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ADT Holiday

Posted by glabelle @glabelle, 3 days ago

For those of you who have been on an initial round of ADT for 6, 12 or 18 months (or whatever time period), and have then taken a break, how long were you able to stay off ADT before your PSA rose to the point where you had to resume ADT? I am Stage IV oligometastatic and my oncologist wants me to take a break from ADT after six months. Have also been through SBRT. Thank you in advance!

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jeff Marchi | @jeffmarc | 3 days ago

I know a lot of people that have done this and there is no one answer. Has your PSA been below .1 For a long time? If that’s true, then taking a holiday can make a lot of sense.

I know a few people that have taken more than one holiday. A couple of them have ended up with a few metastasis after the second time, but it’s been manageable for them. Some people don’t have to come back for many years, others have their PSA rise too much within nine months to a year and then have to get back on ADT.

Because you were metastatic You could have your cancer come back, but if you worked with Doctor Scholz, seen at PCRI, He would just zap whatever came back and send you on your way. He feels that Zapping whatever comes up is the best solution. Check out the last hour and a half of the most recent PCR I conference on YouTube and hear him talk about it.

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2 replies
bluegill | @bluegill | 3 days ago

I was on ADT for 4 years. Got down to 0.06 and then I took a 1-year vacation from ADT. It shot up to near 2.0 in one year, so I'm back on it.

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ecurb | @ecurb | 3 days ago

One year vacation is nice, Hope I get that lucky. ADT side effects are no fun. On my 5 th month of no ADT- all is well so far.

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web265 | @web265 | 2 days ago

I was on Orgovyx for two full years, started with my salvage radiation treatment. For the last 18+ mos of that time my PSA was < 0.006, been on "holiday" for almost a year now (knocks wood) still < 0.006 at last blood test.
Best of Luck to you!

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1 reply
firespooks | @firespooks | 2 days ago
In reply to @jeffmarc "I know a lot of people that have done this and there is no one answer...." + (show)
@jeffmarc

I know a lot of people that have done this and there is no one answer. Has your PSA been below .1 For a long time? If that’s true, then taking a holiday can make a lot of sense.

I know a few people that have taken more than one holiday. A couple of them have ended up with a few metastasis after the second time, but it’s been manageable for them. Some people don’t have to come back for many years, others have their PSA rise too much within nine months to a year and then have to get back on ADT.

Because you were metastatic You could have your cancer come back, but if you worked with Doctor Scholz, seen at PCRI, He would just zap whatever came back and send you on your way. He feels that Zapping whatever comes up is the best solution. Check out the last hour and a half of the most recent PCR I conference on YouTube and hear him talk about it.

Jump to this post

How many radiation zaps do you typically need for a lesion ?

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1 reply
ecurb | @ecurb | 2 days ago
In reply to @web265 "I was on Orgovyx for two full years, started with my salvage radiation treatment. For the..." + (show)
@web265

I was on Orgovyx for two full years, started with my salvage radiation treatment. For the last 18+ mos of that time my PSA was < 0.006, been on "holiday" for almost a year now (knocks wood) still < 0.006 at last blood test.
Best of Luck to you!

Jump to this post

On Holiday- a treat from the Almighty!!!

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jeff Marchi | @jeffmarc | 2 days ago
In reply to @firespooks "How many radiation zaps do you typically need for a lesion ?" + (show)
@firespooks

How many radiation zaps do you typically need for a lesion ?

Jump to this post

They zapped me three times for a lesion on my L4 in the spine. They could’ve done it with one, but they wanted to use a little less radiation because of how it was wrapped around the L4.

So the number of zaps does vary, dependent on the lesion size and location.

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firespooks | @firespooks | 2 days ago

Good to know. Did your PSA drop after the radiation?

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billfarm | @billfarm | 1 day ago
In reply to @jeffmarc "I know a lot of people that have done this and there is no one answer...." + (show)
@jeffmarc

I know a lot of people that have done this and there is no one answer. Has your PSA been below .1 For a long time? If that’s true, then taking a holiday can make a lot of sense.

I know a few people that have taken more than one holiday. A couple of them have ended up with a few metastasis after the second time, but it’s been manageable for them. Some people don’t have to come back for many years, others have their PSA rise too much within nine months to a year and then have to get back on ADT.

Because you were metastatic You could have your cancer come back, but if you worked with Doctor Scholz, seen at PCRI, He would just zap whatever came back and send you on your way. He feels that Zapping whatever comes up is the best solution. Check out the last hour and a half of the most recent PCR I conference on YouTube and hear him talk about it.

Jump to this post

23 months Oorgovyx/abi undetectable psa after 45 days. Taking holiday 2 months now had devised a plan to get pet scan if and when psa rose and identify and zap Mets if possible. I have been alone in this course of treatment. Glad to hear others have this thought also

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