to two of my friends fighting over who is going to inherit my stuff. (hahaha-No Joke. They Truly Did This. Sitting right in front of me.)
The ER nurse assigned to me comes over and says, as long as I am there, she may as well remove the staples from my scalp.
"Are you going to give me a local anesthetic?"
"Oh, don't worry," she says, "you'll just feel a little bit of pressure."
She YANKED out each staple, one by one.
I told her, "I'm going to give you a little bit of pressure!"

Now, I told you that story, to tell you this ..
Before the accident, if I told you I was going to be somewhere, if I told you I was going to do something, you could carve it in stone if you had a mind to.
I never wrote appointments down.
I never had a "schedule" to remind myself what to do, or when to do it.
My house was always spotless.
My bills were always on time.
I was in complete control of my emotions.
Hell, I was in complete control of my life.
After the accident, I remember getting a phone call.
"Where are you?"
"I'm at home. Where are you?"
"I'm where we said we would meet. And you're still at home??"
I was embarrassed, hot with anger, and I couldn't even remember that I had ever said that I would meet anyone, anywhere.
I didn't know who I was anymore, and all of a sudden, I was unsure of myself, and I was scared.
I was living with someone I had never met - ME.

...(more to come)...

REPLY
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