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Adenocarcinoma, stage 4, local metastatic.

Posted by ajbambe @ajbambe, Oct 24, 2023

Hello! My dad is currently undergoing treatment for his recently diagnosed Adenocarcinoma, stage 4, local metastatic esophageal cancer(July 14th)He recently underwent 5 weeks of daily proton beam therapy and 5 weekly chemo doses. Last doses Oct. 5th. Lots of issues with nausea and vomiting, despite round the clock anti emetics. Receiving intermittent IVF in Rochester for severe dehydration and malnutrition.
PET scan on 10.26.23 with a possible Ivor Lewis Technique esophagectomy scheduled for 11.06.23 ( assuming no cancer detected on PET scan).
Anyone have any advice for surgery?

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

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jimmyd4 | @jimmyd4 | Mar 23 11:10pm
In reply to @rlrlavender "Aimeeuvk, Very sorry to hear about your sister. I was diagnosed with stage 4 February 2021...." + (show)
Profile picture for rlrlavender @rlrlavender

Aimeeuvk,
Very sorry to hear about your sister. I was diagnosed with stage 4 February 2021. It metastasized to lung, liver and abdominal lymph nodes. I’ve received chemo and immunotherapy and am currently pausing treatment as the original tumor was gone after about 6 months of treatment and the lungs are clear and the liver thing may have just been an artifact, not cancer. The abdominal lymph nodes have greatly reduced but they are monitoring as scans have been stable for a year. There are many stage 4s that are outliving old statistics, so ignore the statistics. Was there any bio marker testing? I know a couple stage 4s that are still around even 5 and 7 years after diagnosis. Immunotherapy has been a game changer for this diagnosis. Wish your sister all the best in this journey.
Rachel

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@rlrlavender well i i am in remission from stage 4 esophageal cancer after being diagnosed with it in 2012 i had 6 weeks of radiation twice a day and they were giving me my radiation like i hsd stage 4 lung cancer in both lungs then 4 weeks of chemo everyday then they removed my esophagus nearly all of my stomach they were supposed to make one out of what was left of my stomach and some of my small intestines my gall bladder the majority of my lymp knodes in my chest and abdomen I weighed 187 pounds when diagnosed lost all the way down to 103 and i am 6ft 2inches so hang in their things will get better except the taste of food

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lionsfan | @lionsfan | Jan 7 8:44am

Dr. Steven Wigle, Mayo Clinic Rochester

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rlrlavender | @rlrlavender | Jan 5 10:27pm
In reply to @aimeevuk "So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years..." + (show)
Profile picture for aimeevuk @aimeevuk

So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years as a respiratory therapist, so she has seen much and I'm having difficulty keeping her optimistic. What medical facility are you working with?

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@aimeevuk Wexner Medical Center at The Ohio State University

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rlrlavender | @rlrlavender | Nov 14, 2023
In reply to @aimeevuk "So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years..." + (show)
Profile picture for aimeevuk @aimeevuk

So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years as a respiratory therapist, so she has seen much and I'm having difficulty keeping her optimistic. What medical facility are you working with?

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Ohio state James cancer hospital in Columbus Ohio

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aimeevuk | @aimeevuk | Nov 9, 2023
In reply to @justtrust "My husband began experiencing swallowing issues in Feb 2023. Endoscopy, CT, PET at end of July..." + (show)
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My husband began experiencing swallowing issues in Feb 2023. Endoscopy, CT, PET at end of July resulted in Stage 4 diagnosis. Adenocarcinoma HER2+.
Eating only liquids from July onward.
Began FOLFOX chemo & Immunotherapy (and hydrogen inhalation at home) Sept 8. By 2nd week of October, he began to eat ANYTHING, with caution, but with no pain. He had been having pain since Feb.

No scans yet, so we don’t know how his metastatic areas are faring , but we know there’s been some improvement.

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Stay strong. I’m hearing many encouraging stories. Best of luck to you.. sending prayers and hugs your way.

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aimeevuk | @aimeevuk | Nov 9, 2023
In reply to @colleenyoung "@aimeevuk, how is your sister doing? Does she have a confirmed diagnosis and staging now?" + (show)
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@aimeevuk, how is your sister doing? Does she have a confirmed diagnosis and staging now?

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Stage 4. At UCD Sacramento . Waiting on a surgery today or tomorrow for feeding tube before chemo can begin in 2 weeks. No info yet on her2 or pdl1 .

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justtrust | @justtrust | Nov 9, 2023
In reply to @aimeevuk "My sister just diagnosed with EC, lower esophagus/ top of the stomach and we're awaiting PET..." + (show)
Profile picture for aimeevuk @aimeevuk

My sister just diagnosed with EC, lower esophagus/ top of the stomach and we're awaiting PET scan. CT scan shows "suspicious" lesion on the liver and suspicious lymph nodes in the stomach. She is unable to swallow anything but thin liquids and is having difficulty doing anything but planning her funeral. As I read the posts of people with similar conditions I am somewhat heartened, though I know we have to wait until PET scan provides staging information. Onc surgeon said definitely not a stage 1, since she's so symptomatic. I don't feel there's time for a 2nd opinion, since the disease is progressing so fast. She'll will probably end up having a feeding tube until/unless they get the tumor reduced. Anything encouraging I can tell her at this stage, from people who know would be most appreciated.

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My husband began experiencing swallowing issues in Feb 2023. Endoscopy, CT, PET at end of July resulted in Stage 4 diagnosis. Adenocarcinoma HER2+.
Eating only liquids from July onward.
Began FOLFOX chemo & Immunotherapy (and hydrogen inhalation at home) Sept 8. By 2nd week of October, he began to eat ANYTHING, with caution, but with no pain. He had been having pain since Feb.

No scans yet, so we don’t know how his metastatic areas are faring , but we know there’s been some improvement.

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Colleen Young, Connect Director | @colleenyoung | Nov 8, 2023
In reply to @aimeevuk "So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years..." + (show)
Profile picture for aimeevuk @aimeevuk

So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years as a respiratory therapist, so she has seen much and I'm having difficulty keeping her optimistic. What medical facility are you working with?

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@aimeevuk, how is your sister doing? Does she have a confirmed diagnosis and staging now?

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aimeevuk | @aimeevuk | Nov 5, 2023

So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years as a respiratory therapist, so she has seen much and I'm having difficulty keeping her optimistic. What medical facility are you working with?

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