adjuvant bisphosphonates

Posted by tessfair1 @tessfair1, Sat, Jan 26 7:52am

Hi. I’m Stage 3 breast cancer post bilateral mastectomy, chemo, radiation. Currently on Anastrozole. Doctor is recommending adding adjuvant bisphosphonates. I’m overwhelmed and less than a year out from diagnosis and surgery. I have an 8 year old so need to do everything possible to extend my survival but also want to have the best quality of life possible. Anyone out there who is not metastatic and doing this added therapy as prevention? Anyone (Mets or not) doing this therapy and have any feedback about it? This is all too much!

Liked by Jamie Olson

Hi Tessfair!
I so understand your situation. I am sending you positive energy and a calm moment. I have metastatic BC.

I had my first biosphosphonate infusion in late November. I have been on letrozole for 10 months. I had a bilateral mastectomy and 6 weeks of proton beam. I was terrified for some reason. Especially since all the other treatments were faced squarely. The infusion was a breeze. It took only 15 minutes.
I have had absolutely no side effects. I am planning on it working wonders and adding quality and quantity to my life.
Have faith that you will make the right decision.

Thank you! My mind feels calmer after reading your reply! Much love and respect being sent your way!

@tessfair1
I am going to have my last Zometa infusion coming up. This will be my 6th infusion, I have been treated with Zometa along with tamoxifen. The first infusion was rough, I was extremely ill. I schedule them on a Friday now, just in case. The subsequent infusions were fine for the most part. It is a good thing for bone health. I wish you luck..

@cmd03

@tessfair1
I am going to have my last Zometa infusion coming up. This will be my 6th infusion, I have been treated with Zometa along with tamoxifen. The first infusion was rough, I was extremely ill. I schedule them on a Friday now, just in case. The subsequent infusions were fine for the most part. It is a good thing for bone health. I wish you luck..

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Thank you so much for sharing your experience!

I started Zometa shortly after my bilateral mastectomy and radiation were complete to minimize possible recurrence in bones. Infustions were every six months for three years, then off for a year and am now back on it for osteoporosis. Happy to report that I have not had any side effects.

I had breast cancer last year. I too am on Anastrozole. I am having my first Zometa infusion tomorrow. Praying all goes well.

@support4me

I had breast cancer last year. I too am on Anastrozole. I am having my first Zometa infusion tomorrow. Praying all goes well.

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support4me @support4me, I hope everything goes well for you today, and no side effects. Keep us posted. Give yourself some kind of treat after your injection. (ice cream sundae?)

I too have completed my Zometa infusions for now. 6 infusions over the course of 3 years.
I have had a follow up bone density scan and it shows improvement in my spine.
I have had bone pain in my feet ever since the first infusion. Has anyone else experienced this? and if so , how did you handle?
I was quite ill with the first infusion and the bone pain in my feet started immediately.
I appreciate any feedback from those with a similar outcome.

Liked by trixie1313

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