Adenocarcinoma - just diagnosed

Posted by fpdm @fpdm, Oct 24, 2023

Hi - just diagnosed with Adenocarcinoma rectal cancer after colonoscopy. Will go for CT scan and MRI to determine next steps. Any advice? So scared.

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Profile picture for lou3 @lou3

I will check that Colon Alliance out for sure. I live in Canada so hopefully I will find more support. The surgeon never did call me back, I guess I’ll call her office next week. My biggest fear is being forgotten!! Wish me luck.

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Hi @lou3, I hope you were able to contact your surgeon. How are you doing?

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No. Miracles. Or. Prayers are. Going. To help. Had. Ten tests. Today. And. Tomorrow. All they are. Pushing. Is. Chem. And.radiotherapy So then. I will be bald for the rest of my. Life. No folks. Hair is. Very thin now. And then stick me. With a five gallon pail on. My. Hip. Everybody. Says. O a bag is. Delightful. I ride & work. Horses for a. Living. How. Can I ride. No it not Goodie. 2. Shoes down a. Trail. I am a very high level rider in dressage. So you are. Very very active. Moving around in the saddle. One. Doesn’t just. &. Look pretty. Plus. Clothes. We HAVE to. Wear is skin tight. Plus. White. Do you goody. 2. Shoes.help Looking for an answer

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Profile picture for cvestor @cvestor

Forget the pray stuff sorry if you believe it for yourself great but I do not believe it helps I just have to finish some loose ends on my part & then say goodbye

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I find praying helps a great deal. I am sorry you don’t. Without God I would not be so positive or joyful despite my circumstances. Everyone has a time to live and a time to die as it is written in the stars. Knowing approximately when is almost comforting knowing you can say goodbye and get your ducks in a row. Of course I am hoping for a miracle, knowing the odds are not in my favor :). I pray for you to have comfort in your situation whatever it is.

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Profile picture for cvestor @cvestor

Forget the pray stuff sorry if you believe it for yourself great but I do not believe it helps I just have to finish some loose ends on my part & then say goodbye

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When I heard of my new polyp and of the complex major surgery I needed to fix my very low fistula and to get rid of the very low polyp, I was very, very angry and anxious. I started psychotherapy and it was game changer in my outlook on my situation, as well as in my relationship with my husband and children, who had been taking the grunt of my anger and anxiety. I also took up meditation. Would that be an option for you, to work through your toxic feelings?

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Profile picture for cvestor @cvestor

Forget the pray stuff sorry if you believe it for yourself great but I do not believe it helps I just have to finish some loose ends on my part & then say goodbye

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I'm so sorry to read about what you're going through but do your best to be optimistic. Most of us on this forum seem to live with cancer rather than die from it. All I can say about bags is that, luckily, I didn't need one (nice surprise when waking up after the op) but a friend who needed one 18 months ago now regularly runs half marathons, and his bag doesn't hold 5 gallons or smell.
Best of luck.

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Don’t be afraid to be a squeaky wheel. You have to be an advocate for yourself.

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Profile picture for pssue @pssue

Please check out the colon Cancer Alliance online. They will give you as much support as you need and guide you through your journey. It is the most wonderful support for those of us colon cancer.

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I will check that Colon Alliance out for sure. I live in Canada so hopefully I will find more support. The surgeon never did call me back, I guess I’ll call her office next week. My biggest fear is being forgotten!! Wish me luck.

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Forget the pray stuff sorry if you believe it for yourself great but I do not believe it helps I just have to finish some loose ends on my part & then say goodbye

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Profile picture for cvestor @cvestor

I have no choice but to be pessimistic as I have been toldto go die by a surgeon. That is certainly a great way to treat a patient or the other wonderful option is to have a bag I will not have a 5 gallon pail hanging on my hip that stinks leaks and just does not work Plus people treat you like scum

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I want you to know that I'm praying daily for your healing and care.

Hopefully, others here will too.

God bless you and keep you.

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Profile picture for verol65 @verol65

I'm so sorry your perspective is really that pessimistic. I sincerely hope you could get other medical opinions. There might be a way to save your sphincter. It might be a matter of finding the right surgeon.

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I have no choice but to be pessimistic as I have been toldto go die by a surgeon. That is certainly a great way to treat a patient or the other wonderful option is to have a bag I will not have a 5 gallon pail hanging on my hip that stinks leaks and just does not work Plus people treat you like scum

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